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Korwyn

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Everything posted by Korwyn

  1. Korwyn
    You are describing what happens to me when I get soy. I developed a severe intolerance to it about six weeks going gluten-free but it took a while to figure out. Either that or I had it before but didn't notice because I was so sick from celiac disease/Gluten.
  2. Korwyn
    ROFL
  3. Korwyn
    I hate hearing things like this. I hope you can sit down and have a heart to heart with him and explain that as much as you love him your health and wellbeing are important to you, and you would hope they were as important to him, but if they aren't.... I hope you are able to work things out.
  4. Korwyn
    It can. However if you have a low grade overgrowth you can have intermittent symptoms for some time. Of if you have some other type of flora imbalance.
  5. Korwyn
    You need to contact your doctor immediately, and if it were me I would also start a probiotic like PB8 at double or triple portion size (3 per meal + bedtime or something similar). There are a number of bacterial infections/overgrowths possible including C. Diff. I suffered a C.Diff overgrowth that nearly killed me. (Literally). In fact that traumatic event...
  6. Korwyn
    I would contact her and just tell her something like "I'm really looking forward to lunch with you. I was wondering if you knew where we might be eating as I have some dietary restrictions for medical reasons. If I'm going out to eat someplace unfamiliar I call ahead and make sure that they have food I can eat without becoming ill." This might prompt a...
  7. Korwyn
    Hi CGally, I believe (based off both personal experience and lots of research) that the hunger may be linked more to the carb/starch removal from your diet. My suggestion and what has worked for me would be for you to eliminate the starches completely for a while. No grains or potatoes, and increase the amount of animal fat (non-processed) for a while...
  8. Korwyn
    I also would question your caloric intake. However if you are on a restricted calorie diet of some type people often need to supplement with vitamins. Have you checked all of your vitamins, supplements, and medications?
  9. Korwyn
    My doctor told me that if I was going to try a gluten-free diet that it needed to be for a minimum of 6 weeks, and it needed to be as close to 100% compliant as I could possibly get. Based on much research in last 10 months since I was diagnosed, I would recommend a minimum of 3 months. You may know this already, but you have to consider gluten in medications...
  10. Korwyn

    ARCHIVED Questions About Enterolab

    Korwyn replied to sandsurfgirl's topic in Doctors

    Not really for a couple of reasons: Several other tests she has had done show gluten intolerance and no Celiac (which is consistent with the Enterolab results). Also she has been Elisa/ACT and dietary tested and shown intolerance for gluten and cow's milk (also consistent with the Enterolab). This would possibly be accounted for by both the DQ6 and DQ8. ...
  11. Korwyn

    ARCHIVED Questions About Enterolab

    Korwyn replied to sandsurfgirl's topic in Doctors

    Also, one of the things you need to think about is that since Enterolab and Prometheus both do not take private insurance by the time people get to this point they are usually fairly certain they have at least Gluten Intolerance, if not Celiac Disease. So you have essentially a self-selecting test group that is already filtered to an abnormally high incident...
  12. Korwyn

    ARCHIVED Questions About Enterolab

    Korwyn replied to sandsurfgirl's topic in Doctors

    Not really for a couple of reasons: Several other tests she has had done show gluten intolerance and no Celiac (which is consistent with the Enterolab results). Also she has been Elisa/ACT and dietary tested and shown intolerance for gluten and cow's milk (also consistent with the Enterolab). This would possibly be accounted for by both the DQ6 and DQ8. ...
  13. Korwyn
    Classic symptoms for both of you, and yes they come and go. I had good times and bad times as well (days/weeks/months), gradually more bad days as I was getting sicker over the years, then eventually when my celiac disease kicked into full gear after a serious illness I didn't have any more good days until I went gluten-free/CF/SF. I'm getting better and...
  14. Korwyn

