Jump to content

dilettantesteph

Advanced Members
 View Profile  See their activity

  • Posts

    2,862

  • Joined

  • Last visited

  • Days Won

    30

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by dilettantesteph

  1. dilettantesteph
    I know what you mean. I hope that you notice an improvement soon so it won't be necessary.
  2. dilettantesteph
    My mother told me that I was a terrible baby. It kind of hurt my feelings. Maybe that's why your mother didn't say anything. It isn't really a nice thing to tell your child. She told me that all I did was cry and it drove her crazy. She had my two brothers to care for too. It must have been very hard. I also have dental defects and missed a lot of...
  3. dilettantesteph
    I eat mainly from the garden. Real food starts to taste a lot better after awhile. You learn to cook better too. You can do it. It helps to make extra so that you can reheat, though at this point I mainly cook fresh because it tastes so much better. You can grow herbs in pots in a sunny window and they add a lot of flavor. My teenage son eats this way...
  4. dilettantesteph
    I have had reactions that last that long too, but that doesn't mean that it isn't something else, or even something in your diet currently. It wouldn't hurt to look over your diet carefully and eliminate anything new for now. You could add those things back again when you are better. It also wouldn't hurt to pay your doctor a visit. I would hope that...
  5. dilettantesteph
    At first I felt 100% better just eliminating bread and cereal. Then I had to learn how to read labels carefully. Then I had to go for certified gluten free only. Then I went for dedicated facilities and tested to under 5 ppm. Then I went to mainly unprocessed foods. Now I am mainly unprocessed and grow as much of my own as possible. It doesn't do...
  6. dilettantesteph
    My daughter is at McGill university. They agreed to give her an individual apartment in a dorm setting with her own kitchen with a doctor's note. She decided to stay off campus anyway. She found an apartment which was a better deal than the dorms, but she regrets it now as she had a lonely first semester. She has made more friends now and should be O...
  7. dilettantesteph
    Congratulations to your GI for being so well informed. It was a GI in my group who told me too, back more than 5 years ago. Back then there didn't seem to be hardly any awareness of this condition. I'm really glad to see it becoming more well known. Congratulations to those on this forum for helping with that. Still, I read all the time about people...
  8. dilettantesteph
    If you need a gluten free home you may need dedicated facilities too. It all depends on your level of sensitivity. It varies a lot. It is really easy for those who have a higher level to think that those of us with a lower level take things too far. I would probably be the same way myself. The only way to find out seems to be trial and error.
  9. dilettantesteph
    This source says "We also observed significant cross-reactivity between a-gliadin 33-mer and various food antigens, but some of these reactions were associated with the contamination of non-gluten foods with traces of gluten." It could be from cross reactivity or contamination. In my experience, I don't react to things when I grow them myself, even...
  10. dilettantesteph
    Do any super sensitives have experience with this rice? Good or bad?
  11. dilettantesteph
    You could try to keep a food/symptom journal. You may be able to link those pains with something that you are eating. It could be a certain brand or restaurant meal that has cc, or it could be another food intolerance. It works best if you can keep you diet simple with only one change per week. Produce and plain meats make this process of figuring things...
  12. dilettantesteph
    I don't think that it is flawed so much as there isn't enough known yet. They are researching and trying to figure it out as fast as they can with all the difficulties involved. Here is an article about the difficulties with funding with medical research: Open Original Shared Link
  13. dilettantesteph
    I steadily became more and more sensitive as I went along. So did my son. My husband did not. We all differ. In the end you will feel so much better that it will all be worth it. I was amazed at all the issues that went away.
  14. dilettantesteph
    I did come across a garden blog of someone in Wyoming who harvests vegetables all winter from unheated tunnels. I can't find it now since the forum where I posted it is down. I can't remember where in Wyoming, but it looks like zone 2 or 3. Reading that is what gave me the courage to try it here.
  15. dilettantesteph
    Where would it be? In the modified food starch?
  16. dilettantesteph
    Just let me warn you that it mainly winter harvesting, not winter gardening. Things don't grow much when it's cold and the days are short. They more keep in the ground outside. You need to start things at the end of the summer. Of course, that depends on your climate. I'm in zone 6. Look for books by Elliot Coleman. He is the winter gardening expert...
  17. dilettantesteph
    Since you posted this in the super sensitive section, I will make the assumption that you are super sensitive I am also super sensitive. I don't spend very much time calling people. I have had bad experiences with that. For instance, I did call a company after finding a gluten grain in their whole grain sorghum. They told me about all their efforts to...
  18. dilettantesteph
    Just be sure to keep track of this. I had problems with all sorts of things, including some sodas. If I hadn't kept track I wouldn't have been able to get healthy. Sometimes you think that you will remember and you don't. Good for you for noticing promptly and figuring it out.
  19. dilettantesteph
    There are other skin conditions associated with celiac disease besides DH: Open Original Shared Link
  20. dilettantesteph
    My most obvious symptoms come the next day. Sometimes I get symptoms the same day, but then again sometimes I think I do and then the next day I'm fine. It takes two days for my son. With smaller amounts, I find that it can take a few days to build up and I might not notice until I've had something for several days. I try not to add new things more than...
  21. dilettantesteph
    On the gluten free diet, celiacs should be as healthy as anyone else. There are Olympic and professional athletes with celiac disease. I see no reason to let it limit what you can do.
  22. dilettantesteph
    You might want to skip the restaurant meals until things calm down. It is just one more variable when things are already hard to figure out. It can take some time to get used to everything. Be patient. It is easy to get overwhelmed. It hard to feel responsible when your child gets ill. You can only do your best. Forgive yourself your mistakes. Different...
  23. dilettantesteph
    I have problems with chicken in general. I am sensitive to very low levels of gluten. I did find a source for while which was pasture fed which I could eat with abandon. They were the only thing processed in the facility. I don't think that the gluten gets into the meat from the chickens eating it. I saw a video on youtube of a chicken processing facility...
  24. dilettantesteph
    Since you are just starting out, it might just take some time. It can also take some time to learn all the ins and outs of the diet. In a shared household there are precautions that you can take with separate counters, toasters, certain dishes like colanders, etc. How careful are other family members about gluten crumbs? We tried everything for a year...
  25. dilettantesteph
    I had my children at age 35 and 37, before my diagnosis. I had already started having uncontrolled diarrhea before I got pregnant with the first one so I was pretty ill already. I think that the pregnancies and nursing may have caused some of the symptoms to improve. My message is that even untreated, I managed to have two healthy pregnancies and produced...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.