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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Everything posted by Skylark
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ARCHIVED Migraines!
Skylark replied to pricklypear1971's topic in Gluten-Free Foods, Products, Shopping & Medications
Have a cup of strong tea or coffee. Caffeine is also helpful for migraines. Excedrin migraine is tylenol, aspirin, and caffeine. Good luck, hope you head it off! -
ARCHIVED Tomato Sauces Gluten Free?
Skylark replied to S2011V's topic in Gluten-Free Foods, Products, Shopping & Medications
First, don't go gluten-free until you have had all your celiac testing done! This is really important! You must be eating a normal amount of gluten for the tests to work. Once you have had bloodwork and possibly had an endoscopy and biopsy, you can go off gluten. To answer your original question, it's rather rare to find gluten in tomato sauce or spaghetti... -
ARCHIVED In Defense Of 20 Parts Per Million
Skylark replied to psawyer's topic in Gluten-Free Foods, Products, Shopping & Medications
What I'd like to see is the 10 ppm standard as applied by GFCO. I get sick from Amy's, who is putatively manufacturing to 20 ppm. I have never gotten sick from a GFCO certified food, and plenty of companies seem perfectly capable of manufacturing to those standards. I told the FDA this, and am praying they'll listen. -
Don't worry! We are fixable. I have had only one week-long manic episode since fall of 2006 and I'm pretty sure it was a Hashimoto's thyroid flare-up, because a hypothyroid depression followed it that was treatable by increasing my dose of thyroid.
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The What's For Dinner Tonight Chat
Skylark replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
I was tired. Bush's baked beans, a burger on gluten-free bread, and microwaved corn on the cob. -
ARCHIVED Made Myself Sick For Nothing
Skylark replied to txplowgirl's topic in Coping with Celiac Disease
Don't you hate that good news/bad news sort of visit? I mean it's always good when we don't have awful things like Lyme or lupus but then you're left with the bad news of no diagnosis. I'm so sorry to hear you got nothing from your gluten challenge. -
ARCHIVED Horrible Insomnia Rant (With A Question)
Skylark replied to HopefulMama23's topic in Coping with Celiac Disease
Good luck! I know how awful the insomnia is because my thyroid went a little bonkers this spring. There are actually three autoimmune thyroid antibodies. TPO is the most common, but you should also be tested for anti-thyroglobulin, and possibly TSI. TSI is the Graves' disease test. Also, "normal" for TSH should be between 0.5 and 2.5. It used to... -
ARCHIVED In Defense Of 20 Parts Per Million
Skylark replied to psawyer's topic in Gluten-Free Foods, Products, Shopping & Medications
It is a problem with every clinical trial that has ever been run. Period. There is no way to both do ethical research AND get a truly representative sample of people. -
Please read my story in my profile. Depakote is NOT the answer for celiac bipolar illness. No psych meds are. You will just keep breaking through until you fix the underlying nutritional deficiencies. You need a really good supplement designed for bipolars like Metagenics or EMPowerPlus, fish oil, and a decent amount of choline (lecithin or egg yolks...
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Yes, yes, yes. I had no Hashi's antibodies when I went gluten free in 2005, although I was hypothyroid with a history of elevated TSH and nodules. 2008 I had TPOab around 200. This year my TPOab was over 400 plus I had thyroglobulin Ab appear. I just had TSI done as well because my Dr. suspects Graves' on top of the Hashi's. I have been on gradually...
