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Roda

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Everything posted by Roda

  1. Roda
    I think it will give us a clearer picture and put to rest some doubts in hubby's and my son's minds. An example of experiment, I only suspected I couldn't tolerate Bob's products. Last week while at Disney we visited the gluten free bakery in downtown Disney. I ended up eating two donuts and a few cookies. I knew beforehand that they used flours packaged...
  2. Roda
    I realize the the steps necessary to do a proper gluten challenge for blood work/scope and that is not what I was aiming for. I am alright leaving him gluten free, but my husband was the more skeptical one. I appreciate everyone's opinion and I agree that everyone has to do what is right for them. If I hadn't tried certified gluten free oats I would have...
  3. Roda
    Now I know I'm not the only one that has done a gluten challenge for a child. Yes, and gluten free he will eventually stay. This is something that my husband and I aggreed on. He has been very considerate and supporting of this for my son. He has even quit bringing things in the house that he used to eat because he does not want to upset him. And I agree...
  4. Roda
    Well around the 19th of this month it will be three months that my 6 year old has been gluten free. There have been some bugs that needed worked out but all in all we have adjusted. I didn't take him to a GI doctor and went gluten free based on his postitive ttg test and my diagnosis. I did this anyway knowing what the consequences would mean for future...
  5. Roda
    Well good news is that all snacks for the whole class are going to be gluten free and I saw the list and everything is fine. It was pretty challenging for the teacher to find things for the snack list that were gluten free for my son and peanut free for a few other kids. The clean up etc was taking too much away from her instructional time so this is how...
  6. Roda

    ARCHIVED Changing Lives

    Roda replied to T.H.'s topic in Coping with Celiac Disease

    Yes, I find it hard not to talk to people about it especially at work (I'm an X-ray/CT technologist) and see patients who are very sick and have histories that definately would indicate testing for celiac. It makes me sad to think about this because so many of the health care professionals I work with know very little about it. I have on occasion when I...
  7. Roda
    I have wanted to make this casserole dish that my mom used to make since I went gluten free. I tried this recipe for "canned" cream of celery soup Open Original Shared Link and the only thing I did different was add some fresh crushed garlic when I sauteed the celery. I made the casserole while we were in Florida last week and it was a big hit, and my dad...
  8. Roda
    Just fyi, the moodieness and meltdowns for about a week after removing gluten got a little worse then started getting better. I also noticed a spike in his appetite. Others on here have experienced similar things and I believe it was a result of detoxing from the gluten. The appetite has stabalized. It has increased some recently, but not like right after...
  9. Roda
    My youngest son does not have an "official diagnosis" either, however I do. I also have a very supportive allergist and he wrote a note for the school for his need to avoid gluten and the school is being really accomidating. I had changed allergists and requested allergy testing because I felt food might be at the root of some of the issues he was having...
  10. Roda
    Yeah, the peanut allergy really limits what I can send in for my son, but it is just as important for those to be safe as my son. Making cinnamon toast out of the rice cakes is a great idea that I will definately try at home at least. I never thought to crumble them up to make rice crispy treats out of, I wonder how they would taste? I was wanting to make...
  11. Roda
    I also have no stones but a suboptimal functioning gallbladder that was found last year. However, my ejection fraction was above the 35% that they want to even consider surgery. I also was having some celiac related problems also. I feel I have corrected the gluten issues but all of the sudden since Saturday I bloated up, was belching a lot and started...
  12. Roda

    ARCHIVED Changing Lives

    Roda replied to T.H.'s topic in Coping with Celiac Disease

    I probably haven't changed to many lives but I do get information out there about celiac. I put my youngest son gluten free in Nov. since his last ttg test was positive. My oldest son's test are still negative, but his allergist and I feel he needs to be gluten free, so I'm still working on the husband on that one. I may even take him for a gi consult...
  13. Roda
    Yes, I like the healthy snacks too. Most of the new approved snacks came from my ideas and things that were in my son's own snack box at school. There are kids in his class that have peanut/nut allergies so I had to make sure all of the snacks I sent for my son were nut free also, but the rest of the class's snacks were not gluten free. I think the teacher...
  14. Roda
    Need some help here from all of the veteran's on this one. Here is our class approved snack list as of right now (it was changed today due to my son's gluten free status): apples, bananas, grapes, string cheese, Yoplait gogurt/trix yogurt, mott's appleauce cups, fruit/fruit cocktail cups, Betty Crocker fruit roll ups/snacks, carrot sticks, ocean spray craisins...
  15. Roda
    Alot of the time when doctors order a thyroid test all they do is a TSH. You need to get a full thyroid panel done which includes a TSH, free T3, free T4 and the tests for the thyroid antibodies. I have included a link to the antibody tests. Open Original Shared Link
  16. Roda
    Main stream oats and oat flour are a no due to the high cross contamination. There are several brands of certified gluten free oats that are available. I would wait awhile before adding them in until you start to heal and then take it slow with them. I was 7 months into gluten free before I tried the gluten free oats and low and behold I reacted violently...
  17. Roda
    The main thing I know is that I feel so much better not eating any of those products. I am tolerating Ener G products and Betty Crocker gluten free mixes alright. I'm still not 100% but compared to this time last year I'm doing great. I knew at 7 mo post diagnosis I couldn't handle the gluten free oats. I never gave it a thought about the cc from them...
  18. Roda
    Since you are still having issues I would ditch all of the cosmetics and health and beauty care products. Yes you are correct in that you can't absorb it through your skin, but it still may help to eliminate it. I eventually had to eliminate all of Bob's Red Mill products. My own theory on why is that I believe I was getting low levels of cc from their...
  19. Roda
    I did great for the first year I went gluten free then pretty much all of 2010 was miserable. I went on a strict elimination diet of fresh foods. I was at a point that my GI said that based on my still elevated Igg gliadin antibodies, the constant unrelenting diarrhea and steatorrhea that it was a good indication that my celiac was flaring up. I also had...
  20. Roda
    Here is a response I recieved from them. Keep in mind this was from March 2010. I took it and had no issues, but now I take mylan.
  21. Roda
    Sounds like something my husband would say.
  22. Roda
    And this could potentially be a problem for those who are super sensitive to the gluten. I agree that there is potential and benefit for some as it will afford more choices.
  23. Roda
    I would only take it for the possible cc. I wouldn't take it and eat wheat without any regard.
  24. Roda
    I'm all for scientific research, I just don't want any part of this particular one. It very well may turn out to be safe for a lot of people and to that I say great. If I came off as sounding snide that wasn't my intention. At the risk of sounding stupid..how does this help with issues with corn? Could the research on the hydrolyzed wheat be applied to...
  25. Roda
    I don't let my kids have it in the house at all. My youngest son and the school have been informed that he is not to play with it also. Before he went gluten free I threw away all of his playdoh and replaced it with soyer doh. It was good for a little while but if it gets to warm it gets sticky. It also crystalized in the containers. I am just going...
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