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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  2. Scott Adams
    Let us know how things go, and I hope your health improves!
  3. Scott Adams
    Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If you want to be tested for celiac disease: Here is more info about how to do a gluten challenge for a celiac disease blood panel, ...
  4. Scott Adams
    I agree with @trents, and although some people with celiac disease have reported that their seizures went away after going gluten-free, and they were able to eventually stop taking medications for them, it would not be advisable to stop any medications for seizures unless your doctor recommends it. It would make sense to get a formal diagnosis for celiac...
  5. Scott Adams
    Overall, your genetic profile suggests that you may have an increased risk of celiac disease due to the presence of the HLA-DQA103 allele, which is a known genetic risk factor. However, the absence of specific alleles (such as HLA-DQB102, a part of the HLA-DQ2 haplotype) also plays a role in determining overall disease risk. It's essential to interpret these...
  6. Scott Adams
    Your gene results indicate a combination of DQ2.5 positive, DQ2.2 negative, and DQ8 positive. While it's less common to have this particular combination, it's not unheard of. The presence of DQ2.5 and DQ8 does increase the risk of celiac disease compared to the general population, as these genes are associated with an increased susceptibility to developing...
  7. Scott Adams
    It looks like the first tTg-IgA test was 2x the cutoff for celiac disease, and the second test was 3x the cutoff, so one might conclude that gluten is getting into his diet somehow, as this level normally goes down over time when someone with celiac disease is 100% gluten-free. In teenagers cheating on the diet can be common, as I found out with my daughter...
  8. Scott Adams
    He did not keep his lists up to date at all...they were more or less unchanged for years, even though the companies who make these drugs will tell you that their ingredients may change at any time. I have nothing against his rating system, or the work he did in the past, but am simply pointing out that maintaining an accurate list of ingredients used in drugs...
  9. Scott Adams
    Yes, it sounds like it would be considered to be gluten-free based on their procedures.
  10. Scott Adams
    For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:
  11. Scott Adams
    Ok, but did you see the info I posted? The site I posted is a government web site that is free, and is far more accurate.
  12. Scott Adams
    Before doing the test you may want to ask the lab whether or not you need to eat gluten before the test is done. I'm not sure what the protocol would be for such a test.
  13. Scott Adams
    More information about "Just Diagnosed with Celiac Disease? Don't Panic, Your Health Will Soon Improve"
    Celiac.com 05/04/2024 - Congratulations on taking the proactive step to undergo a celiac disease blood panel and/or endoscopy! While receiving positive celiac results can initially be overwhelming, it's essential to recognize that you...
  14. Scott Adams
    If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful:
  15. Scott Adams
    Another marker in the research stage is cytokine levels.
  16. Scott Adams
    Currently this is in the research phase, but zonulin levels may one day be a way to measure a gluten reaction:
  17. Scott Adams
    If your tTg-IgA levels were normal, then your doctor won't likely order any further testing, but, you already have your answer, don't you? Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. This a...
  18. Scott Adams
    Good to know, and you sharing any other information here would not be "clogging up" our board. Many members and those who search for products will find what you share very useful for years to come.
  19. Scott Adams
    It's hard to say what could have caused you to feel bad after going gluten-free, but the most likely culprit would be getting some gluten contamination (do you eat out in restaurants--this is a common source of contamination), or gluten withdrawals, which most celiacs get to some degree after giving up gluten. This article has some detailed information...
  20. Scott Adams
    I agree, and would only add that all manufacturers have quality control cleanings between each run on their machinery, and if things are made using shared equipment must include this on their packaging, even if the risk of actual contamination is very small.
  21. Scott Adams
    The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
  22. Scott Adams
    It makes sense for them to have you keep eating gluten until all tests are completed, and it sounds like you may now be at that stage (but ask them if the plan on more tests). Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet i...
  23. Scott Adams
    Good question, and I must assume that they have some cleaning process for them which would remove that, although I cannot speak for the company. This is the only reply I got from them, and only they can make this gluten-free claim about their products. For those who are super sensitive it is likely best to use a plastic straw, or better yet, no straw at all...
  24. Scott Adams
    This is a very old post, and the ingredients have now changed and Lipton Onion Soup Mix is no longer gluten-free: We have a gluten-free recipe for this here:
  25. Scott Adams
    Unfortunately without the reference ranges there isn't a way to be sure. Is there any way you can get these ranges? It seems strange that they would be excluded from your results. Just FYI, approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a g...
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