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Wolicki

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Everything posted by Wolicki

  1. Wolicki
    sorry, cross contamination. It means that gluten somehow just came into contact with something I ate. Yes, a tender abdomen is a common reaction. The longer I go without gluten in my system, the worse the reaction is. Last time, I had major D, pain, heartburn, extreme fatigue, joint pain and some brain fog. Most of the major pain went away by day 3....
  2. Wolicki
    It's different for everyone. I haven't had actual gluten, but have gotten cc. My cc gastro issues usually clear up in about 3 days, and the fatigue and fog linger for weeks. Eat simply, drink lots of water and don't forget your probiotics. I hope it passes quickly.
  3. Wolicki
    Hi Guys I got this email from a concerned family member today. I am thinking it's a bunch of phooey hogwash, but thought I would check in with my "experts." "I meant to tell you this, and you might want to pass it on to Janie. When Eve was in Europe she discovered that baked goods made with wheat did not make her sick. As soon as she had a bite...
  4. Wolicki
    From everything I have read, a low positive ttg is like being "a little bit pregnant." False postives are very uncommon. What you will find is most docs will not recommend a gluten free diet based on the one positive test. He will probably suggest the biopsy, which is the "gold standard" for celiac diagnosis. I got pneumonia 7 years in a row, 3 times...
  5. Wolicki
    so plain Tuna and fruit? That is all? And how about before that? The reason I am asking is because I can almost guarantee you've got some secondary intolerances going on. Sometimes symptoms don't show up for a day or two after you eat. Common culprits for Celiacs: dairy, soy, nightshade veggies, nuts, eggs, corn, and grains of all kinds. I think my...
  6. Wolicki
    Rolaids soft chews. No gluten, but made on shared equipment. Knocked me out for a week
  7. Wolicki
    What was the rest of the meal?
  8. Wolicki
    Neroli, I am with you. No matter which brand (I think Ive tried them all) they're all like styrofoam. My family and I eat them every day, but we put stuff on them. It fills the need for crunchy that you miss gluten free. We spread them with peanut butter and jelly/banana/honey, cream cheese/honey/coconut. I have actually enjoyed the caramel flavor with...
  9. Wolicki
    I declined a scope for my son. Here's a question to ask yourself: If the scope is negative, will he be gluten free anyway? Tests look positive. For me, that would be enough. I was sick for 10 yrs before I was diagnosed. My son had frequent vomiting/constipation/diarrhea/headaches. His blood tests were positive, so we went gluten free. I wanted to...
  10. Wolicki
    False positive blood tests just don't happen. RE: biopsy- yes he should have taken at least 6 samples. And there are over 35 ft of intestine. Very possible to miss damaged areas.
  11. Wolicki
    I got good and sick (gluten reaction) from the salad bar at Whole Foods. No obvious gluten, so it had to be cc.
  12. Wolicki
    In Layman's terms, you have been diagnosed with Celiac with the infamous "gold standard." Your test shows all the abnormalities associated with Celiac. HTH
  13. Wolicki
    Today, I went to a luncheon at the Disneyland Hotel. With 983 other people. I had heard that Disney was great with food issues, but had not tried yet. I called one week in advance and asked if they could accomodate me. Absolutely they said! I started to give her the details and she very nicely said "No Maam, all you need to do is to notify your server...
  14. Wolicki
    Quaker is now marked gluten free also. Just the full sized ones.
  15. Wolicki
    I totally get it. I was a skeleton with severe malabsorption last June. I was very, very ill. I started to feel better right away,then had new problems come up like: secondary intolerances (like 20 of them), neuropathy, water weight gain (massive), bloating and gas. All of it has resolved, except for the weight. I gained 100 pounds in 6 months. I eat...
  16. Wolicki
    Maceroni, I hope she gets diarrhea
  17. Wolicki
    I would also suggest having your blood sugar and thyroid checked while doing the blood work.
  18. Wolicki

    ARCHIVED Neuropathy

    Wolicki replied to k2626's topic in Coping with Celiac Disease

    I developed pretty bad neuropathy AFTER going gluten free. Started in the sides of my feet and eventually moved all the way up to my face. Thankfully, it all went away within about 7 months. I still get an occassional tinge of tinglies, but nothing like before.
  19. Wolicki
    With all due respect, your doctor is an idiot. I was undiagnosed for 10 years, and then once I was diagnosed tried desperately to find answers through medical professionals, Western MD's. What I learned through the process is I don't give a darn what a doctor would say. YOU know your body better than anyone. I will not put my body through the additional...
  20. Wolicki
    I use sorghum in place of brown rice flour all the time. Go for it.
  21. Wolicki
    I would say it's definitely possible. I would call your doc right now and let him know your symptoms. Gluten challenges are barbaric. Maybe he will accept diagnosis based on your reactions?
  22. Wolicki
    Anytime! That's why we are here
  23. Wolicki
    OK, first thing is stop and take a deep breath. It's going to be ok. Just take one day at a time. First rule- don't expect a doctor or nutritionist to help you figure out this life, otherwise you're gonna give yourself an ulcer. They just don't know. It is too complicated, and the only "experts" are those who deal with it daily. That's us! So the...
  24. Wolicki
    Those are just a few of the things I was intolerant to. After 8 months gluten free. most have resolved.
  25. Wolicki

    ARCHIVED Gluttened?

    Wolicki replied to lloydke's topic in Coping with Celiac Disease

    LOts of people have trouble with Cheetos. I avoid them because they make my 9 yr old celiac sick. I think it's from cc though, not from the ingredients.
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