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Latest Celiac Disease News & Research:
Everything posted by kareng
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Can you dehydrate your own raisins? does anyone make them without the extra sulphites? Open Original Shared Link You might have to order them because you live in the middle of no Whole Foods! Open Original Shared Link Open Original Shared Link
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ARCHIVED Muscle Fatigue /stiffness
kareng replied to Jimmymtfan19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You have a normal serum IGA. That just shows that your other tests will be accurate. I'm sorry... could you post what each test actually says? In one post you say they are negative and another that they are positive. It sounds like you make a normal amount of "IGA" so the IGA tests are accurate. It sounds like you had a positive blood test? And positive... -
ARCHIVED Gluten Free / Anxiety / Medicine Absorbtion
kareng replied to Dsa's topic in Related Issues & Disorders
You could be absorbing the medications better because the part of you that absorbs many medications (the small intestines) is now healed. Open Original Shared Link "Have any studies been done on the absorption or non-absorption of medications in persons with celiac disease? Yes, they have been done in the past. We know that in untreated celiacs... -
ARCHIVED Starkist Mexican Tuna Pouch?
kareng replied to Elle4916's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't know the ingredients but "natural flavors " and vinegar do not contain gluten. Because you haven't been tested, maybe it something besides gluten or in addition to gluten? Can you eat the plain tuna by the same company? -
ARCHIVED Muscle Fatigue /stiffness
kareng replied to Jimmymtfan19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm not sure what is going on but your first post says your blood tests were normal. Now you say they are positive. Anyway..... It will take a few months, at least to reverse vitamin deficiencies from celiac -
I think 1 day is a little soon to worry about other intolerances. It an take months for the intestines to heal and then the deficiencies to get better. Sometimes, when someone goes gluten-free, they eat differently. Maybe more fiber. Maybe less fiber. Maybe more sugar., etc. Read the newbie thread for some basic info & give it some...
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ARCHIVED Muscle Fatigue /stiffness
kareng replied to Jimmymtfan19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm not sure what you tests actually had - but a TTg IGA of 100 would be extremely positive in most labs scales. Maybe you could get the actual results with the scale or ranges. -
ARCHIVED 12 Month Old With Symptoms (Cross Post)
kareng replied to racheltom's topic in Parents, Friends and Loved Ones of Celiacs
Just my thought but, he probably hasn't been eating gluten very long. It could be dairy, too. Or something else. What does the doctor say? Could it be something else? I would think you would see a bit of improvement in a baby in a couple of weeks gluten-free. But, if its just a virus and its residual problems, it might be better in 2 weeks, too. -
ARCHIVED Sooooooooo Over This Already.
kareng replied to fiveoaks's topic in Coping with Celiac Disease
Take a deep breath. Maybe one more... There is a lot of nonsense info on the internet, so be careful who is posting it. Eating gluten free does not mean you have to eat gluten-free "replacement" foods. You can still eat a nice healthy diet. Fruit, veggies, meat, rice, quinoa, beans, etc are gluten-free. Just read labels if you are getting something... -
ARCHIVED Please Help
kareng replied to AaronsWife's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Does he have Celiac disease? If not, being gluten-free might not make any difference. If he has Celiac, it can take at least a few weeks to feel noticeably better and even a few years to become completely " normal". -
ARCHIVED Free Celiac Screening At Univ Of Chicago
kareng posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
IF you live near Chicago or are willing to go there, they are taking registrations for the free blood screening for Celiac. Open Original Shared Link Open Original Shared Link This is the email I received: Free Blood Screening October 17, 9:00 a.m. to 1:00 p.m. There is no charge to be screened, but preregistration is MANDATORY! You... -
ARCHIVED Possible Celiac, Negative Blood Test
kareng replied to kitty-el's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your blood test was 3 years ago. It is possible to develop Celiac since then. -
ARCHIVED Super Sensitive With Pasta Loving Family
kareng replied to ckd0822's topic in Super Sensitive People
There are many pastas that are made in dedicated facilities and tested for gluten. It depends on the company, but many test at less than 10 ppm. You might need to ask them. Open Original Shared Link Open Original Shared Link Just a couple. As a "super sensitive" you will likely need to remove all gluten from your home. You probably won... -
ARCHIVED Perdue gluten-free Breaded Chicken Breast Tenders - Possible Cc?
kareng replied to squirmingitch's topic in Gluten-Free Foods, Products, Shopping & Medications
Wait....WHAT? They sell frozen gluten-free ones? -
ARCHIVED Butter-It Alternative Butter Flavor Ingredients
kareng replied to GF Squared's topic in Gluten-Free Foods, Products, Shopping & Medications
I have always heard that these popcorn "butters" are gluten-free. I don't like them on my popcorn. Can you call or email the company? Maybe a jug at the movie theater has the ingredients on it? I looked and didn't see anything on-line, either -
ARCHIVED Is This Cross Contamination?
kareng replied to Seeking2012's topic in Coping with Celiac Disease
Just an FYI to others who may be reading this - Bleach can't "kill" gluten. In fact, plain dish or hand soap and rubbing does a better job to release dirt like wheat than soaking in bleach. -
ARCHIVED Is This Cross Contamination?
kareng replied to Seeking2012's topic in Coping with Celiac Disease
Nevermind.... I know you just asked "Now, who's right: him or me?" but I didn't think it was as simple as that. To answer that question - I think he is right. You don't have to live in a "clean-room enviroment" -
ARCHIVED Is This Cross Contamination?
kareng replied to Seeking2012's topic in Coping with Celiac Disease
But... you aren't eating his phone..... Just wipe it off before you use it or wash your hands? Same with the outside of the jug. Just wipe it off. The amount of gluten that might have been on the phone and might have gotten on his fingers and maybe landed on the outside of a jug is so small and improbable. If you are going to be this extreme, you... -
ARCHIVED Snyders Gluten Free Pretzels
kareng replied to Alwayssomething's topic in Gluten-Free Foods, Products, Shopping & Medications
I eat them often. Sometimes, even when I ate regular pretzels, a few would come out thinner or smaller. Probably a normal issues with the machines. -
ARCHIVED Recent Bloodwork Done -- Need Help Interpreting
kareng replied to jrlaird's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Looks great! -
ARCHIVED Tea Bags
kareng replied to mynxr's topic in Gluten-Free Foods, Products, Shopping & Medications
Please point out where it's says the gluten is in the tea bags? It appears they only tested the tea, not the bags? -
ARCHIVED Tea Bags
kareng replied to mynxr's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't see where they even mention the bags being tested? -
ARCHIVED Unexplained Eye Pain
kareng replied to LookingforAnswers15's topic in Related Issues & Disorders
Have you been to an actual eye MD? Actually, could just be an allergy. My eyes water and hurt during certain seasons. -
There is no gluten in pineapple. Sure, you could be allergic or intolerant for some reason. They have a lot acid. Not sure how they are on FODMAPS or histamines, etc.
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ARCHIVED Tea Bags Sealed With Wheat Paste
kareng replied to T.H.'s topic in Gluten-Free Foods, Products, Shopping & Medications
That doesn't conclude that tea bags are sealed with a wheat paste - which would dissolve in hot water and open the tea bag. Looks like the conclusion was that they might need to study the tests or testing methods. "These results raise questions regarding the screening procedures used to detect gluten and how the observation of a homologous antigenic...