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sb2178

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Latest Celiac Disease News & Research:

Everything posted by sb2178

  1. sb2178
    Yes, the reference ranges for all are helpful. Different labs can use slightly different tests. You're not diabetic (glucose) and it looks like you are not anemic, but those reference ranges would be helpful to say for sure. Your red blood cells might be a bit small, which could indicate iron deficiency. If you have a ferritin measure, that's helpful...
  2. sb2178
    gluten = fat malabsorption pain and reflux can be from too much peanuts and dairy or any gluten but only gluten yields fat malabsorption. other symptoms are primarily gluten-based, but that is the really easily identified key.
  3. sb2178
    Taza chocolate (Boston-based; I've seen in it various places) could be contaminated with nuts, but not soy or gluten and I'm pretty but not entirely sure that dairy is also not used. Caveat: I'm not supersensitive.
  4. sb2178
    All of the faux oreos I've tried have been quite decent. Nothing else has. I eat chocolate.
  5. sb2178
    nah, corn tortillas ;-) Rice cakes are an abusive to rice.
  6. sb2178
    1. rice cooker saves money 2. food processor saves time 3. waffle iron makes me happy 4. coffee grinder (for grinding grains, nuts, and seeds) makes me eat healthier
  7. sb2178
    It takes practice to work with young kids and not accidentally contaminate yourself. I think older kids are easier to brainwash into washing hands and face after eating. The key really is to obsessively wash YOUR hands though. Don't lick spoons, taste pasta, etc. You might want to have an entirely gluten-free house for at least a few weeks, if not a month...
  8. sb2178

    ARCHIVED F'ed Up Doctor Appt Today

    sb2178 replied to CruiseWriter's topic in Doctors

    A colonoscopy will not detect celiac. An endoscopy (through your mouth and stomach to the small intestines) will. I favor testing, just in case it's really something(s) else, but you could just go entirely gluten free and see if it helps. YOu don't need an rx for basic food. The only thing it could hurt is if you did want testing, you would have to...
  9. sb2178
    Like Jestgar, I'm in research, but nutrition, and I'm still an underling. Likely to remain that way for a few more years, but the PhD track is calling the siren's call. And, admittedly, I'm an academia junkie. Give me a nice set of stacks and good database access... Outside work: listen to the cat, spin yarn, bike/run, garden/cook, and recently, blog...
  10. sb2178
    Mark Bittman's cookbooks are pretty easy to find and most of his recipes are basic and very friendly to celiac. You do, however, have to pay attention and convert where necessary. For example, use safe soy sauce, gluten-free pasta, rice flour instead of wheat, rice instead of bulgur. 101cookbooks.com is good, but you'll have to use the tags/categories...
  11. sb2178
    How will I know when my body starts to improve if I don't show symptoms? Well, you should have follow-up bloodwork. You may also notice that random weird things are no longer a problem. Like, headaches, or your allergies seem calmer, or you used to get muscle spasms, or canker sores... How long will it take for any existing damage to repair itself...
  12. sb2178
    I'd get buckwheat from pocono. Many people use their products without problems (and it's processed in a dedicated facility). Buckwheat is delicious. But, then, so is teff. Edit: oops, dedicated "system" so if you're hyper sensitive, call and investigate.
  13. sb2178
    Be sure to get tested for nutrient status. Iron, folate, vitamin b-12, magnesium, and vitamin D are sort of the baselines. Vitamin A, vitamin E, vitamin K, and zinc can also be added to that list. Following the results, liberal treatment of any low-normal or straight deficiencies generally helps people feel better. (Some of that may be the placebo effect...
  14. sb2178
    I use millet in pilafs-- sautee in oil/butter with or without herbs, spices, aromatics like onion until slightly toasted then add water or broth and cook until tender. A simple one pot meal is that millet in thyme and garlic with chopped carrots, yellow squash, and some tuna. Millet is also a good substitute for cous cous and tastes great with peanut sauce...
  15. sb2178
    Yesterday: Breakfast: white bean and onion soup, black tea Snack: almonds, more tea Lunch: (catered) steamed salmon, roasted winter squash, kale with red peppers, stir-fried mixed vegetables, sliced fruit, black tea Desperately wanting more calories: at my desk, Mary's Gone Crackers, original Supper: pseudo-souffle from rice, eggs, and stir...
  16. sb2178
    I think they are negative. The reference ranges there looks odd-- I would expect them to be less than 20. If the ranges are less than 20 on your copy, then all three tests are negative.
  17. sb2178
    Have you been checked for an ulcer?
  18. sb2178
    I'd go spend a few weekends at his place and see what he stocks. Individual tastes are exactly that, individual and products vary enormously. Or do a joint shopping trip. Don't run out a buy a bunch of special stuff until you know what he likes. He can probably find food he can from basic groceries, i.e. eggs and potatoes and apples, as mentioned above...
  19. sb2178
    yeah, that was a typo. A mjor typo.
  20. sb2178
    So far, making my own blends work better than any mix I've tried. Basically, I do one part flavored flour, one part brown rice flour, one part starch, and then either 2 T ground flaxseeds or 1/2 t guar gum. I have not tried using this in anything without eggs. So for all-purpose use white rice flour; for corn, use corn flour; buckwheat, etc. I have a...
  21. sb2178
    Or, go work with a bunch of dieticians;-). They pretty much have my food restrictions down, and the rules for what food can be provided for group events is kind of horrifying. But it means there is always fruit. And, yes, shoot me if someone else suggests I eat iceberg lettuce for lunch.
  22. sb2178
    Both genes are associated with celiac disease, so each parent has one. DQ8 is more commonly recognized. If you want to read more about HLA, Wikipedia's not a bad source. Exactly what that high risk # means. So, I'd recommend starting and maintaining a gluten free diet for at least 3-4 weeks, preferably 2 or 3 months. Try some gluten, see how you...
  23. sb2178
    Or eat rice. And potatoes. Or corn tortillas. Which I what I do.
  24. sb2178
    For bread, not so much. There was a buckwheat bread on here last fall that was very popular; it also made white bread with rice flour instead of buckwheat flour. I may have copied the recipe somewhere if you want it. (Message me). Otherwise, blogs may be your best bet. IrishDaveyBoy on here has one with lots of recipes, and I'm sure there are others....
  25. sb2178
    A basic flour mix is: 1 part brown rice 1 part white rice 1 part starch (I blend tapioca and potato starch) 1/2 t guar gum or 2 T ground flaxseeds I've substituted it in quite nicely in a few different recipes, mostly if not all recipes that also have eggs in it. You can also substitute other flours for the white rice, like buckwheat or corn flour...
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