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T.H.

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Everything posted by T.H.

  1. T.H.
    Is it still bothering you? You might want to see if the doctor will take a look. Reacting to dissolvable stitches allergically is not unheard of. From what I read, it sounds like when this happens, it can interfere with their natural ability to dissolve and can cause trouble. There was a question about reacting to stitches on medhelp.org, and a lot...
  2. T.H.
    Have you ever been checked for Gluten Ataxia? It can be tricky for doctors to diagnose because it, too, is caused by gluten, but it's not celiac disease. It hasn't been studied too much yet, tests for it are still under development (although they are getting very close, now), and treatment may differ a bit from celiac disease. But if you can find a neurologist...
  3. T.H.
    So, we just had my daughter's endoscopy today, and I'll be speaking with the Ped GI in three days. I'm hoping to get some ideas for things to speak to him about, depending on what the test results are. It's so hard to get in touch with him that I figure I'd better have some things to discuss by the time I actually do! History: My daughter is 13 and was...
  4. T.H.
    IrishHeart, I can appreciate that you did feel like your experience was being invalidated, which is very frustrating. I know most of us here have had someone, or many someone's, tell us that we're crazy, paranoid, or flat out wrong in what we feel and what we notice about our own experiences. We all know how upsetting that can be. I'll admit I was really...
  5. T.H.
    How mature is your son? Is he dating? If he is, kissing a girlfriend who is a gluten-eater can gluten him as well, or one who is using lipstick with gluten on her lips (jeesh...do they even WEAR lipstick at this age? I am far too old, LOL). Could be worth looking at any products he might use on his lips at this time of year, too, like chapstick-like products...
  6. T.H.
    Sharing time again! Since you've figured out that you're a super-sensitive celiac, what are some of the best and the worst things about living with this issue? As an example, for me, one of the best things has been that now that I have to pay so much attention to my food, I eat much healthier than I used to (former fast foodie of doom, LOL...
  7. T.H.
    Ha, oh that's too funny. I missed that we had a second page on this and posted the same recipe twice. I was thinking it looked familiar! >_< I had wondered about the egg! I can't have them, but my kids might be able to, so we've been looking at where to introduce 'em. Sounds like this recipe might be a good start!
  8. T.H.
    We've really enjoyed Gluten free girl's potato pancake recipe (we just leave out the starch and grate some of the potatoes on the super-small grating size, to help keep it together). They taste like massive tater tots, honest-to-god - Open Original Shared Link We often freeze fruit and then blend it in a blender to make smoothies, sometimes with fresh...
  9. T.H.

    ARCHIVED Can This Happen?

    T.H. replied to Jenni121's topic in Super Sensitive People

    Very glad you are feeling better, but oh so frustrating not to know what it is. Argh. It would be so much easier if our bodies just came with an instruction booklet that had troubleshooting in the back!
  10. T.H.
    Re: the dairy and allergy testing - very glad you are going to see the allergist. A good friend has a family history of allergies, and for any of the foods that her children reacted to with any sort of throat swelling/pain or hives, the docs always recommended that she 'try' the food again only in the office with an allergist, for safety reasons. Have...
  11. T.H.

    ARCHIVED Can This Happen?

    T.H. replied to Jenni121's topic in Super Sensitive People

    The pain, when it's in your back, is it in the same place as your kidneys? Could it be that it's going from back to front rather than front to back? It sounds a bit like a kidney infection or kidney stone, which can also involve severe nausea as well as pain. Did the doctor check for anything along those lines? It might be worth asking about, especially...
  12. T.H.

    ARCHIVED Gluten Ataxia

    T.H. posted a topic in Related Issues & Disorders

    Open Original Shared Link You have to scroll down to 'current projects' and click to expand "The role of transglutaminases in immune mediated neurological diseases - Dr. Marios Hadjivassiliou Some interesting tidbits: - Antibodies against TG6 are present in those with gluten ataxia, but antibodies against TG2 are typically present for those with...
  13. T.H.
    Was reminded of a research abstract that might be of some use for you. It was looking at nonresponsive celiac disease vs. RCD. While they concluded that most of the participants with NCD were suffering from gluten cc, the researchers had a few patients who were having trouble due to other conditions. Since you seem to be looking for what else might be in...
  14. T.H.
    Steph, do you remember which pages they had the differing symptoms summarized on, by any chance?
  15. T.H.
    My kids love the potato pancakes recipe ( Open Original Shared Link ), but with a couple changes. 1. We left out the starch. 2. When grating the potatoes, we made sure that at least 1/4 of the potatoes were grated on the really small size grating, the micro side, you know? 3. We formed the pancakes on a plate, and then slid them onto the frying pan....
  16. T.H.
    Have you ever checked out gastroparesis with the other issues you've been looking at? I know you looked at super-sensitivity and fructose malabsorption, but I couldn't remember what else, I'm afraid. Information on gastroparesis can take a little digging, as the most common presentation of this seems to be a reaction from people who have just had gastric...
  17. T.H.
    Hopefully so. I've had good luck with the few companies I called, as well. Kind of funny that I had better luck with companies in construction, when dealing with food allergies, than with some of the food companies I've called.
  18. T.H.
    Sure, no problem. There are a lot of mexican restaurants where I am and some of them make their own corn tortillas and/or corn tortilla chips from scratch in the restaurant as a selling point, rather than purchasing them pre-made. I remember a couple of them using the term 'in-house' to describe where these products were made: in the restaurant rather than...
  19. T.H.
    whoops, missed that there was more on this thread! Actually, I wasn't trying to address that issue specifically. I was simply pointing out that wheat used during production would not necessarily have to be on an ingredient list, even though it should be on the label in a 'contains wheat' statement. I honestly can't recall if I've ever found any...
  20. T.H.
    It's not inside solid wood, no, but wheat can be used in pressed wood products, including some brands of plywood, which can be an issue for inhaled gluten if there is sawdust from it, or I would imagine might be a contact issue if one has an allergy that's severe enough and there are broken edges so contact with the inside is possible. So sorry I don...
  21. T.H.
    Oops, almost forgot, the IBS! Irritable Bowel Syndrome is really more a set of symptoms than a disease, from everything I've read. If the problem were your son's lungs, this type of diagnoses would be like saying your son has 'lungs that are prone to coughing.' It doesn't really tell you anything at all about what's causing the 'irritability.' If the...
  22. T.H.
    Okay, just throwing out ideas here. It sounds like the pain is the same as when he's accidentally ingested gluten? Might indicate that gluten is the issue, slipping in somewhere. Not always, but it might be worth looking at along with the soy and dairy. What is his typical diet? Does he eat a lot of processed gluten-free food, or more 'whole' foods...
  23. T.H.
    If you could find out the doctor's name, perhaps you could send HIM some celiac information anonymously, quoted, with citations, from notable sources (If you're not sure how to get the info, say you have someone moving to their town who's looking for a good pediatrician recommendation, whatever you've gotta do). Perhaps the papers could have something on...
  24. T.H.
    Something that my allergist told me, and that I've managed to experience (unfortunately), is that if you have an allergic reaction, your body is basically 'primed' to have another one until your IgE levels drop down to normal, which can take a week or so. It can also set you up to have a more severe reaction when you might normally have a lesser one. Wonder...
  25. T.H.
    I'd say so, yeah. Not always, but that's how my celiac disease went in the first place. No noticeable reaction to food when I ate it, just everything slowly blowing up on me, body-wise. Another possibility is that you could be an oat sensitive celiac. About 10% of us are - we react to all oats, even gluten free ones. It's called avenin sensitive enteropathy...
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