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Latest Celiac Disease News & Research:
Everything posted by cassP
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ARCHIVED Mucus In Stool?
cassP replied to salexander421's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yes- this is exactly what i was assuming! -
ARCHIVED Off The Wall Question
cassP replied to scottyg354's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
slightly... not really high.. but spaced out and VERY MUCH ENJOYING MY FOOD... i also get extreme pleasure while eating cheese... which i have not been able to get off of.. still addicted. it also felt like a drug, cause u cant stop- ie: if i was to eat a bowl of fettucini bolognese (real gluten pasta)- id prolly get up to fix 3 more bowls.. but now with... -
ARCHIVED Mucus In Stool?
cassP replied to salexander421's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
wow... someone finally went there... all this time ive been on here and we're all talkin about our BMs... & ive always been too embarrassed and grossed out to bring this one up. yes- ive experienced this- off & on the last 8 years or so... i REALLY really hope it doesnt have to be colitis or crohns... because i really started having it on a regular... -
ARCHIVED Flourless Chocolate Cake
cassP replied to sa1937's topic in Gluten-Free Recipes & Cooking Tips
omg! thanku! that looks DELISH.. i will definitely make it -
ARCHIVED Fried Breaded Green Beans
cassP replied to cO-ol's topic in Gluten-Free Recipes & Cooking Tips
ummmmm sauteed sweet potatoes, and now breaded fried green beans???? i am SO coming over to your house -
or.. maybe if you can find a gluten-free cream of mushroom soup.. add in sour cream & cheddar & swiss um.. when are we all gonna get together for a pot luck
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ARCHIVED B12, Pre-Mature Grey, Celiac?
cassP replied to Emma-Lee's topic in Related Issues & Disorders
i only eat up to 3 a day... it's supposed to help lower Hashi & Grave's antibodies. it's also supposed to help you convert your T4 to T3 easier. so far, they have not bothered my teeth.. they're kind of fatty.. i still indulge on Almond M&Ms.. and those almost crack my teeth -
ARCHIVED Burning Skin Sensations
cassP replied to IrishHeart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
sounds like nerve pain... which could involve your B12.. idk the only time i had burning was on my forearms (where i sometimes have DH)- i had a few BURN eruptions while on Synthroid & Cytomel... since i switched to Armour- i have not had it. hope yours calms down soon! -
ARCHIVED B12, Pre-Mature Grey, Celiac?
cassP replied to Emma-Lee's topic in Related Issues & Disorders
interesting about the Selenium... as Selenium deficiency often occurs in those with thyroid disorders. i did a ton of research after my Hashi & Grave's dx... and Selenium is the number 1 thing to take to help. instead of taking the supplement- i opted for eating 3 Brazil nuts a day. or 2. its been stressed that you can overdose on selenium very easily... -
ARCHIVED Am I Doing The Right Thing!?
cassP replied to salexander421's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i think you did the right thing- make sure they take @ 6 biopsies from different areas.. damage can be patchy.. no sense in doing the whole procedure if the doc is only gonna take 1 biopsy and call u a negative. then i would just go gluten free right after the test- dont wait for any results! my blood tests werent a solid positive (even tho my EMA was... -
ARCHIVED Is Gliadin Igg/iga Ab Prof, Eia Same Thing As The Dgp Test?
cassP replied to salexander421's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yes, i believe that is the DGP... im not an expert- but that's what it seems like. -
ARCHIVED New Here! Any Point In The Scope
cassP replied to Jungle's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
ya- people actually have no idea that most celiacs do NOT have gut symptoms.. it's surprising, yes- but that's what studies are showing. and most docs dont understand that either. i want my dad tested, but he wont do it. i even told our PCP that i believe he has it- but she said: "does he have any stomach problems?".. i said: "no, but most celiacs dont".... -
ARCHIVED B12, Pre-Mature Grey, Celiac?
cassP replied to Emma-Lee's topic in Related Issues & Disorders
i think grey hair is part genetics, part disease link, and possibly diet related too. i hate to sound like a broken record- but you should get fairly routine Thyroid panels done-> as Thyroid disorders can be common with Gluten Intolerance AND-> can cause premature greying. ive never heard of B12 def. contributing to grey hair- but i dont know... -
ARCHIVED Is Gliadin Igg/iga Ab Prof, Eia Same Thing As The Dgp Test?
