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ShayFL

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Everything posted by ShayFL

  1. ShayFL
    I personally will never take a drug when a healthy dietary change cures me. All drugs have side effects and some arent known for years and can be horrible (liver failure, heart failure, etc.) Why on Earth would I take something that could ultimately destroy my health when living gluten-free is very doable and healthy?
  2. ShayFL
    Have you considered dairy? Intolerances can show up at anytime. New girlfriend or boyfriend whom you kiss that may have eaten gluten prior to your kissing them?
  3. ShayFL
    Keep in mind that if your Ferritin is low and your adrenal hormone cortisol is low, you can get "false hyper" symptoms when you take Armour. Those two need to be up to snuff BEFORE starting Armour. With your labs....I would DEFINITELY consider Armour. I was severely hypo at 2.8 TSH and still hypo at 2. I am now .08 which is perfect due to autoimmune...
  4. ShayFL
    I just did 30 seconds per side. It was enough.
  5. ShayFL
    Anyone eat Kimchi? I want to get plenty of good bacteria in my system, but feel food is the way to go. And honestly, I am weening myself off of pills (supplements). Ack!! Dairy is out. I can make coconut yogurt, but so want something that is already made. So at my local health food store, I saw Kimchi. It is this brand: Open Original Shared...
  6. ShayFL
    I agree that you do not need a doctor's permission to keep your son gluten-free. If your doctor will not order the genetic test, you can use Enterolab or Kimball (pay out of pocket, but dont need a doctor's order). Congratulations on getting your son well!!
  7. ShayFL
    Your B12 is low. Did you get injections? They are the best way to get it back up PLUS daily sublinguals. Your Ferritin is likely low as well. You should have a CBC run to test your blood and Iron/Iron stores. Did they test your Thyroid? That is an issue for MANY of us. This can also keep you from losing weight. ***On the food*** I dont eat...
  8. ShayFL
    Alas, the dairy (kefir) I was eating, was back to it's old tricks. No bloating. No D or anything GI. But when I eat dairy I gain weight. But not good weight. I get Edema ALL OVER!! So while I was excited to be a little plumper, it isnt healthy. Edema is your body's way of saying NO!! So last night I made more coconut SCD yogurt. I got a young...
  9. ShayFL
    They mean you are actively reacting to gluten, but you caught it early enough to where the damage might not be too severe (no malabsorption yet). You have a CELIAC gene and pretty severe gluten intolerance according to Enterolab. MANY Celiacs cannot tolerate dairy while they are healing. And have to go gluten-free and CF at least for a few months or...
  10. ShayFL
    If you eat nitrate/nitrite free lunch meat and still get the same reaction, consider "tyramine". Processed and aged meats have very high levels of this amine. Tyramine is an amine which causes elevated blood pressure and tachycardia by displacing norepinephrine from storage vesicles. Tyramine is generally produced by decarboxylation of the amino acid tyrosine...
  11. ShayFL

    ARCHIVED New At This

    ShayFL replied to chrissy2's topic in Coping with Celiac Disease

    She is old enough to explain "osteoporosis" to her. Being Celiac (and continuing to eat gluten) means she is not absorbing her nutrition properly. She is likely lacking in calcium, magnesium and vitamin D. It is at her age that she can do the MOST or LEAST to save her bones. Those pains are NOT a good sign (as you well know). If she drinks soda too,...
  12. ShayFL

    ARCHIVED Disabled?

    ShayFL replied to Katester's topic in Coping with Celiac Disease

    For me to apply for a handicapped sticker for my car, I would have to be completely unable to walk. When I broke my foot and the doctor said because of the type of break, I would not be able to walk for 4 - 6 months, he wrote up the form for me to get the handicapped sticker. I never applied. I used my crutches. I never see myself as incapable. I always...
  13. ShayFL
    Amber you are most welcomed here. I try to catch "newbie" threads everyday so people dont get overlooked.
  14. ShayFL
    Enjoy your chocolate! I was just saying what "I" dont tolerate. I find it interesting with the grass allergy in HLA-DQB1 0301 that I have intolerances to the food grasses. Chocolate gives me horrible rebound depression. There was a thread on chocolate. I found a site that showed other people like me that get severely depressed after eating...
  15. ShayFL
    Does she have symptoms? I would also wait for the genetic tests to come back.
  16. ShayFL
    Here is another interesting finding: Grass pollen allergy was associated with an increased frequency of HLA-DQB1*0301 (RR = 2.3; EF = 0.4; P = 0.0016) when compared with the control population. Now I cannot tolerate grains or sugar which are ALL in the GRASS FAMILY!! Gramineae: Grass Family -- wheat, barley, rice, wild rice, millet, sorghum, corn,...
  17. ShayFL
    That my dear would indicate CELIAC disease. There are a few other rare reason your villi would be flattened or partially flattened too. BUT THIS IS NOT NORMAL!! Did you have Celiac bloodwork done too?
  18. ShayFL
    It means you have a large number of antibodies to "Gliadin" in your stool. Gliadin is a glycoprotein present in wheat and several other cereals within the grass genus Triticum. Gliadins are known for their role, along with glutenin, in the formation of gluten.
  19. ShayFL
    I will have to agree with this as my Cholesterol dropped as my TSH dropped. My Cholesterol is now perfect and all of my heart indicators (C-Reactive Protein, Lipids, etc. are all perfect). I wont ever let my TSH go anywhere near 1 again. That is too high for my personal biological makeup.
  20. ShayFL
    Stress makes everything worse. You should be tested for Lyme as the spotted fever could be a co-infection. IGENX is the lab you want for Lyme. You CERTAINLY should be on probiotics with taking Abx. Lots of Acidophilus. And not just yogurt. You need more than that. A supplement. How much C are you on?
  21. ShayFL
    Please go to: www.stopthethyroidmadness.com And read read read!! I wasnt "barely" normal. I was "perfectly" normal according to doctors for 12 years. WRONG!! I was severely hypothyroid at a TSH of 2.88. Armour made ALL the difference in the world for me. It was like someone flipped switch. I couldnt believe it! You should also...
  22. ShayFL
    Bad service stinks! And it is even harder for me because I am in sales and run my own business. I expect everyone to be as attentive and professional as I am. I am often so very disappointed......
  23. ShayFL
    Genes are so very interesting arent they? So glad this has helped you. If you dig hard enough, you can find research that supports HLA-DQB1 0301 being associated with Celiac Disease: 1994: Herrera M; Theiler G; Augustovski F; Chertkoff L; Fainboim L; DeRosa S; Cowan E P; Satz M L Molecular characterization of HLA class II genes in celiac disease...
  24. ShayFL
    Most of us avoid this sort of thing by never eating anything that we have not read the packing on, asked the cook about or made personally ourselves. Sorry you feel bad. Hope you feel better soon.
  25. ShayFL

    ARCHIVED Hair Loss

    ShayFL replied to puggirl's topic in Coping with Celiac Disease

    These are the tests you should have: TSH Free T4 Free T3 And there are 2 antibodies The antibodies tell you if your thyroid is being attacked (autoimmune). The other tests show function. TSH is called thyroid stimulating hormone. It is the hormone that tells the thyroid to work harder or slow down (depending on the amount of T3 in the blood)....
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