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dilettantesteph

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Everything posted by dilettantesteph

  1. It can take awhile to heal. I took me quite while to track down all the gluten sources around me. If you are eating a lot of the gluten free processed foods you might want to cut down. A whole foods diet is more healthy in general.
  2. It took me a long time too. I had to be on a very gluten free diet too. You might be a super sensitive celiac like I am. Keep a journal of what you eat and how you feel. That can help you figure out cross contamination problems and possible food allergies. Are you using a kitchen shared with gluten eaters? Can you make your own kitchen with a dorm...
  3. I am another super sensitive celiac. I initially felt cured giving up cereal and bread. Then I went out and got the gluten free processed foods and reacted to them, just like you did. Then came the long process of finding out where gluten was hiding and eliminating it. After all that I'm on a whole foods diet with everything carefully sourced and...
  4. Raindrop, I feel a lot like you do when I get glutened as far as the emotional/neurological reaction goes. I feel so alone and have a hard time dealing with anything. It is hard to deal with the need to find safe food. It is hard to ask for what you need from your partner. My kids who are also super sensitive celiacs help me through it. My partner seems...
  5. Unfortunately just because they are definitely gluten free will not mean that they are definitely gluten free enough for a super sensitive celiac. I had problems with gluten free supplements. I really should not have improved when I stopped taking them, but I did. Any supplements I take now, I carefully checked with elimination/challenge diet studies...
  6. You may be a super sensitive celiac, reacting to processed foods. Try eating just produce and meat for a couple of weeks and see if that works. You can try adding a few processed things later.
  7. If you think something is bothering you, but it's only a little bit and you can't tell for sure, try eating a bigger serving. Eat 4 times the normal amount. Then you will know.

  8. Once you have come up with a safe diet, keep a food journal of what you eat and how you feel. Only add one new thing a week. It can take awhile to know if you have symptoms.

  9. For meat, get it cut up at the meat processor, not recut at the store where it is more likely to get cc due to the variety of things cut in the same place.

  10. With seafood, have them put on fresh gloves and get it directly from the box that came from the supplier. Once it has been set out, who knows what has touched it.

  11. With your meat, avoid chicken. The way they are processed the feces tend to contaminate. Cooking to 165 degrees as recommended will kill salmonella, but it won't get rid of trace gluten.

  12. The Super Sensitive Diet.

    Do this for two weeks.

    Have only produce and meat. Check toiletries soap etc. carefully for gluten content and be careful to consume as little as possible.

    With the produce, avoid anything you can't peel. Wash and peel everything carefully. Try to avoid coated produce. Farmer's markets are good for this. Try to avoid things grown...

  13. Even if test results come back negative you could try a gluten free diet. You could have what they call non celiac gluten intolerance. I used to have uncontrollable diarrhea before diagnosis too. It went away within 24 hours of cutting out cereal and bread.
  14. I did better with nuts in the shell which I shelled myself.
  15. It's possible that you are a super sensitive celiac. You could try cutting out the processed foods for a couple of weeks to see if that makes a difference. Eat just produce and meat. Skip anything processed, even oil and spices, don't eat in restaurants, and see what happens. If it works, then add things back one per week and see what is causing your reactions...
  16. We have had problems with salt. I think that only the most sensitive of super sensitives have to worry about it. It ended up that they were using a gluten containing soap to clean out their lines. They have since switched brands. To find out you can stop eating the salt for a few days and then eat it again. If the reaction was tiny, then eat more than...
  17. The shared facility warning is not mandatory. Should be.
  18. I know you asked Shauna this, but I thought I'd put my 2 cents in. I ask all those questions and go to farmer's markets too, but to begin with you can try something simpler and see if you get any improvement. Eat only produce and meat. With produce watch out for things grown on straw like strawberries and mushrooms. Watch for things coated like apples...
  19. Are you a truck driver? I totally respect you for being able to manage this on a super gluten free diet. I was feeling proud managing to go to my nieces wedding 8 hours away.
  20. The problem is that the separate dedicated facility is only as good as the raw ingredients that are brought into it. I buy my grains whole and sort and wash them before eating. I have found gluten grains in everything. I have looked through a lot of grains, and I don't doubt that the amount of gluten grains I find are much below 20 ppm in most cases, but...
  21. He can always be diagnosed with gluten sensitivity by response to diet. Why does he need the celiac label? Is it worth it?
  22. I have two teenaged children with gluten sensitivity. Their school performance is definitely affected by gluten. At the beginning of this school year my son had problems with gluten cc for about 2 months before we figured it out. The teachers of his two advanced courses wanted to kick him out, he was doing so badly. Now, at the end of the year, with the...
  23. The nuts could have come from a shared line. There are a lot of nut mixes with pretzels in them. It doesn't have to say so on the package.
  24. As a super sensitive I buy things whole, sort, wash, dry, and grind. I haven't found a good tapioca source though.
  25. I guess there is a bright side. It means that your usual diet has been super gluten free for you to be able to react so seriously to something that really doesn't have all that much cc. I can't eat the rice chex either, and the last time I tried my diet wasn't as free of cc as it is now. I don't know how I'd react if I tried it again. The last time...
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