cassP replied to salexander421's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
oh- if we already know she's making sufficient Iga, then yes- there's no need to add the tests i mentioned. the DGP/newer test- i only learned about on here- its possible that it may not be available at every lab??? idk. my PCP & Gi ordered pretty complete panels for me- but they used the older Antigliadin.. not the DGP.. so, ya, maybe not everyone can... -
ARCHIVED One Last Question...sorry Guys
cassP replied to scottyg354's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
what is MCHC???? -
ARCHIVED Is Gliadin Igg/iga Ab Prof, Eia Same Thing As The Dgp Test?
cassP replied to salexander421's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
is she eating enough gluten prior to testing? i dont know what the "EIA" is? it looks like they're ordering the older Antigliadin AB test- the DGP is the newer one. they should add to that order: TTG Igg, and Total Iga serum... -
i would also add- (including dont worry-you're gonna be fine)-> to get a thorough and routing thyroid panels... it CAN be common in those with Gluten intolerance- and CAN affect fertility as well... so good to stay on top of that too. i would presume that as long as you're gluten free and healthy- you should be just as fertile as the next woman..
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ARCHIVED Sorry, But Still Not Really Convinced And A Little Concerned
cassP replied to zus888's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
you're very smart to also want to make sure there's nothing else wrong- even if you DO have Celiac... or JUST have Celiac- we should always be vigilant- as we could have any number of issues from our esophagus all the way down- that's why its always a good idea for both scopes.. i was very relieved when my colonoscopy came out clear- and they removed a benign... -
wow.. i dont know what to tell u- cause i LOVE sweet potatoes... and you frying them up in olive oil and spices was making me drool... i prefer my sweet potatoes salty & savory.. as opposed to the sugar and cinnamon... im actually going to make russian potato salad in next day or two- using sweet potatoes INSTEAD of regular (as i avoid reg. potatoes...
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tests: Tissue Transglutamase Iga & Igg Endomysial Antibody Total Iga Serum Deamidated Gliadin Peptide **if they do not have this newer DGP test available, then ask for the Antigliadin Iga & Igg you need a complete panel- as many of us have many negative results. also- u MUST be eating enough gluten for an accurate...
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ARCHIVED New Here! Any Point In The Scope
cassP replied to Jungle's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
i agree with Shauna... you most definitely do not need the scope for a diagnosis. you are clearly positive.. BUT- i would consider a scope in the semi-near future.. or a few years- just to make sure everything's okay. i had a colonoscopy after my blood tests- just to make sure i didnt have anything else going on- it's a relief to get that clean... -
ARCHIVED Itching Worse In The Evening?
cassP replied to Hopeful1950's topic in Dermatitis Herpetiformis
do u shower or bathe in the evening?? cause i always noticed HOT water totally making my DH worse -
ARCHIVED Vitamin D
cassP replied to Nor-TX's topic in Gluten-Free Foods, Products, Shopping & Medications
is 5000 how much you're supposed to take when deficient?? i didnt know... my doc didnt say anything.. i just saw my lab results (cause i always request a copy)... anyways, im taking 4,000 a day of D3... is that gonna be enough? hhmmm ... ? mine are gluten free.. i get my supplements from the bloodtype doctor... everyone bashes him on here- but u know... -
ARCHIVED Where To Go From Here? I'm Baffled!
cassP replied to vegan lisa's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i know- i didnt always know that apples (esp. apple juice) can be too acidic... im fine with tomatoes in moderation. lemons & grapefruit actually turn the stomach and body alkaline. and OJ-> i avoid like the plague!!!!!!! unless i wanna end up worshipping the porcelain god -
ARCHIVED Eliminating the Celiac Disease-triggering Properties of Alpha-Gliadin Peptides ... - Celiac.com
cassP replied to Scott Adams's topic in Publications & Publicity
WELL SAID TAKALA!!!!! yes! MORONS at the USDA! its so frightening this science experiment the govt is hell bent on putting us all in