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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    It sounds as though you're a strong candidate for having celiac or gluten sensitivity. I should have mentioned that I had horrible joint pain from the time I was a young child--the doctors thought I probably had Juvenile Arthritis....but, of course, they were wrong. Mouth sores are very common with celiac, and my daughter (who refuses to get tested for...
  2. rosetapper23
    Though there are some members on this forum who will disagree with me, I see very little reason to have any tests done. Your symptoms are HIGHLY suggestive of celiac, and since your doctor has prescribed a gluten-free diet, what's the point in getting tested? It sounds as though you need to follow a gluten-free diet NOW and not later. Personally, I feel...
  3. rosetapper23
    Oh, my--MANY of us have suffered from RA and general joint pain. Celiac and gluten sensitivity appears to cause it. I agree that you should try a gluten-free diet (but you have to be strict!), and you may be need to take magnesium, manganese, silicon, and collagen. Believe me, if you do, you should see a vast improvement in your joint health.
  4. rosetapper23
    Listen to pricklypear--it is most probably the iodine that is causing the flare-up and lack of healing. Your daughter probably ate quite a bit of iodine while on the trip, but if you are careful to eliminate iodine for a few weeks, she should be fine soon. Also, any time the immune system is impaired, DH can worsen. I'm currently going through chemo, and...
  5. rosetapper23
    When I've gone in the past, I've eaten the fruit (served usually in half a cantaloupe) as well as the frozen desserts (again, fruit-based ones).
  6. rosetapper23
    Yes, you most definitely could have celiac, but you don't have to worry about the scoping. Whether or not your blood tests come back positive, you can just decide to go gluten free and see what happens. I suspect that you will start feeling fine...and that your menses will become regular. Your doctor should also test you for nutritional deficiencies (especially...
  7. rosetapper23
    I'm SO glad she's finally home and feeling better! I've been thinking about her over the past few days. Only 54 pounds? That makes me want to cry! Yes, please feed her anything she wants. Thank you for sharing with us how things turned out. Best wishes to her for a fast recovery!
  8. rosetapper23
    Cook up some bacon real fast?? A bacon sizzle? Heck, I'm not exactly sure what a sausage sizzle is. If it's just sausage, could it possibly be gluten free? Or are they going to add a wheat crust, eggs, etc.? Okay, this is going to be one of life's challenges....
  9. rosetapper23
    Please send me a personal message, because I may have information that could help you. I have celiac disease and also have metastatic cancer to my lymphatic system.
  10. rosetapper23
    This is exactly what is covered in "Primal Body, Primal Mind." It is the opiates in wheat that cause people to crave it--what a world we live in!
  11. rosetapper23
    It appears that you have a plan--that's great! Obviously, you possess a number of talents, and you'll have to learn through experience which ones to apply to make your future successful...and to be happy while you're at it. Your home life sounds very peaceful right now, and I'm sure your parents love having you at home. So glad to hear about your ability...
  12. rosetapper23
    I think this is a great idea....but you might also consider taking it even further and starting your own consulting business (since you have a cooking background) to train the staff's of nursing homes and elder-care community housing in the preparing and serving of gluten-free meals, etc. I believe in patient advocacy...and this area is currently very lacking...
  13. rosetapper23
    ciamaria brings up some good points--you may also be lacking in magnesium. While many brands of magnesium can cause digestive upset, two brands seem to be well tolerated: Bluebonnet Liquid Magnesium and Nature's Way Magnesium Complex.
  14. rosetapper23
    nvsmom is correct--this varies from person to person. You will definitely NOT lose weight if you replace gluten-containing processed foods with gluten-free processed foods (e.g., baked goods, breads, waffles, etc.). However, if you follow a diet that's primarily comprised of fresh, natural foods, you may see some weight loss. When beginning a gluten-free...
  15. rosetapper23
    From my own personal experience, I began to react badly to rice after being gluten free for seven years. The symptoms were identical to the way I react to gluten, so I was mystified at first. However, from my readings, I learned that the body can begin to misidentify certain foods as being gluten (cross-reactivity), and although there are a number of posters...
  16. rosetapper23
    So sorry your daughter is going through this! Can you bring her some gluten-free ice cream (e.g., Haagen Daz in the individual size)? If you bring some gluten-free soup from a grocery store, nurses will usually agree to heat it up in a microwave. Hospitals are still notorious for not providing gluten-free meals...and it's an embarrassing shame! When...
  17. rosetapper23
    I had almost all of your physical/neurological problems and more for my entire life. Also, at celiac conferences, it is often mentioned that celiacs cannot remember much of their childhoods because of decreased blood flow to the frontal lobes of the brain (caused by celiac). Celiacs oftentimes have plaques throughout their brains, but there hasn't been...
  18. rosetapper23
    Generally, fatigue means that you're deficient in certain vitamins, minerals, and/or hormones. Your doctor should be testing you (at a minimum) for the levels of your B vitamins (particularly B12 and folic acid), Vitamin D, iron, and thyroid. Your fatigue will subside once you're able to absorb vitamins, minerals, and hormones again. For me, I continued...
  19. rosetapper23
    Congratulations to you! And, yes, I share your concerns--the genes, as well as the triggering, of celiac always worry me. I have to mention, though, that I believe your doctor is wrong not to test your children for celiac. Many celiacs are asymptomatic, but damage could still be occurring to their villi. By the time the damage is done, some of it may...
  20. rosetapper23
    Be aware that people who have the rash (Dermatitis Herpetiformis) tend to have spotty damage in their villi, so oftentimes the biopsy comes out negative. Suggest to your gastro that he should take a minimum of eight specimens. You also have a second option: Rather than undergo an endoscopy, you may be able to find a dermatologist who knows how to correctly...
  21. rosetapper23
    I'm sure someone will jump in soon with all of the appropriate tests. There IS a full celiac panel that doctors SHOULD run; however, most don't. The pediatric GI should run those tests before a biopsy is considered. Regarding whether or not a biopsy is necessary, it isn't really considered the gold standard anymore by a number of celiac experts. One of...
  22. rosetapper23
    I've been dealing with DH for the past seven months--it won't go away because there's iodine in my thyroid medication (ugh!). So, in order to hide the very prominent purple and red sores/scars, I've used Dior's Air Flash. Although it was developed to actually spray directly on a person's face, I spray a little into the palm of my hand and then use a small...
  23. rosetapper23
    Since balsamic vinegar is gluten free and Ben & Jerry's will list on their carton ig a particular flavor contains wheat, I agree with you that something else is at play here that you're also intolerant to. Have you considered soy? For me, soy makes me feel exactly as though I've eaten gluten. Other big intolerances include dairy, corn, nightshades...
  24. rosetapper23
    I can't imagine why iron supplements would be considered bad. Yes, perhaps for people with normal absorption, it's better to get iron from food, but if you have celiac, you suffer from MALabsorption; therefore, iron supplements may be a necessary evil until your intestinal lining is able to absorb iron better. However, it's possible that there is so much...
  25. rosetapper23
    Unless my understanding is incorrect (and I'm sure other folks will correct me if I AM incorrect), the only way to diagnose celiac with a scope is through biopsy--and NOT from viewing the small intestine with the naked eye. I sure hope that enough samples were taken, though; otherwise, the gastro's diagnosis will be self-fulfilling. I hope that if the...
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