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StephanieL

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Everything posted by StephanieL

  1. StephanieL
    GREAT! Thanks so much! I get other stuff from them and love it. Just need to double check it is nut free as well (I believe all the gluten-free stuff is....I hope this is the case!)
  2. StephanieL
    I am in the market for flax to add to my DS's diet for fiber. Anyone have a gluten-free source? Organic is a plus to! TIA
  3. StephanieL
    Were these IgE allergies? Or intolerances? There is a difference in how they are mediated. IgE are the breathing, hive, shock causing ones. The ones *most* allergist consider "true" allergies.
  4. StephanieL
    Allergy testing is only 50% accurate for a positive result (92% for a negative). So even if your test is +, you may not be allergic. I would start keeping a detailed food log as well as symptom log and see what happens. If you don't see something clear, maybe go off ALL soy for a few weeks and see what happens.
  5. StephanieL
    I make a sweet snack we call "Monkey Much" for my kids. We have a long list of allergies as well as Celiac. 3/4 cup Sunflower seed butter 1 cup chocolate chips Melt these two together in the microwave. Add: 1 tsp. vanilla and stir Add: 9 cups rice Chex mix together (trying to be gentile) Put 1 cup powdered sugar...
  6. StephanieL
    Did you explain why you needed the info? I would call back and ask for a supervisor. Also, you can call your pharmacy and find out if there are other manufacturers for that drug and call them. If they can give you the info, have you pharmacy order you THAT brand. Remember that a pharmacy DOES NOT always have the same brands for your refills. It's important...
  7. StephanieL
    Open Original Shared Link I have heard great things about this on my allergy boards. I considered getting one for DS but he has become an old pro (at 4, which makes me as a Mom really sad) at blood draws. I just learned about it and the science behind it is pretty good (having been in the health care field and involved with pain management for a while...
  8. StephanieL
    I don't think it's about being "abnormal". I think it is about creating a NEW normal. DS has to take his food with him everywhere (we deal with way more than just gluten!) It is just the way it is for him. He's young and so far it isn't a issue. I hear it becomes more of a problem as kids get older (middle school) when they try to test things more.
  9. StephanieL
    I think it's just a kid thing. It has happened to my son and my niece. One has Celiac and one doesn't. It's a body mechanics issue (ligament over bone because they are more bendy at that age to protect them) that rectifies over time. I would think if it were related to Celiac, we would hear about it happening with adults as well (called something different...
  10. StephanieL
    I know absorption is an issue with Celiac BUT MOST people are low to very low in Vit. D.
  11. StephanieL
    I think it would be confusing for some. I think the point of the article is that if the Dr's are saying 20 ppm is okay, that the person writing the article is fine with the new FDA proposal. I do not think they are suggesting going out and eating 1.2 lbs of "gluten-free but 20 ppm" foods.
  12. StephanieL
    So if I am reading correctly, you are 16 now? I want to say you are amazing and I give you so much credit for everything you have been through. I hope when my son (who is only 4 and the one who has Celiac here) is your age, he will be as strong, knowledgable and well spoken on the disease as you. The struggles you have been though sound like they have...
  13. StephanieL
    You are 1000% doing the right thing. No outward signs does NOT mean there isn't damage going on! My DS was 3 when he was tested. He had NO signs at all. He has other food issues and had a non-existent Vit. D level. This led the Enod Doc to test for Celiac. Here we are 18 months later and still working on getting his levels down. No signs and over...
  14. StephanieL
    There aren't proteins in food dyes, so it isn't technically an "allergy" but an intolerance. Most traditional Dr's won't test for them but you may be able to find a Do or Chiro who would test for them. Open Original Shared Link
  15. StephanieL
    It was a local brand. Giant Eagle's Natures Basket Organic Yellow mustard.
  16. StephanieL
    Whole foods (not the store, but whole, outer ring of the grocery store) makes gluten-free easy. We were into whole foods before DS's dx but even more so now. It will get easier! Hang in there!
  17. StephanieL
    We recently had an issue where DS's levels were stalled after a year gluten-free. We have a long list of allergies as well so we are more careful than your ordinary parents. We stick with brands we know. We check, recheck and check again on everything. We *thought* that we covered everything but we were obviously missing something. There were only...
  18. StephanieL
    Could you remove the "offending" article? Honestly, this sounds like a great way to educate people about differences. Including teaching kids that people are different (ie some have Celiac, some follow different belief structures). I didn't think the article did much more than show how one person deals with Celiac, not about religion.
  19. StephanieL
    If anyone has dairy/egg/peanut/treenut/soy ideas, I would love to hear those too! I like the list Mizzo! Grab from each to make it easy!
  20. StephanieL
    Actually, it isn't too early to tell if it's an allergy. Kids can and often do have allergies from the very start. I agree with taking it out for now. Retry after you have achieved "normal/baseline".
  21. StephanieL
    Okay, so those are markers for non-ana reaction! That's a good thing!!! I would look into "gut healing" as it sounds like you are and keep up with that for a while! Chances are that improving the gut will eliminate most if not all the intolerances! I have never tried it or looked into it heavily but I think the GAPS diet may be something to look into...
  22. StephanieL
    That's a lot! I assume you are speaking of IgG or IgA allergies, correct? These are more intolerances as compared to "true" (meaning possibly life threatening). The good news is that once the gut heals these often go away! I would think the probiotic and healing yourself with a gluten-free diet will help a lot! I say keep those things out and add them...
  23. StephanieL
    FPIES is "food protein induced entercoitis syndrome". Long name for a non-IgE mediated food "allergy" that cause major GI symptoms that includes shock. So it isn't a food allergy but causes shock. I wouldn't list it as FPIES, his trigger is bananas for that so I would put that. I am thinking of listing his ana food allergies and FPIES and Celiac last...
  24. StephanieL
    No, he does in fact have life threatening allergies. (Hence, why I get upset when people lump them all together ) I don't think all that and his allergies would fit either. I am leaning towards allergies, FPIES trigger and then Celiac since it is the least likely to kill him.
  25. StephanieL
    I have a child who has both Celiac and a bunch of food allergies. I HATE when people say that Celiac is a food allergy BUT...I also get that people "understand" that an allergy means not eating a food for the risk of dire consequences. So I am getting him a Medic Alert ID (preschool starts soon) and was wondering what you all think. Put it as Celiac...
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