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sb2178

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Latest Celiac Disease News & Research:

Everything posted by sb2178

  1. sb2178
    The most common test used only catches gluten levels over 20 ppm, and that's the standard that officially "patients with celiac disease tolerate" but you may or may not tolerate the levels which are likely present from general contamination, like 5 or 10 ppm.
  2. sb2178
    Or say you're on a diet with your mom/sister/dad/husband. No sugar... all whole foods... concerned about diabetes in the family...
  3. sb2178
    Right, so just keep an eye on him for symptoms. If he get them, you can do follow-up testing and if that is negative, seriously try putting him on a gluten-free diet with your daughter. Some docs recommend follow-up testing every so often (I've heard everything from annual to 5 years) in case he develops silent celiac.
  4. sb2178
    So, long-term fasting is actually pretty awful for you if you have D. You can screw up your salts levels and have issues ranging from just passing out due to low blood pressure to more complex issues with your brain and organ failure. Heart and kidneys can fail in less than a week if you are susceptible although that is not typical in someone who is healthy...
  5. sb2178
    My concerns with bread are less just the calories per se than the lack of nutrients in the bread.
  6. sb2178
    I've pretty much just given up bread. I've made it once or twice, but honestly, the crackers are better and it would be very easy to just portion out fewer of them. Breakfast: corn tortilla w/ cheese/meat/beans: 1 minute in the microwave quick cooking kasha or cream of buckwheat with nuts/fruit/milk or faux milk: soak overnight and you just pop it into...
  7. sb2178
    Other stuff which you likely already know: - no shared toaster - avoid using gluten'ed scratched non-stick, cast iron, scratched plastic, colanders, wooden utensils - get a dedicated colander - replace items like wafflemakers where you can't get them clean - it's probably helpful to have separate sponges for wiping down counter and tables if you share...
  8. sb2178
    Yeah, the research is confusing. I think it was actually out of the same institution that another study came out the clearly indicated that celiac is progressive (surprise!) so neg biopsy positive bloodwork folk are almost definitely celiac disease. The flat intestines are the last stage of disease. Nobody has a clue how long the process takes, and if...
  9. sb2178
    Yeah, I've been using my older cookbooks too! There are rice breads and such from the South, as well as corn and buckwheat.
  10. sb2178
    Well, the bad news: after going gluten free, your blood work isn't entirely valid. It can switch from positive to normal quickly after you remove gluten or even eat a low gluten diet (Atkins, low carb diets). You also need to be eating gluten for a biopsy to be valid. The intestines can heal in as little as three days, depending on the damage. The good...
  11. sb2178
    One really helpful step is to sit down a make a list of what you normally cook/eat. There's probably at least a couple of main dishes that are naturally gluten free. Even if you just rotate four or five dishes for a few weeks, that's a great way to start out. Flag a few recipes in your favorite cookbook, look at the list below, and remember the classic...
  12. sb2178
    Well, I lost almost 6% of my bone density 14 months, and of that time I was only clearly symptommatic for 2. Do the math, and she'll have stress fractures and non-traumtic breaks within 10 years. Yay, hip fractures in your thirties and forties! (Those results were very weird. Scared me silly, and it was just incidental that I worked in a research center...
  13. sb2178
    Yes, the rice cooker is wonderful! I used to always just cook it on the stove, but it's just much easier and will stay warm. Can also cook millet, quinoa, wild rice, etc in it. I mix in the small dried red lentils sometimes, just to have a meal in one with a veg. Or else I'll throw everything else in at the end to heat it up-- beans, tofu, peanut sauce...
  14. sb2178
    I'd avoid the oats for at least the first month. Even though they are gluten-free. I still reacted to them after 6 months, but can eat them occasionally now.
  15. sb2178
    I like licorice. (tea, usually). Also, propping up the head of my bed (use bed risers on the head only). Irritating for me: ginger gluten dairy alcohol (!!) NSAIDS > two days carbonation excessive chocolate I've had it since I was 19 and drank very little caffeine and alcohol in college due to it. Except, now, it's mostly gone.
  16. sb2178
    I was very active (marathons, high bike mileage) prior to diagnosis, but was quite sick for a while and have not returned to my previous routines due to a variety of life circumstances. But, if you had damage in your intestines, it's likely you just did not have overt symptoms rather than being perfectly well. However, I found that glutening affects fatigue...
  17. sb2178
    Potato curry
  18. sb2178
    Yes, it probably means you have two DQ8 genes, which means you have something like a 40 or 50% higher chance of developing celiac than the rest of the population. Get a copy of the results if you want to know exactly which ones you carry. As always, the genes merely mean it is possible and more likely but not that you have it. Not having the main genes...
  19. sb2178
    Acid reflux was probably my first symptom, and I had it for many years before we found that gluten was a problem. Abnormal menstruation was my "normal" for a quite a long time, although I did not experience spotting. My stomach also hurt all the time when my symptoms were at the worst. The elimination diet is the best test for it, but it's not a bad...
  20. sb2178
    4 potatoes 3 eggs, lightly stirred 2 T flour (I used potato starch the last few times) 1 T matzo meal (Again, sub'ed in potato starch but other things might work better like cracker crumbs) 1/4 tsp salt (original recipe calls for 1/2 t but I find that too salty) 1/4 tsp pepper Scrub and grate potatoes. Toss with all remaining ingredients, except...
  21. sb2178
    fritatta or tortilla latkes! cream of potato soup
  22. sb2178
    Basic Brown Rice Burgers 2 cups brown rice (cooked) 1/4 c peanut butter 1 egg 1 T mustard and/or soy sauce 1 T ketchup (could use tomato paste, probably) 1/2 c sunflower seeds 2-4 T flour or starch Mix together (except the flour). Gradually add 1 spoonful of flour at a time until the texture is sufficiently firm to form patties. The amount will...
  23. sb2178

    ARCHIVED Gluten-Free Products

    sb2178 replied to jldskier1234's topic in Doctors

    Yes, a lot of gluten free sub tend to be mostly refined starches and sugar (Udi's muffins, for example, are really candy). Baking at home or being a careful label reader is necessary to replace items like whole wheat bread with brown rice and buckwheat or quinoa or millet or sweet potatoes instead of potato starch and white rice flour. Don't forget you...
  24. sb2178
    Well, the problem is that you won't absorb nutrients and then you'll develop additional problems. As an example, I lost over 5% of my bone density in just over the year before I was diagnosed. That is a massive amount. Anemia or borderline anemia is also typical, and b-12 related neuropathy is too. On the other hand, there are lots of good food options...
  25. sb2178
    Yes, that DGP is the most sensitive test and even though the others were negative, you should try gluten-free after deciding to do or not do a biopsy. Even if a biopsy, if done, is negative, you could be in a very early stage of celiac disease, where the damage is mild and/or patchy. (That makes it hard catch it in the tiny biopsies and harder to read...
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