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Scott Adams

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Everything posted by Scott Adams

  1. Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
  2. I agree, is it possible that your child is IgA deficient, yet has positive results for their tTg-IgA result?
  3. Good news! Keep in mind that approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
  4. Celiac.com 01/24/2025 - Olive farming has been around for millennia, with olives playing a central role in the diets and economies of many Mediterranean regions. However, while the production of olive oil is highly valued, the process...
  5. It looks like they will now order the Tissue Transglutaminase IgA Antibody test, but verify this with your doctor.
  6. Celiac.com 01/23/2025 - This study explored how a gluten-free diet influences gut function and microbiome composition in individuals newly diagnosed with celiac disease over a one-year period. Celiac disease, an autoimmune disorder triggered...
  7. Yes, this sounds right. Let us know when you find out your results.
  8. Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses. I also had temporary issues with chicken eggs, but could eat duck eggs.
  9. This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test...
  10. Celiac.com 01/22/2025 - Onigiri, also known as rice balls, has been a cherished part of Japanese cuisine for centuries. First documented in the Heian period (794–1185), onigiri was a convenient way for travelers and soldiers to carry a...
  11. Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck!
  12. Were you eating lots of gluten in the 6-8 weeks before your blood test? If not, you can end up with false negative results. Feel free to share your blood test results--were your antibody levels elevated at all? Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms g...
  13. It's difficult to say exactly why, but it is worth discussing this with your doctor, as it can by a symptom of other things--especially if you're also losing weight.
  14. Are there any things that you enjoy eating that you can have gluten-free versions of? For example, pizza, mac & cheese, pasta, etc? If so, perhaps try to include those in your diet more until your appetite recovers. Of course cannabis is famous for improving appetites, but I would only go that direction if you have serious weight + appetite issues...
  15. Thanks for the follow up, and at least you know the cause of your health issues and can now start working towards better health! This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  16. Celiac.com 01/21/2025 - Isabella Dickman’s story is one of perseverance, passion, and hope. Diagnosed at just five years old with two life-threatening autoimmune diseases—eosinophilic esophagitis (EoE) and celiac disease—Dickman has f...
  17. This article has some detailed information on how to be 100% gluten-free, so it may be helpful:
  18. From the article regarding the tTG-IgA test: So the most likely explanation of your positive tTG-IgA test would be celiac disease.
  19. There is no such thing a "mild celiac disease," and your blood test results and biopsy results indicate that you indeed likely have an issues with gluten. It also would make no sense for you to go gluten-free for two months and get the blood test done again--I can predict the results for you--negative. The real question here is how much gluten were...
  20. Welcome to the forum. You have two positive blood tests for celiac disease, and have symptoms, so there is a high probability that you have it, or non-celiac gluten sensitivity, regardless of the biopsy results. Unfortunately studies have shown that biopsies often miss taking samples in the appropriate areas, or taking enough samples, or properly interpreting...
  21. Thanks for sharing. It look like a helpful app for celiacs.
  22. No need for you to be at a loss, what you've described here is classic celiac disease--minus the biopsy results. I believe that your blood test results, combined with you getting better whenever you eliminate gluten, should be enough for you to indicate to you that you need to go gluten-free. Approximately 10x more people have non-celiac gluten sensitivity...
  23. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
  24. I agree with your gastro, the most likely culprit is gluten causing your Marsh 3b damage. Keeping a detailed food diary and eliminating foods like oats, milk/casein, soy, corn, etc., one at a time, then adding them back after a few weeks might help you pin down additional food intolerance issues. Again, depending on how long you've been gluten-free...
  25. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
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