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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    Are there reported test results somewhere? I would love to see them. My experience is that the level is considerably lower than that. I think that I have seen a lot of reports of carmel coloring being gluten free unless otherwise stated. http://www.celiac.co...ree#entry789813 Do you react to these products?
  2. dilettantesteph
    These are really difficult issues that haven't yet been resolved. Colonoscopies do seem to miss diagnoses often. There are studies in which negative colonoscopies were followed up a year or so later and became positive. There are doctors who don't take enough biopsies which cause a false negative. What about all the celiacs with DH yet negative colonoscopies...
  3. dilettantesteph
    To help you better, give us an idea of what is going on? What are you eating, what precautions are you taking etc. It is hard to offer help without more information. The little information that you gave said that you wipe down everything that gluten touches. Can you give more details on that? You may need to do it more carefully. Do you use soap?...
  4. dilettantesteph
    I don't know. I hope not. Have you tried a diet of produce and unprocessed meat? That is helped me a lot.
  5. dilettantesteph
    I don't think that I misunderstood your question. It seems that I wasn't clear enough in my answer. It would seem that a very low level that causes a reaction to a super sensitive would not cause a reaction or harm to someone who is not super sensitive. There is a Fasano study where people eating 10 mg per day of gluten were given repeat colonoscopies...
  6. dilettantesteph
    It might be a good idea to avoid eating out for a little while. That reduces some unknowns when trying to figure out the problem.
  7. dilettantesteph
    Have your carefully checked that nutritional drink for gluten contamination?
  8. dilettantesteph
    This paper discusses it. It seems that there are different levels of celiac. Open Original Shared Link
  9. dilettantesteph
    That's just some people, but I'm one of them. Most don't have to worry.
  10. dilettantesteph
    I have thought about this too. I am super sensitive, and so if my son. My daughter is less sensitive, and husband hardly shows any symptoms even if he eats gluten by accident. My reading of the literature, especially the review published by the FDA: Open Original Shared Link has lead me to believe that different celiacs have different levels of sensitivity...
  11. dilettantesteph
    It isn't a daft question. It isn't one that anyone can answer either. Different celiacs/gluten intolerants have different levels of sensitivity. My husband can eat any gluten free thing around, and I have to obsess like crazy about the slightest contamination or I get sick. My daughter is somewhere in between. It just depends. The large majority don...
  12. dilettantesteph
    I definitely had problems with lingering loose bowels as well as a whole bunch of other symptoms. That is what I meant about it takes awhile to figure out the right diet and it takes time to heal. What helps is to keep a food/symptom journal. Try to keep your diet very constant and then start a series of elimination/challenge diets. Try to only change...
  13. dilettantesteph
    I'm on my 6th year now. At first I felt wonderful just eliminating bread and cereal. Then I had to learn a lot more about sources of gluten as I became sensitive to far lower levels of gluten. I am very careful about my diet and now my reactions are much less severe. If I try anything new, I only try a little bit at first. That way, if I do react to...
  14. dilettantesteph
    What have you been eating? How many gluteny kisses might you be getting from your loving children? If it is celiac disease, you may need to remove more sources of contamination. I felt great at first just removing bread and cheerios. Then I got more sensitive and had to remove more and more sources of gluten. It took me awhile to learn all the sources...
  15. dilettantesteph
    Some food banks will take opened items depending on what they are. You can phone around. I was able to give away a bunch of nuts to a food bank run at a church. They put them right in a dish and people were digging in even before I left.
  16. dilettantesteph
    This is a well known phenomenon in certain circles.. It is really unfortunate that some doctors and dieticians are unaware of it. It would be good for you to educate yours. This writer explains it better than I can: Open Original Shared Link Basically, there are different levels of tolerance among different celiacs. Some tolerate processed foods without...
  17. dilettantesteph
    Not only am I feeling fine, I am feeling wonderful. After being sick for most of my life, I am not sick anymore. Normal healthy people really don't appreciate their lives enough. All those normal, healthy people should be going around smiling all the time. It can take some time to figure out the right diet for you, and it takes some time to heal. You...
  18. dilettantesteph
    My daughter had problems with it. I didn't try it myself since I am even more sensitive than she is. Too bad, I heard that it is really good.
  19. dilettantesteph
    You may be super sensitive. You could try a diet of only fruits, veggies, and meat for a week to see what happens. As stated above, it could be an additional food intolerance in which case it helps to keep a food/symptom journal. Only add one new thing per week so that you can tell what is causing your problems. Four years is a long time to wait to...
  20. dilettantesteph
    Those are all great ideas above. Let me add one that I think wasn't there. Keep track of what you eat and how you feel in a food/symptom diary. Keep track of not only what it is, but what brand or what source. Some foods are processed on lines where gluten containing items are also processed and that can cause cross contamination. Some celiacs have more...
  21. dilettantesteph
    Thank you for this post Irishheart. I looked into this testing awhile ago and came to the same conclusion. It seems that it can be an expensive way to help you choose items for diet elimination/challenge studies, but that is the best way to determine if something bothers you or not.
  22. dilettantesteph
    Is that left upper quadrant pain? I hurt everywhere when glutened.
  23. dilettantesteph
    I looked at their website. They make mainly gluten containing cookies and they don't say anything about separate facilities for their gluten free items. You could call or e-mail them to check.
  24. dilettantesteph
    Could it be legumes in general? You might want to keep that in mind.
  25. dilettantesteph
    There can be contamination issues with grains in general. See Tricia Thompsons study. Open Original Shared Link Generally this seems to be a problem when something hasn't been certified gluten free, or for those sensitive to very low levels of gluten.
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