    ARCHIVED Help

    Korwyn replied to judyg's topic in Coping with Celiac Disease

    Hi Judy, Vitamineshoppe and kirkmanlabs both have a large supply of gluten-free,Casein/Dairy free, and other allergen free vitamins. Vitaminshoppe is also very good about responding to inquires on specific items and their QA dept has called me directly a couple of times to answer questions I've had. Also two books that might be helpful for your you...
  15. Korwyn
    I so want to try these but the thought of what my system would do if I ingested refined white sugar like that makes me shudder. I wonder if I could substitute 3/4 raw honey instead... Hmmm....
  16. Korwyn

    ARCHIVED Questions About Enterolab

    Korwyn replied to sandsurfgirl's topic in Doctors

    I, my wife, my Dad, and one sister have all been tested through Enterolab. My results were positive for tTG, gliadan IgA, and Casein IgA, no fat malabsorption, DQ8 and DQ2. My Dad showed positive tTG, gliadin IgA, negative Casein (<10), no fat malabsorption, double DQ8. My wife was positive gliadin IgA, negative tTG, positive Casein, negative fat, ...
  17. Korwyn
    Try buckwheat. It makes a great hot cereal (and is not 'wheat' despite the name). I'd suggest until you get a handle on some of the basics and are more comfortable with learning your healthy(ier) body's responses that you stay away from oats for the time being.
  18. Korwyn
    Gluten is not an allergen (by FDA standards) first of all. So the fact that anyone bothers to label and concern themselves with cross-contamination is terrific. "Secondly, FDA regulations (21 CFR 101.100(a)(3)) exempt from ingredient declaration incidental additives, such as processing aids, that are present in a food at insignificant levels and that do not...
  19. Korwyn
    Wow...ok, given what you have said about your diet in a couple threads I see some potential concerns. As a vegan (voluntary or involuntary) and the other restrictions on your diet as you have described I would seriously look at lack of critical nutrients. CoQ-10, B2, B6, B12, D3, H (Biotin/B7), Omega3,6,9, Selenium, Iodine (Thyroid function), Sodium (Brain...
  20. Korwyn
    The other rule of thumb I go by is very similar to the above but with a twist: (Other than meat) Does it have to be (or has it been) heated, refined, or processed by machine before making it into my hands? For example: Canola oil - take from the rapeseed plant, inedible in natural form by man BAD Honey - processed and pasteurized prior to being sold...
  21. Korwyn
    Yes. If you are going in for an endoscopic biopsy you do need to continue. Unfortunately you are in the same boat my sister was. She stopped and went gluten-free for about two weeks, then they made her eat it again for 6 weeks prior to her biopsy. 4-6 slices of wheat bread a day. Because she had stopped first and her body started to switch off the inflammatory...
  22. Korwyn

    ARCHIVED Confused

    Korwyn replied to jacnit's topic in Coping with Celiac Disease

    Living Gluten Free for Dummies. Available on Amazon. A friend of mine loaned me this sometime during my first two weeks and I ordered a copy before I was through chapter 1. It is a life and sanity saver.
  23. Korwyn
    Angina is listed as a related symptom/condition in the 'Red Book'. Personally I experienced this repeatedly over the last 20+ years, starting when I was 20. I had classic heart attack symptoms (chest pain, shortness of breath, heart palpitations, racing heart, pain radiating into the lower jaw, neck, and left arm). I've had three cardiac workups, plus a cat...
  24. Korwyn
    Gobbie, It bothers me a great deal to hear things like this. It sounds like you have to come to a choice of independence and health or dependence and potential illness. I won't pretend to understand the cultural aspects since I've been pretty much on my own in one way or another since I was 13 but the ultimate question is do you love life or not? If...
  25. Korwyn
    Were the potatoes fried? If so it's entirely possible they were cross-contaminated. When I used to cook for a living years ago I normally fried/grilled potatoes on the same grill I did Texas/French toast on. Also sometimes if I was doing massive amounts of scrambled eggs I would pour a little waffle batter in when beating them to allow them to stay light...
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