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kareng

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Latest Celiac Disease News & Research:

Everything posted by kareng

  1. kareng
    I did hear a MD in genetics talk about this research. It is very hard to understand. That is why websites like the U of C condense it down, interpret it and make it easy to understand. A reputable medical research center doesn't just make this stuff up as you are implying.
  2. kareng
    Just to be clear - the poster is NOT talking about celiac disease cc. Perhaps a histamine forum would be a good place to ask this? I have no clue if veggies leave a residue. Isn't the high histamine foods about eating smaller amounts but not completely eliminating? Like I said.... I don't really know and maybe people who deal with this more would...
  3. kareng
    I'm sorry? I'm not understanding or missing something. It says the same thing dr. Fassano was saying. And the same thing several other doctors said at ICDS but I don't have that in writing on the Internet to show you.
  4. kareng
    Different doctor/ research center: Open Original Shared Link
  5. kareng
    FYI - you're responding to a 6 year old post
  6. kareng
    You know.... A lot of people say a lot of things on here. When it comes to medical/ scientific info, I'll let Fasano & company be the ones I believe. It is possible someone has a poorly done genetic test? I don't have any stats or links for that. I have heard that some places may do a better job of reading genetic tests than others. That was from...
  7. kareng
    Congrats on getting the blood work down so well! Have they done a stool test to look for parasites? You could just try the simple plain diet you are on for a few weeks and see if that helps. Maybe add cooked sweet potato? Give it a couple of weeks before you decide. Edit- I just looked at your post again. It's just been since Nov? That really is...
  8. kareng
    There is no need to get any follow up for celiac except blood tests. If blood tests remain positive, they might want to re- endoscopy. A colonoscopy has nothing to do with Celiac. Open Original Shared Link
  9. kareng
    Actually, when I heard Dr. G & Dr. F and a few others - I know at least 2 mentioned a trigger. It mentions it on Univ of Chicago's site, too. That isn't really new nor is the gene thing.
  10. kareng
    You aren't telling them they don't have Celiac - the Celiac specialists are. However, like I just commented to you on another thread - this is getting off topic (tho less so on this thread). You should make a new topic and you can share the info you have about gene studies on Celiac. Some of them are a bit difficult to read, but I did hear a Celiac...
  11. kareng
    What kid, outside of a bubble, hasn't gotten exposed to a stomach virus or something that disrupts their system? Actually, a bubble kid would have been exposed to things at birth. So there goes that theory! Open Original Shared Link And we have gone way off topic here. If you would like to start a thread and link to the studies you are...
  12. kareng
    I don't know why someone without Celiac would need a Celiac specialist to get a colonoscopy for polyps. Even a Celiac doesn't need a Celiac specialist to get a colonoscopy to check for cancerous colon polyps.
  13. kareng
    No one can really say. Lots of people still have high antibodies after a few months gluten-free. Its hard to know how your body is reacting. Open Original Shared Link
  14. kareng
    Open Original Shared Link "Five reasons exist as to why someone might feel better on a gluten-free diet. It’s crucial to understand which of the five is the cause in order to implement a safe dietary program....."
  15. kareng
    Sounds like you don't have Celiac. Good for you!
  16. kareng
    How long was he gluten free before the Celiac test? This is important as 2 days isn't considered enough time to eat gluten before a test. It is still possible to get a positive test if he had a lot of antibodies in his blood but it could make a negative results useless. And "food sensitivity" tests.... I wouldn't take him off foods because of those. ...
  17. kareng
    As I tried to explain on another thread - there likely are many reasons for NCGI. Researchers are still looking into this. So you would need to know why you are intolerant to wheat or gluten or FODMAPS, etc before you can really answer some of these issues. IF you know a food bothers you, don't eat it.
  18. kareng
    Open Original Shared Link "What is a gluten challenge? A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice o...
  19. kareng
    I think some of this depends on why you are NCGI. Researchers are currently looking at lots of different reasons for it. A big one they have found is FODMAPS. Because wheat is a high FODMAP food, eliminating it makes many people's GI symptoms better. These people can actually eat wheat but they must balance it with other high FODMAP foods. So, for these...
  20. kareng
    At ICDS, they were looking at several different reasons for NCGI. Some may be reacting to a different part of wheat than a Celiac. Many they have found have FODMAP issues. Because wheat is a high FODMAP food, eliminating it helps many peoples' digestive issues. These people aren't really NCGI as they could eat a little wheat - they just have to balance...
  21. kareng
    Then a lot of Celiac researchers in many countries are wrong. I think we have to go with the current legitimate research.
  22. kareng
    There are also members that say they have Celiac but have no real medical diagnosis. We don't check medical records before people come on here. We just try to repeat what the Celiac researchers are saying now. Research is on-going so, what is the current info, may change over the years. Some of us try to keep informed by reading articles and...
  23. kareng
    There are many reasons for anemia and many types of anemia. You might want to talk to a doctor about this as it can be serious.
  24. kareng
    Well... they don't make much sense to us and we want to help you. Maybe you could re-post what you are asking? Or the specific part you would like comments on? I don't think you will get much discussion with that disjointed post.
  25. kareng
    I asked if you had looked into what it took to "report" a doctor because, this isn't really "reportable". You weren't harmed in any serious way. Having dealt with how these processes work - hospital and AMA/State Board censoring of Doctors over the years, it doesn't seem bad enough to get into the process. The process can take a couple of years, etc. ...
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