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kareng

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Everything posted by kareng

  1. kareng
    Once again - you don't need gluten-free specialty foods. Eat the meat and fruit. But you said when you visit Grandma, she has nothing but cookies and bread. That isn't good for your child, either. Eat before you visit? Bring a little snack for everyone? Bring food for you and the child? Really, it's up to you to chose. We can offer suggestions, but...
  2. kareng
    And my point on the food is that gluten-free does not need to be expensive - that was one of your excuses for not following a gluten-free diet.
  3. kareng
    As a Celiac, I take responsibility for what I eat and making sure there is something I can have. I bring food with me if needed. I guess, it I had to test a kid's soup, I would drip it on my wrist or use a thermometer. Honestly, I wouldn't feed my small child only cookies or bread. It sounds like you should bring him food, too, when he visits grandma...
  4. kareng
    I just read your other posts - apparently you have not been diagnosed with DH or Celiac? It might be hard for people to take a self diagnosis seriously. What you chose to do, is your business - with or without a diagnosis. If you think gluten-free makes you feel better, then do it. But, not having a diagnosis might make it hard for you to really get into...
  5. kareng
    You have Celiac disease. Even if you don't feel it, gluten causes damage. Here is some info for them & you from real Celiac experts. Open Original Shared Link Open Original Shared Link As for gluten-free food being expensive- you don't have to eat gluten-free cookies & breads. Lots of regular food is gluten free - rice, beans, meat, fruit...
  6. kareng
    I don't think he can give you a scientific explanation for Chronic Fatigue - because there really aren't any. This is something at is still being researched. You know, many of us have worked on research but our names aren't on the official papers. Research requires the work of a lot of " little people". You refuse to be tested for Celiac, yet keep...
  7. kareng
    I eat at the one by me. The food on the gluten-free menu is gluten-free, no matter who they make it for. They just don't have a lot of gluten stuff. To me, this makes it even better. They had a special , one night, that I knew had to be gluten-free. We asked the waiter who talked to the chef ( chef not cook, also an important factor). The chef said...
  8. kareng
    I sent her a pick of Dr. F taking off his jacket - she got him topless! Lol
  9. kareng
    You may have to call the manufacturer to find out. The thing to do is, take your prescription to the pharmacy and ask what company makes the pills. they may have a phone number for them , too. You then call and ask. Sometimes you can find the info on their website, too. Some companies will not come out and say "gluten-free". They have some kind of legal...
  10. kareng
    Maybe it has gone down a lot, but you can't tell. I know you think she is really cautious but she is a 12 year old girl. I think I would have a little chat about the possible damage she might do to herself if she cheats. No need to accuse her, just a friendly mom reminder - brittle bones, no growth, late puberty, etc. One thing some kids do - IF...
  11. kareng
    Did it go down? Six months may not be enough time for it to get to "normal". I would look at the school as the most likely cause of gluten. Are you sending a lunch or do they claim they can make her a gluten-free one? What about eating other people's food? Not sure of her age, if she is old enough, is she getting non gluten-free food at friends...
  12. kareng
    I think if you use the google function at the top right of the forum, you will find a lot of make-up suggestions. Watch dates on the posts - some could be years old. Makeup, shampoos, etc doesn't not need to be gluten free with the exception of anything that you might ingest - lipstick, shampoo for some of us messy ones, etc. Gluten must be ingested...
  13. kareng
    It might be helpful to have it to see how bad the damage is, have a baseline if he doesn't seem better in a year, check for other issues like an ulcer. It also may be helpful in later life. There are research studies that he might want to participate in and they all seem to require a biopsy report. Some doctors will not give you an official diagnosis without...
  14. kareng
    OK. I don't think the U of C will mind so I'll put the whole thing here as I have seen that people don't click the link and read the whole thing. "This is the first installment of our new series, The Big Question, in which we ask University of Chicago Medicine doctors and researchers one big question about their work, whether it’s their expert opinion o...
  15. kareng
    I don't believe I said that a pill wouldn't be nice to have - just that the current ones don't work. If you read the whole post, it isn't long, I believe he says that the current ones do not work. They studied them. That was the point of this thread. We get this question a lot on here, so I thought I would put the info on here for people to be able...
  16. kareng
    Thought this was interesting: Open Original Shared Link "Dr. Guandalini: Surely it would be nice to be able to swallow a pill and go about eating without worrying about any gluten on your plate. This is more or less what these products are claiming. But my opinion is no, they cannot be trusted to help digest gluten......"
  17. kareng
    Chicken pot pie - made with biscuits on top instead of crust
  18. kareng
    People with Celiac disease should not eat any gluten - whether they think they are "sensitive" or not. Even if you don't feel it, it is still doing damage. Open Original Shared Link "Eating any gluten, no matter how small an amount, can damage the intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms...
  19. kareng
    Well... Like I said, it can take months or more for the Celiac damage to heal and everything to start working correctly. With Celiac, you must be gluten-free for life, not just 2 weeks and then take a few days off and then back at it again. Read the Newbie thread under " Coping" for some basic info to get you started. https://www.celiac.com/forums...
  20. kareng
    I am a little confused. You have been gluten-free for 3 days? or 2 weeks? Either way, it can take months, maybe years, to heal and get your system back to "normal" with Celiac disease. Have you seen a dentist about the tongue? That might require more than a gluten-free diet to clear up.
  21. kareng
    We can have celiac and be crazy, too! FYI- You need to be eating a regular gluten containing diet to get a positive Celiac blood test or endoscopy.
  22. kareng
    Here is a simple explanation of distillation. Go down to distilled liquors. https://www.celiac.com/articles/23350/1/Common-Misunderstandings-of-Gluten-Free-Alcoholic-Beverages/Page1.html There is some research being done into NCGI looking to see if there is a different part of wheat that might be the issue for them. I think it could be possible that...
  23. kareng
    Why would it have cow milk in it? Is that an ingredient? I can't imagine a soy milk would add cow milk but I don't drink them, so I haven't really checked.
  24. kareng
    If you don't believe us or don't understand distillation, that's fine. Don't drink them if you think they aren't for you. I doubt Celiac researchers are going to spend a lot of time on proving distillation in studies.
  25. kareng
    I just get a loaf of bread and stick it in the food processor or blender. You can add dried herbs if you want. Then I freeze them. A loaf of Udis white bread is about the same price as a little can of gluten-free bread crumbs. The loaf makes lots more bread crumbs. Or I eat half the loaf and then pulverize the other half.
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