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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    What I've used in the past after a glutening or Hashimoto's flareup (with resultant hair loss) are the following products with much success: BioSil, NeoCell Super Collagen, and chelated zinc. For a number of us here, BioSil has been the most effective.
  2. rosetapper23
    Yes, it was instrumental in helping my own gut to heal. I highly recommend it.
  3. rosetapper23
    Good grief--is your doctor purposefully trying to ensure that your biopsy comes out negative? Why would he/she do this?
  4. rosetapper23
    There are many options at a Thai restaurant, because they tend to use rice noodles. Simply tell them you can't have gluten, and they will omit any soy sauce. Otherwise, just about everything they serve is gluten free. However, if the server or chef does not understanding what you mean by gluten free, you should move on to another restaurant. So far, I...
  5. rosetapper23
    Specifically ask to be tested for iron (including ferritin level), folic acid, B12, magnesium, and Vitamin D to start with. These are nutrients that celiacs tend to have trouble absorbing. Probiotics and digestive enzymes may help you to start absorbing nutrients better, and many people have been helped with L-Glutamine.
  6. rosetapper23
    Have you tried eliminating iodine yet? It can make all the difference! Also, if the blistering continues, you might have it tested for staph. I recently went through months of having DH that wouldn't stop blistering...only to find out that the DH had become infected with staph. Staph has the same symptoms (blistering, peeling, and then more blistering...
  7. rosetapper23
    I take Armour Thyroid, and what I have found is that when I get glutened, I do indeed break out in DH...and because iodine is always in my system, it takes a good, long while to clear up. Prior to taking thyroid medication, I only broke out in DH when glutened while also eating something high in iodine, and the DH would clear up relatively quickly. If you...
  8. rosetapper23
    lynr, I've been there and done that, too. I recently stopped my chemo treatments because they had reduced my heart function by 30%. Thank goodness, I had been a lifelong runner--now my heart is "low normal" rather than "high normal," but at least it's still in the "normal" range. One thing that happened during my chemo treatments is that my DH seemed...
  9. rosetapper23
    Yes, living in a household where others eat gluten, using a shared toaster, and eating oats can all cause your symptoms. Many of us with celiac cannot tolerate oats regardless of whether or not they are certified as being gluten free. Also, many of us cannot tolerate soy and/or dairy. Sometimes as our autoimmune systems are producing a lot of antibodies...
  10. rosetapper23
    Um....I'm just wondering--if you suspect celiac, why don't you simply eliminate gluten from your diet? Why take something as dangerous as Dapsone to resolve an issue that you suspect can be resolved with a gluten-free diet? Many of us DH sufferers refuse to take Dapsone because of the damage that it can do (especially to the liver). I cannot for the life...
  11. rosetapper23
    I did a TON of research online regarding nutritional deficiencies that might cause tendon and ligament problems. I suffered from "floppy tendon syndrome," which caused the bones in my feet to fracture. I was a mess! It took me months to figure out that my bones weren't deficient and that it was actually the tendons and ligaments that were causing the problem...
  12. rosetapper23
    I agree--Against the Grain Gourmet sells great baguettes (regular and Rosemary). If you go to their website (www.againstthegraingourmet.com), they list all of the stores that carry their products. I understand that their pizza is awesome, too, but I haven't found it in my area yet.
  13. rosetapper23
    These procedures are painless, and usually there's very little discomfort (if any) afterwards. Sometimes you can feel as though your stomach and intestinal areas have been buffeted about (little soreness), but that passes after a few days. You'll see--these procedures are not difficult to undergo. Fear not!
  14. rosetapper23
    Celiac expert Dr. Alessio Fasano has written articles on this topic, and he believes that the endoscopic biopsy should no longer be considered the Gold Standard for diagnosing celiac disease based on the facts set forth by Peter above. The chances that damage can be overlooked are so high, this test can no longer be relied on. Dr. Fasano states that if...
  15. rosetapper23
    I haven't dined at a Chinese restaurant since I was diagnosed with celiac nearly nine years ago except for PF Chang's. It's too risky, in my opinion. Is there any chance that you could have Thai takeout instead? Much safer!
  16. rosetapper23
    I've had this problem myself, and it turned out to be deficiencies in manganese (NOT magnesium), zinc, and silicon. I took chelated forms of both manganese and zinc and a product called BioSil for the silicon. The condition began clearing up within days and was completely gone in two weeks. Also, you should have your thyroid checked. Thyroid problems...
  17. rosetapper23
    With Hashimoto's, the hormone can be normal or high or low. In the beginning, it's all over the place....and it can come on quickly.
  18. rosetapper23
    Have you had her thyroid tested? It regulates body temperature. As you probably know, Hashimoto's is very common in celiac sufferers, and it can cause fluctuations in thyroid hormones--this causes a feeling of being very hot. I have Hashimoto's, and that's how it started for me.
  19. rosetapper23
    Whenever I read that a person who has just switched to a gluten-free diet is reading labels, it sets off bells. You see, when you first start going gluten free, it really is best to just eat natural foods. That way, there are no labels to read, strange gums, or unusual grains that you're not accustomed to eating. It also cuts down on cross-contamination...
  20. rosetapper23
    I attended a celiac forum last Saturday in Palo Alto, and the topic of cross-reactivity was discussed extensively. While there are some people on this forum who object to this word (or maybe even its existence), it has been a topic covered at many nationwide conferences during the past few years; and, personally, I have accepted it as a very viable theory...
  21. rosetapper23
    I agree with what's already been said....but I have to defend myself! I wasn't posting because I was attending a Celiac Forum in Palo Alto (You know, Tom, over near Stanford! Where were YOU??) I met a very nice young lady from Germany who is living in Lafayette as an au pair. She just learned last month that she has celiac (oddly enough, her doctors in...
  22. rosetapper23
    I buy mine at a health food store, and I haven't experienced any problems of gluten contamination. Also, I use a coffee grinder to grind the seeds before mixing them in with the juice. Don't bother buying the pre-ground kind, because they lost their nutritional value 15 minutes after being ground.
  23. rosetapper23
    With a low Vitamin D level and a lifelong rash that resolved on a gluten-free diet, I'm leaning towards your having actual celiac disease. Your doctor was wrong to indicate that you didn't have it, though very few doctors seem to know much about celiac. It sounds as though you are a very sensitive celiac, too, so you should definitely begin to amass pots...
  24. rosetapper23
    IrishHeart is right: ground flaxseeds in either water or juice will work miracles.
  25. rosetapper23
    And don't forget the L-glutamine--it's cheap!
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