sb2178
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Latest Celiac Disease News & Research:
Everything posted by sb2178
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ARCHIVED Best gluten-free Bread?
sb2178 replied to Kat70R's topic in Gluten-Free Foods, Products, Shopping & Medications
Rudi's Cinnamon Raisin is great. Udi's is decent. I use a lot of corn tortillas but can't stand the brown rice ones. -
The What's For Dinner Tonight Chat
sb2178 replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Mac & Cheese (NYT Well blog recipe, but with ancient harvest pagodas, rice flour, buttermilk and full fat cheese) Cauliflower with parsley Apple -
Maybe look into one of the Mindfulness programs? I've heard pretty good things about them for general calming of stress-related symptoms for various things.
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Have you been eating out more? I tend to eat out (or prepared/packaged foods) more when busy/stressed, and then the contamination adds up to enough to start symptoms over a few weeks even if any one meal would not affect me.
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ARCHIVED Jello Gelatin, Gluten Free?
sb2178 replied to mama2two's topic in Parents, Friends and Loved Ones of Celiacs
You can use plain gelatin with something like cranberry juice. (Or, cider, champagne and strawberries, plum puree...) -
ARCHIVED These Seem Gluten Free- Why Are They Bothering Me?
sb2178 replied to HS7474's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sucralose, maybe? Magnesium can also affect GI function... You could also get some juice or something to dilute in water. -
ARCHIVED Pursue Official Diagnosis?
sb2178 replied to cait's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There are several reasons to be tested: 1) easier to get MD approval of tests for relatives (less relevant, since it's already in the family) 2) establishing a baseline for tracking improvement 3) getting follow-ups on issues related to malabsorption (i.e. low ferritin, folate deficiency, etc), RD referral, letters for travel or other needs, etc... -
ARCHIVED Packed Cold Dinners.
sb2178 replied to Juliebove's topic in Parents, Friends and Loved Ones of Celiacs
smoked salmon roasted sweet potatoes spring rolls quinoa vegetable salad rice balls (onigiri) tofu-based chocolate pudding (make it low sugar, and send it with fruit and/or a salad) Olive oil and vinegar-based tuna salad. I like artichokes or olives, and white onion with herbs. -
ARCHIVED Getting Symptoms Under Control
sb2178 replied to josh052980's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Lots of liquids and rest seems to be the general consensus. I find that I need to eat a really bland diet (like white rice, broth, applesauce, maybe some cooked carrots or an egg) for a few days if it's bad. -
ARCHIVED When You Feel So Tired But You Can't Sleep....
sb2178 replied to healinginprogress's topic in Related Issues & Disorders
Magnesium is another one that could help as it is involved in regulating sleep. Celiacs (or those with chronic D) often are a bit low in it, but the blood test isn't incredibly reflective of total body nutrient status. Try it for a week (200 to 400 mg) and see if it helps. Shouldn't hurt (although can have a mild laxative effect). -
The What's For Dinner Tonight Chat
sb2178 replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Minted Zucchini Ricotta Tart (on cornmeal based crust... that needs work) Asparagus with White Wine Garlic Sauce Spinach Salad with Chickpeas, Raisins, Pickled Green Beans and Sweet Onion in Mustard Vinaigrette Millet (courtesy of company) White Wine Raspberry Blackberry Ice Cream (homemade) Sugar Cookies -
ARCHIVED Possible For Young Breastfed Baby To Have Celiac?
sb2178 replied to samuella's topic in Parents, Friends and Loved Ones of Celiacs
It's also quite possible and even likely that other members of the household (especially if you have other kids) are getting small amounts of gluten on toys, teething rings, passifiers, etc. Baby chews on books, eats a few cheerio crumbs, other kids kiss him after eating crackers or bread... -
ARCHIVED Regular Grocery Store Frustration
sb2178 replied to Ripcord's topic in Coping with Celiac Disease
I reguarly shop at a Stop N Shop close to my neighborhood and just discovered (after 4 years) that they have a natural foods section stashed in a weird spot behind the flowers/deli. Which is where they keep gluten-free stuff. I had just thought they didn't carry anything. On the other hand, that means my grocery bill will likely be higher the weeks that... -
ARCHIVED How Long Have You Been Diagnosed?
