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StacyA

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Latest Celiac Disease News & Research:

Everything posted by StacyA

  1. StacyA
    "Idiopathic Hypersomnia" basically means 'excessive sleepiness without a known cause', with 'Central Nervous System' thrown in for good measure it sounds like (gotta love how giving something a long name distracts us from realizing we still don't have an answer) - so if you still have the problem once your celiac disease is under control keep looking for...
  2. StacyA
    Someone else mentioned a chiropractor for your tmj, and I'll mention the same, although I guess it depends on what is wrong with the joint. If it is out of place then a chiropractor is the perfect person to see. My jaw was out of place for a month - not the same as years of pain, I know - but if I had relied on the advice from my primary care physician...
  3. StacyA
    I know someone else posted last month about the Gluten in Medication Act (HR 2003) proposed on May 15, 2013 by Tim Ryan, but I thought I'd put another post. The act is sitting in committee, where most bills end up dying, so we can help by calling the committee's chair - Joe Pitts - or our own lawmakers and ask for their support. I've heard politicians say...
  4. StacyA
    I use maifun noodles now as my main pasta. I never found a 'gluten-free' pasta that I liked (in taste or texture) and they are all horribly expensive, so on a whim I tried the cheap rice noodles found in the 'ethnic' section of nearly any grocery store. They are gluten free - at least the brands I've found - cheap, and stay firm instead of mushy for hot...
  5. StacyA
    Has anyone gotten zapped by Jack Daniel's BBQ sauce? I know it is supposedly gluten-free, and it is marked alcohol-free, but it has an alcohol taste and the ingredients list 'whiskey flavoring' - and I've gotten zapped before by liquors that supposedly are so distilled that not enough of the rye protein should be left.
  6. StacyA
    A thread on Ohio restaurants from 5 years ago has gotten so many views lately that I thought it may be time to update the conversation - specifically NE Ohio since that's what I'm looking for. These are restaurants I trust or others trust that are around NE Ohio: Outback (of course) Maggianos Carrabbas Bonefish Grill PF Chang's Eat'n Park Chipotle...
  7. StacyA
    I switched to gummy vitamins (several brands are labeled gluten-free) because most standard vitamins also made me nauseated afterwards - not glutened, and I don't suspect any gluten cc at all, just nauseated - perhaps something about the coating and my system. It has worked well because I also take omega 3 gummy vitamins which taste bad but if I chew the...
  8. StacyA
    Everyone is right, you'll go through some mourning if you find you need to live without certain foods the rest of your life. Consider it this way - although you don't want to have food intolerances - you also don't want to have them and not know it. Once you get used to gluten-free shopping and cooking, though, you'll be very pleasantly surprised at...
  9. StacyA
    Consider the possibility of the dried fruit being cc'd during processing. I have done just fine with Ocean Spray craisins, however I suspect I got glutened by Sunmaid Tropical Trio dried fruit two years ago. The 'Tropical Trio' mixture did not contain raisins, but what I got from the experience was to be leery of dried fruits, particularly Sunmaid - not...
  10. StacyA
    UKGail - can you provide a link or a little more info on the article you mention above? My mother has been dxed with PMR and is having a rough time, so I am looking for more info, particularly since I have celiac disease.
  11. StacyA
    Almonds mixed with M&Ms. They keep for a long time in my desk drawer. I get an immediate sugar and pleasure boost from the chocolate, and staying power from the almonds. Plus they aren't messy.
  12. StacyA
    I suggest calling two weeks in advance of an appointment, in case they need to research their ingredients and order different ones. For cleanings, I just take in my own toothpaste for them to use during the polishing.
  13. StacyA
    I drink liquid boost every morning, but I don't like that I'm using so many plastic bottles. In the last year or so I saw that Boost came out with a powder mix in my area, but it's made on shared equipment. I had trouble with Carnation Instant Breakfast that was made on shared equipment. Anyone use the Boost powder mix and be okay? I've tried other...
  14. StacyA
    I was traveling and went to an Outback a few weeks ago and the waiter told me Aussie fries were now gluten-free. The printed menu didn't reflect that, but he told me it had just happened, that they get them frozen now. I asked him if they were deep fried in the same oil as the bloomin onions, and he said he'd check with the chef. He came back and said...
  15. StacyA
    Thanks for the input! I challenged Singulair recently and had horrible diarrhea. Singulair never bugged me before my celiac's was triggered - but now it does. I may have to look into other options for my asthma, including food.
  16. StacyA
    Chinese rice sticks would work great. I find them in the Chinese section of regular grocery stores, or at Chinese grocery stores if I'm traveling and see one. They are cheap, unlike 'gluten free' pasta. I like them better than corn pasta - they look like thin spaghetti - and they don't get mushy. You can heat the water in a microwave proof bowl, then...
  17. StacyA
    Look into 'leaky gut'. Sometimes, if your intestines are damaged, molecules that aren't supposed to pass out of the intenstines can get into the bloodstream and cause reactions. After the gut heals, things can get better. There's a ton of threads around here on that. Or yes, you may be sensitive to other things now no matter how healed your gut is. I...
  18. StacyA
    If I remember correctly, vitamin D is fat soluble, so you need to have enough fat in your diet and you need to have healthy intenstines. Active celiac contributes to malabsorption, so taking the supplement won't be enough if your body isn't absorbing it. If you go gluten-free, make sure you eat enough fat in your diet (obviously not too much, but a lot...
  19. StacyA
    (I thought Mack was on the nipple topic and was starting to pity his girlfriend - 'amusement value'...). Anyway, on the cold hands topic... One thing to consider is vitamin E. We get it through our diet, but most people get theirs from wheat germ - one TB of wheat germ oil has 20.3 grams - 100% of the daily value. The next highest natural source...
  20. StacyA
    Hi Courtney. It sounds like your parents just never got into the routine of cooking much, and that's a hard skill to suddenly develop no matter how much they care about you - either because of lack of knowledge, lack of time, or just plain habit. Sorry to hear about your situation - but you at least are at a good age to start a good life-long and very healthy...
  21. StacyA
    It gets better, especially when you start finding which restaurants are best for you. I use my GPS to find specific restaurants by name if I'm traveling - such as Outback - that's our family favorite. However, there may always be situations that will be depressing - and therefore you may want to avoid them if you can so you don't end up in your car. ...
  22. StacyA
    Cream cheese helped me through the cravings. I made cream cheese frosting (cream cheese, butter, vanilla, powdered sugar, sometimes also whipping cream/cool whip - there's a ton of different variations) and put it on a lot: cupcakes made with Betty Crocker chocolate cake, pumpkin rolls with gluten-free flour, Morning Glory cupcakes, strawberries... Maybe...
  23. StacyA
    The first year I would wonder the same thing, but this celiac has wreaked havoc on my short-term memory - so I don't worry about back and stomach pain after getting glutened - I can handle that - I worry about small permanent lesions in my brain. But on another note, can you PLEASE share any secrets you have with chinese food!! Every attempt of mine...
  24. StacyA
    There are a ton of discussions here with favorite cheap meals. Do a search that includes 'meals', 'quick', 'cheap' and you may get some good ideas. I have a shared kitchen, and my boys eat a lot of bread/toast, so we have separate margarine and jelly. I have a cabinet just for me that includes: my own jar of peanut butter, almonds (I usually mix M&...
  25. StacyA
    Light or missing periods often goes with undiagnosed celiac disease, therefore it appears common for periods to get heavier (with worse symptoms) when women go gluten-free. I thought I was going through menopause when my celiac disease first got triggered because my periods suddenly got very light - but when I went gluten-free they got even heavier than...
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