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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    I find that glutening symptoms are worse when I am having my period. You could keep things really simple by eating only produce and meat. Eliminate the major allergens and keep a food/symptom diary. Only eat a few types of food at a time and try to figure out some pattern. Try to keep changes to one a week to give yourself a chance to notice reactions...
  2. dilettantesteph
    You can buy fresh spices and use those, but that won't work for cumin. I had problems with spices too, but I am sensitive to very low levels.
  3. dilettantesteph
    I hope that soy is the answer for you. I had problems with vitamins, and I don't have a problem with soy. A food journal really helps.
  4. dilettantesteph
    I think it is great that you keep such a positive attitude. I hate being so symptomatic sometimes, but I can see how it can be helpful too. I hope your next doctors visit shows improvement.
  5. dilettantesteph
    This interview might interest you. Open Original Shared Link Have you tried a trial diet of only produce and meat? Some of us are sensitive to lower levels of gluten than others. Some of us have trouble with small amounts of cc in processed foods. That worked for me, and then I was able to add a few processed foods gradually.
  6. dilettantesteph
    Is it possible that you have gotten sensitive to lower levels of gluten? Maybe your gluten free diet is no longer gluten free enough. I don't know what you eat. It would be a simple thing to try a diet of produce and meat for a few days to a week to see if you notice any change. That is, of course, only one possibility, but it is the one that worked...
  7. dilettantesteph
    I've completely cut out sugar except for a tablespoon of honey a day. I was also treat and candy addicted. When I was a kid I carried around a bag of candy which I ate constantly. I stole money from my parents and snuck out to the store where I wasn't allowed to go to buy it. It really wasn't that hard to cut it out. You just stop eating it. Some...
  8. dilettantesteph
    That has really worked for me too. I'm glad that things are looking up.
  9. dilettantesteph
    Coffee is hard on the stomach. It is probably because you are healed that you can drink it again. I gave it up at first and now can drink it too. It does bother me a bit when I am glutened, but I drink it anyway.
  10. dilettantesteph
    I am so sorry that you are going through this. Is is possible to reassess your career goals? There may be some easy changes that you could make which would make things easier, at least during this transition time until you have healed. I get terribly depressed when I am glutened, so please consider that it may be depression talking and that things aren...
  11. dilettantesteph
    I'm pretty sure the OP has wheat allergy as well as gluten intolerance. I think that she has posted about it. I could put you in touch with her, or you could search her posts.
  12. dilettantesteph
    Have you read the FDA analysis I posted above? Is the FDA not reputable? I got the impression from the original post that she is getting medical attention, and I didn't mean to discourage that. I felt sorry for her since it seemed to me that you were telling her that she must have lymphoma. That is very worrisome. I also wonder how you think...
  13. dilettantesteph
    The only things that I know that I react to are gluten and avenin (in oats). It is possible that there is something else that I am so far unaware of. I do seem to react to very low levels, so my reaction would not indicate a reaction for someone else unless they react to very low levels as well.
  14. dilettantesteph
    It looks like you already know the answer. You are doing the right thing. Keep going with the food/symptom journal. Eliminate things that make you sick. The answer to the second part according to my experience is yes. Some of us who are less sensitive don't want to believe it, but my answer is yes. Since you are noticing symptoms in response to...
  15. dilettantesteph
    That does seem to be consistent with getting sensitive to lower levels over time as happens to many of us. Elimination/challenge diets have been the answer for me. One new thing/week only works best since it can take awhile for a reaction to show up. I hope you get things figured out.
  16. dilettantesteph
    Lisa gave you some really good advice. I so wish that I had been given that advice when I started on this diet. We are all different in our levels of sensitivity and possibly other food intolerances. You have to determine for yourself what is safe for you to eat. The best way to do it is to add one new things a week so that you can tell where any...
  17. dilettantesteph
    I tried oats after healing for 6 months or so. They were gluten free oats BRM. They had a little disclaimer on the package about some celiacs not being able to eat oats, but I didn't take it seriously. I was so looking forward to eating oats. I cooked up a bowl and ate half of it. It made me sick for 2 months or so. I really regretted not just trying...
  18. dilettantesteph
    This is a TV segment which shows what poop should look like posted in a different thread. Open Original Shared Link
  19. dilettantesteph
    I forgot to mention oats in my last post. The gluten in oats, avenin, is similar in structure to wheat gluten. Something like 10% of celiacs react to oat avenin in the same way as they react to wheat gluten. You mention BRM and Udi's. They are both companies who use gluten free oats in their product line. They clean well between products, but if you...
  20. dilettantesteph
    There are many different levels of sensitivity to this condition. Someone else being able to eat something doesn't ensure that you can. There is also an additive effect so that the more you eat, the more likely it is that you might cross your reaction threshold. There are other possibilities besides gluten as well. I am sensitive to very low levels...
  21. dilettantesteph
    Those nosebleeds are something else. I used to think that my son must be picking his nose to cause them, or at least initiate it. Then one time we were at the table together. His hands were nowhere near his nose and it just started gushing. I use humidifiers, and dehumidifiers and monitor the humidity and that does help somewhat. He doesn't get them...
  22. dilettantesteph
    It did take awhile, but things keep getting better and better. After not being able to work for about 16 years, I am now employed again. I went for a 5k run the other day with my daughter. I haven't been exercising much, but I still ran at a better pace than I did in a 5k race which I trained for a couple of years ago. That was two years gluten free and...
  23. dilettantesteph
    I had the same problem. I had symptoms while eating gluten free processed foods. Then my GI doctor told me that some celiacs need to avoid those and eat unprocessed foods. It has since been published that some of us react to the tiny amounts of gluten allowed in gluten free foods (but not always present). Open Original Shared Link It would seem like...
  24. dilettantesteph
    I'm happy with my online glasses. I measured my pupil distance with an online program I found. They are progressive bifocals and work fine, actually better than when I got glasses from Empire Vision, and those ones cost me $500. I got another pair of reading glasses. You can even add transition lenses for not that much more. I am very happy with the...
  25. dilettantesteph
    Even though I seem to have become sensitive to lower levels of gluten, I actually usually have a less severe reaction. I think that this is because I have healed and I have become better with figuring out a safe diet for me. I've also gotten good at only trying a little bit of something new, and then a little bit more, while carefully monitoring for...
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