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AMQmom

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Everything posted by AMQmom

  1. AMQmom
    Another idea is to check out Angel Food Ministries - they have food distribution that is not income based and have an allergen free package that includes lots of items from AllergyFree - you can check the website for centers near you and menus.
  2. AMQmom
    I mentioned earlier that my daughter reacted to Rice Dream. She has no reaction to Good Karma brand Rice Beverages. They are sold in Kroger and Whole Food stores. Not sure if this helps you....
  3. AMQmom
    My daughter is sensitive and she gets very sick after having any Rice Dream product. She is 8 and will not go near that brand - even ice cream. That tells me a lot! I figure why risk it with my younger child. Obviously if it is making my one child ill, it is doing something to the other even if she doesn't feel it immediately.
  4. AMQmom
    halfrunner - thanks for your honesty....we want to go next year. Is there someone we can speak to about this to try and get some changes??
  5. AMQmom
    My 8 and 4 year old girls and I each wear a bracelet from Fiddledeeids. We are really happy with them. I now make my own bands to hook onto the original i.d. tag so we have all different ones for holidays, etc. Makes me feel better. I do have to tell you, though - the youngest and I have each had our own medical emergencies and the bracelets were not even...
  6. AMQmom
    Just went cherry picking and have a ton of those tart cherries - any suggestions??? I also have sweet cherries. I appreciate any feedback!
  7. AMQmom
    My family and I are planning on a visit to Traverse City soon. Any suggestions for grocery stores or restaurants that are safe? I have two celiac children and one is very sensitive. Any input is much appreciated!
  8. AMQmom
    I'm one of the one's that mentioned George's - my nutritionist recommended it for me prior to colon surgery. It helps the body heal inside like aloe vera helps your skin heal outside with burns. I give a dose to my children (both celiac) every day. I also find that when my very, very sensitive celiac child gets gluten in her system, loading her up on aloe...
  9. AMQmom
    I enjoy the Good Karma rice milks and ice creams - my daughter is VERY sensitive and she does not react to this brand. If you can have soy, the Key Lime ice cream ("Rice" cream is a MUST!!!) They can be purchased at Whole Foods (best flavor variety) and Kroger near us.
  10. AMQmom
    If you are ever in the Boardwalk area, I would suggest Spoodles. If you give Chef Marilyn some notice, she can try to get in her gluten free cheesecake (it does have nuts) - YUM! They have many items to chose from and they were all wonderful. We ended up dining there 3 times during our stay! YUMMY tapenade and tapioca rolls, too! We did breakfast and dinner...
  11. AMQmom
    For all of you out there who are sensitive and can relate - my daughter reacts (gets ill) when she has Rice Dream products - including the newly labeled organic "gluten-free" rice ice cream. No doubt that it was this product that she reacted to and she will not go near it now (she is 8 and ice cream usually was a temptation). We have to use rice ice cream...
  12. AMQmom
    I should have added this to my comment - here are the details that Disneyland sent to me when I asked if they were as accommodating as Disney World: When you come into Disneyland go to City Hall and ask them for the Gluten / Celiac list we have available. We also have a list for Disneyland, Disney's California Adventure, Grand California Hotel, Disneyland...
  13. AMQmom
    We had a wonderful Disney World experience in April and I already asked them about Disneyland - should be just as detailed. There are forms online that you fill out listing allergies. We had chefs call us here at the house before we left to go over details - it was great. At least two chefs saw to it that their restaurants had my daughter's favorites (one...
  14. AMQmom
    I'll try to get in touch with my sister this week and ask her those questions. I remember her telling me that she swallowed very large "pill" and took liquids they provided (I think) - I do not remember her talking about any other endoscopy....I'll check. They got images from the device that she kept on her (transmitter). I think that her hardest part was...
  15. AMQmom
    My sister lives in the Los Angeles area (California) and just had a pill cam. She said that her doctor was in heaven - the camera showed so much celiac damage that she is a great study case for them. It is a great way for them to see in detail what is going on in your intestines. She did have to wear a monitoring device and they suspected celiac before the...
  16. AMQmom
    I live in Brandon Township/Ortonville/Clarkston area - near Pine Knob.
  17. AMQmom
    Three of us are celiac in this household and we don't react to Rice Chex. My daughter is very sensitive and she is good with it - she is my gauge. Hope that you find what it is!
  18. AMQmom
    I read online that some sensitive celiacs react to Rice Dream and I avoided letting my sensitive 8 year old daughter have it as Disney World this last visit. BOY, am I glad that I did! Once we got home, I let her have some vanilla organic Rice Dream ice cream at a function the last day of school. She was ill for weeks (immediately after the bowl of ice cream...
  19. AMQmom
    This is a FREE family concert by allergy awareness musician Kyle Dine featuring "The Gluten Free Blues" and more at Calvary Lutheran Church in Clarkston, MI. Calvary is located at 6805 Blue Grass Drive in Clarkston. For more information...
  20. AMQmom
    On Tuesday, May 12, 2009 at 6:30 p.m., Kyle Dine will perform in a FREE allergy awareness concert catering to families of all ages at Calvary Evangelical Lutheran in Clarkston, MI. Kyle Dine, Canadian food allergy singer, has created an entire C.D. with songs about food allergy and intolerance and is celebrating the 12th annual Food Allergy Awareness Week...
  21. AMQmom
    Do any of you who are extremely sensitive use special brands for flours / are there brands that you trust more than others? My daughter (almost 8 years old) is so sensitive to gluten that the 10ppm is registering on her bloodwork (or so I assume - we are gluten free and my other daughter's bloodwork came back fine). She does not cheat on her diet and follows...
  22. AMQmom
    WOW! No I have more praises for this company. They phoned me in the States today to clarify that there is not currently a time line for the facility move of their bars. They feared that people would read my comment and be checking regularly at the stores. I thought that was very considerate. Right now, there is not a scheduled move for the Sun Rype bars...
  23. AMQmom
    I'm on the other side - I have a little Brownie Scout who could not sell or be near the boxes this year because she is Celiac. It is a bummer...at least we have lots of substitutes now-a-days!!!
  24. AMQmom
    I just found a bag of juice based fruit snacks by Sun Rype at our Costco. Just wanted to tell you all how thrilled I am with this product. I called Sun Rype and spoke to a lovely lady who let me know how gluten-free their products are. Only their bars are made on shared equipment in a different facility at this time, but they are in the process of moving...
  25. AMQmom
    oooh - one more thing. I understand that only scrubbing with soap and water removes gluten...not bleach. Really scrubbing.....
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