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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    Yes, besides iron, thyroid, Vitamin B12, and folic acid, your doctor needs to monitor your Vitamin D level. These are standard tests for people with celiac. Even though you've adopted a gluten-free diet, you may still be healing....so absorption is something that needs to be checked periodically.
  2. rosetapper23
    You definitely do NOT need to take Dapsone. Most of us have refused to do so (based on comments on this forum). It is a fairly dangerous drug and completely unnecessary as long as you follow a gluten-free diet (and eliminate iodine for the first few months until the lesions disappear). Luckily, with celiac disease, no medication is necessary except for...
  3. rosetapper23
    I've never had a problem at Carl's Jr., but, of course, others may have had other experiences. When I order at a Carl's Jr. (which I only visit while on road trips; otherwise, I don't eat fast food), I tell them I have a wheat allergy and that I'd like my burger wrapped in lettuce. The manager immediately comes to speak with me and handles my order him...
  4. rosetapper23
    Please read my response on your other thread--it may be pertinent.
  5. rosetapper23
    You are describing symptoms of Vitamin B deficiency, especially B12 (very common in people with celiac). Your doctor should be monitoring your B12 and folic acid on a regular basis. You didn't mention this, so I'm assuming your doctor is unaware of this common malabsorption problem among celiacs. You can request an immediate test, or you can begin taking...
  6. rosetapper23
    I understand what you're describing--and I believe what you're experiencing is the result of being deficient in Vitamin E. That weird feeling that you're describing is referred to as problems with "proprioception." Please take a look at the symptoms of Vitamin E deficiency: Open Original Shared Link Do the other symptoms sound familiar? I suffered...
  7. rosetapper23
    As mentioned above, Blue Diamond crackers are great with melted cheese and other toppings because they bake well in the oven; however, Crunchmaster crackers are by far the best-tasting gluten-free cracker on the market. I personally prefer the roasted-garlic flavored ones. They usually cost only $2.99 for a good-sized bag, and you can find them with all...
  8. rosetapper23
    First, Amoxicillin is not very effective against Strep--the co-worker should have been prescribed either Penicillin or Septra for strep. As someone who has contracted Rheumatic Fever twice (once from undertreated strep), I know the most effective antibiotics to treat strep. However, that said, I don't think it's wise to take antibiotics to PREVENT a disease...
  9. rosetapper23
    I agree completely with eatmeatforgood! The photos really look like DH, and your description is consistent with this type of rash....also, since it has responded previously to a gluten-free diet (low carb), I think you have your answer. However, if it IS DH, then what you have is true celiac, not just gluten sensitivity. Many of us here on the Forum have...
  10. rosetapper23
    I'd like to add, too, that Dr. O'Bryan provided everyone at the conferences where I heard him speak with his e-mail address so that if we wished further information, we could ask for it. I wrote him and specifically asked for information about a study he'd discussed, and he provided the information to me. Unfortunately, that was over five years ago, so...
  11. rosetapper23
    I know how you feel--I was glutened accidentally SIX MONTHS AGO, and my DH is still freshly blistering every single day. I can see that I'm getting fewer lesions, and they don't last as long, but I feel tortured! Now, I've had DH for 25 years, so I feel I can speak from experience on at least how MY DH works. When I used to be able to avoid all iodine...
  12. rosetapper23
    The dairy intolerance may pass after your gut has healed. Wishing you luck!
  13. rosetapper23
    Sometimes when you've been undiagnosed for a long time, your body ends up suffering from many nutritional deficiencies--and those deficiencies can cause all (and more) of the symptoms that you're experiencing. You might try adding magnesium, manganese, and a B vitamin complex. Magnesium runs all of the systems in your body, and when you're deficient, your...
  14. rosetapper23
    Speaking only about celiac disease, you can have the gene....but it needs to be triggered to cause celiac. I actually did have it from birth...but that's a long story. Most people seem to develop celiac sometime in their lifetime, but, again, it needs to be triggered by a particular event.
  15. rosetapper23
    Unfortunately, the only way you're going to make the digestive problems go away is to go gluten free, and your sighing/difficulty breathing is probably caused by your anemia. Besides iron anemia, is there any chance that you might also be Vitamin B-12 deficient? How did he address your nutritional deficiencies? Did he suggest that you take vitamins and...
  16. rosetapper23
    Just would like to add that if you do take TOO MUCH Vitamin B complex, it could be a problem; however, taking a daily Vitamin B complex is safe--B vitamins are water soluble and are not stored by the body the way that fat-soluble vitamins are.
  17. rosetapper23
    Okay, now that I'm at home, I've had a chance to look up other possibilities for sore/geographic tongues, and it appears that a number of B vitamins could be responsible. These include folic acid, B-2 (riboflavin), and B-6 (pyridoxine). You might try taking a good Vitamin B complex in addition to sublingual Vitamin B-12.
  18. rosetapper23
    I've used L'Oreal Visible Lift for many years, and I suffer from Dermatitis Herpetiformis. It has never caused breakouts (at least, for me!).
  19. rosetapper23
    This symptom is common in cases of Vitamin B-12 deficiency, which is a deficiency common in people with celiac. You might request a lab test from your doctor; or, alternatively, you can begin taking sublingual methyl B-12 tablets (2,000 mg twice a day) to see if the tongue issue resolves. It should go away rather quickly since the B-12 taken sublingually...
  20. rosetapper23
    Newbee, You only have to worry about iodine if you have Dermatitis Herpetiformis, the rash that some celiacs develop. If you DO have a rash and wish to eliminate iodine, it is most commonly found in iodized salt, seafood, salty snacks (e.g., crackers, chips, fries, popcorn, processed foods, etc.), asparagus, and some dairy (depends on your locale).
  21. rosetapper23
    I only eliminated gluten; however, I've never been able to tolerate soy, oats, or iodine, so I continued to avoid them, too. I don't have any problems with dairy. You will notice that you incrementally feel better over time and little by little your stools will become more solid. You'll just need patience. I was 47, so if you're younger, you may heal...
  22. rosetapper23
    Yes, I agree that now that all tests have been done, DEFINITELY pull ALL gluten out of your daughter's diet. Regardless of whether it's celiac or gluten sensitivity, it sounds as though gluten may be the problem. You'll only know for sure if you place her on the diet for an extended period of time. Also, yes, endoscopies are frequently incorrect for many...
  23. rosetapper23
    It's best when a few slices are taken out of the freezer, wrapped in a paper towel, and microwaved for a few seconds (turn them and rewrap halfway through)--this is for regular sandwiches. However, it's also fine when used for grilled cheese sandwiches or tuna melts. Personally, if I need to make a sandwich while at work, I place a couple of frozen slices...
  24. rosetapper23
    Personally, although my diarrhea pretty much disappeared after a month, my stools were still soft until I had strictly adhered to the diet for a full 18 months. At that time, I felt "normal" for the first time in years. Everyone, though, is different....and as the previous poster mentioned, it depends on how damaged your villi are. I will say that taking...
  25. rosetapper23
    Yes, I've never had a reaction to Hormel's products, and I think they're a great company for leading the way with marking their products as "gluten free."
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