sb2178 replied to Noglutenformethanks's topic in Coping with Celiac Disease
May/June 2010, with testing starting in March 2010. Clear symptoms appeared Jan/Feb of 2010 but other issues had been very mildly present. Diagnosed, medically, but sort of fuzzily (i.e. we think... oh, wait, maybe not? but..yes, okay... let's just call it non-celiac gluten sensitivity before you end up underweight). Genetic testing later revealed DQ... -
Acne (I think... hard to tell exactly) and a bit more gas than usual. It used to really cause some abdominal pain, but that has faded with time. Sheep cheese is fine these days, but I wouldn't try mroe than a few tablespoons of ricotta or milk.
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You'll find out where you can eat gradually-- it's process, and not always pleasant, but so exciting when it goes well. (Bad example: "gluten-free" kasha fruit bar from bakery last week = slightly sick. Good example: yaki'soba' with rice noodles from pan-asian place = delicious and AWESOME cookies via a fairtrade coffee shop yesterday.) One thing I haven...
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ARCHIVED Test Result Interpretation
sb2178 replied to scottyg354's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It could. Try the diet strictly for a few weeks (at least 3) and see how you feel. Then try eating some plain wheat, barley or rye (like pasta made from flour and water) to see how you feel. If you feel better, but then worse after eating it, then, yes, you likely have issues with gluten. It could also be an anamoly or indicative of a broader leaky... -
ARCHIVED Newcomer! Family Holiday Meals
sb2178 replied to Hache24's topic in Coping with Celiac Disease
"intestinal distress" is also a vague phrase that, when preceeded by "severe," gets a broad range of ideas across without too much detailed explanation. -
Being gay generally raises your risk of many diseases like colon cancer. Some of them are biologically linked (lesbians = less likely to have babies young, thus more likely to develop breast cancer; gay men = more likely to smoke, more lung cancer) but many are SES-based too. Worse health insurance coverage, lower paying jobs, less likely to have regular...
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ARCHIVED What Is Going On? Can You Help?
sb2178 replied to proud-armywife's topic in Coping with Celiac Disease
Okay, someone should do something about the iron levels. Reading the lab values I'm used to seeing, your ferritin should be over 15, give or take. It's basically zero. That'll make you feel like you've been run over by a bus. You're on supplements? Have your values improved at all (or have you not been taking them long enough)? Can you push for IV iron... -
I don't know anything specifically about that program (just heard of it for the first time earlier today), but generally, for your average person who works out for fitness and/or to lose a little more weight, the extra bar/smoothie scheme is counter-productive. Adding more processed calories isn't generally helpful nutritionally either as real food is king...
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ARCHIVED Bakeries In Massachusetts
sb2178 replied to dragonlady's topic in Gluten-Free Foods, Products, Shopping & Medications
Allcaneat in Brockton/Randolph area Flour in boston/cambridge (but they do use flour and there is potential for CC) I've haven't been to Glutenus Minimus but it's been recommended. And, hey, there's always DIY. Scratch or mix. My grandmother bakes a brilliant 6 egg flourless chocolate cake that's quite fluffy. -
ARCHIVED New To This - Some Questions
sb2178 replied to Melissa72's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The genetics reflect the degree of risk your kids have for developing celiac disease. The reason for testing genetics is so that you can decide to not regularly screen any kids who are negative, or screen kids at higher risk more often. Typically, screening is recommended every three years or if any symptoms appear. But those recommendations vary. Postive... -
ARCHIVED Alone On An Island
sb2178 replied to MBK's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
pubmed is your basic medical search (for recent research articles) pubmedcentral is the above, but only containing full text articles available to the public. google scholar is great. Most of the really interesting research on the progress and development of non-celiac GS and celiac is coming out of Italy. you're entirely correct; research funding... -
The What's For Dinner Tonight Chat
sb2178 replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Carrot sticks Arepa "pizza" with perocino romano, herb-garlic tomato sauce, and cauliflower Gin and tonic (hello, warm weather) Dried apricots and chocolate, maybe, for dessert. or maybe not.