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ARCHIVED Horrible Insomnia Rant (With A Question)
Skylark replied to HopefulMama23's topic in Coping with Celiac Disease
Do you have signs of hyperthyroidism? Higher blood pressure, higher resting pulse rate, weight loss? That will keep you awake. Hashis folks can cycle between hyper and hypo- until you end up permanently hypothyroid. You need to push much harder on your endo, let him/her know it's been cyclic, and that you want to know if it's thyroid related. If you... -
ARCHIVED In Defense Of 20 Parts Per Million
Skylark replied to psawyer's topic in Gluten-Free Foods, Products, Shopping & Medications
You all are missing the biggest problem. Only volunteers enter clinical trials. If you're super-sensitive, there is no incentive Faesano's clinic could offer that would make you participate in a trial where you eat 10 mg of gluten a day. They are probably paying on the order of $100-$150 to compensate people for the discomfort of being scoped. That means... -
ARCHIVED In Defense Of 20 Parts Per Million
Skylark replied to psawyer's topic in Gluten-Free Foods, Products, Shopping & Medications
Grrrr.... Time to write the FDA again. Stupid clinical trials studying a self-selected less sensitive population... -
ARCHIVED Celiac V. Gluten Intolerance
Skylark replied to MerrillC1977's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is correct...sort of. If there is a lot of malabsorption with the gluten intolerance you can have long-term issues like osteoporosis, which is essentially bone "damage". There is also research linking gluten intolerance to autoimmune thyroid disease. As far as I have read, enteropathy-associated T-cell leukemia is only found with untreated celiac... -
Sorry, I totally misunderstood you! Once you start absorbing things like iron and calcium, you'll be absorbing selenium and iodine too. It can help to be sure you're getting the US RDA of both, but not a lot more. The absorption improvement part of why people's thyroid function tends to improve gluten-free. Less inflammation in the thyroid helps too. ...
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ARCHIVED How Can I Be So Stupid?
Skylark replied to stewartfan14's topic in Coping with Celiac Disease
Been there, done that. Don't you hate when you look at the label AFTER you eat the food? My last messup was grabbing the wrong package of crackers at Trader Joe's. Fortunately I only took a bite of one and noticed the flavor. I hope you don't get too sick from it! -
ARCHIVED Kids Selling Gluten!
Skylark replied to GlutenFreeManna's topic in Coping with Celiac Disease
The microwave popcorn flavors look to be gluten-free and some are soy-free, but they all list dairy. It looks like the "natural flavors" must have a little dairy. Click on the item and then hit the "nutrition information" tab to see ingredients. Open Original Shared Link If you really want to support a kid you know personally, it looks like there is... -
Um... We don't absorb ANYTHING well, remember? Inflammation is bad for absorption, villous atrophy even worse.
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Absolutely. First, we don't absorb selenium and iodine well so simply producing enough thyroid hormone can be a problem. Second, the inflammatory cytokines (sort of like hormones) your intestine produces in reaction to gluten travel in the bloodstream and can inflame the thyroid gland. Between the two, many celiacs and gluten intolerant folks are hypothyroid...
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Ooooohhhh! Thanks! Those calas look wonderful. Next weekend. The shrimp etouffee recipe on the blog looks really good too. Sadly I don't think I can get crawfish around here. If I do find them they'll cost an arm and a leg. I might give your dirty rice a go this evening. I love chicken livers so they'll be in mine for sure.
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ARCHIVED gluten-free Bread Mixes
Skylark replied to zoogirl's topic in Gluten-Free Recipes & Cooking Tips
Funny, I mix just about everything by hand and it comes out fine. You just need to keep at it for a while and it takes a bit of work and elbow grease to mix stiffer doughs. About the only time I get out the electric mixer is for cake batter where you have to whip in a little air. (Whipped cream or egg whites too, of course.) I just made a Glutino... -
ARCHIVED Cooking With Cast Iron Pans
Skylark replied to gaillynne's topic in Gluten-Free Recipes & Cooking Tips
My poor innocent wok did survive a thorough scrubbing with steel wool. She forgave me eventually, though it did take quite a few stir frys to set her right again. I gave away my big cast iron skillet to a student friend who really needed kitchenware and got a new one. I don't think I ever had flour in the little cast iron skillet I use to roast cumin and... -
ARCHIVED What's For Breakfast Today?
Skylark replied to GlutenFreeManna's topic in Gluten-Free Recipes & Cooking Tips
Cream cheese and lox on a Glutino bagel. Yum!!! -
Ah, interesting to know. I've been to NOLA a few times for conferences, but always staying in hotels and eating restaurant food. I've been to K-Paul's a couple times and the food was sooooo good. Would you be kind enough to share a family recipe or two? It would be fun to get a different spin on cajun cooking, though finding real andouille sausage...
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I don't know what "real cajuns" you hang out with but I've had devastatingly hot jambalaya in New Orleans. Paul Prudhomme's jambalaya is spicy too. Open Original Shared Link The mild rice dishes I've gotten in New Orleans were usually called dirty rice, which is also really good.