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Skylark

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Everything posted by Skylark

  1. Skylark
    Seitan stir-fried in soy sauce, all the "fake" meats, Boca burgers, and tabouleh come to mind. Also make some split pea soup with pearl barley for me! As far as coping, maybe some glycine and whatever over-the-counter meds you used to take to feel better. Ugh. I am so not interested in gluten challenge!
  2. Skylark
    The person at the start of this thread who was asking about CC was diagnosed by antibodies. If you do not have antibodies or villous damage there is no way to tell what eating gluten does or doesn't do.
  3. Skylark
    So what have you seen in the scientific literature that suggests healed celiacs who have no antibodies or villous damage on biopsy need to be hypervigilant? Here are my references that substantiate the safety of traces of gluten in most (but not all) celiacs. There are always folks who drop out of the studies because they feel unwell so there are definitely...
  4. Skylark
    I hope you feel better on the diet! Usually eggnog is OK. Here is a list of additives that contain gluten. /celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/
  5. Skylark
    The home test kit is $50 in Canada, and it can't be too much more in the US. I don't have a formal diagnosis. Nobody has questioned my decision to go gluten-free. My heath improved dramatically and because of it people are supportive. I bet you didn't have a formal diagnosis for the fructose intolerance either. You sound quite ill, and you may get some...
  6. Skylark
    Look at the side effect list for dicetal - "SIDE EFFECTS: These are generally infrequent and fairly mild. Stomach pain or fullness, nausea, constipation or diarrhea, heartburn, headache, dry mouth, very infrequent drowsiness, dizziness and skin rash. If these persist or worsen, notify your doctor promptly. If you notice other effects not listed above, contact...
  7. Skylark
    This is simply not substantiated by celiac research. Research shows that there is a wide level of sensitivity, with some celiacs even able to eat 200 ppm European codex wheat starch without antibodies or damage on biopsy. Over half in studies tolerate 20 ppm food perfectly well. Risk of cancer is ONLY elevated (not "high") in celiacs on a full gluten diet...
  8. Skylark
    If you feel better on the gluten-free diet, the villous blunting is probably celiac.
  9. Skylark
    There are rather a lot of enzymes in GlutenEase and even more in Digest Gold. I'm really glad to hear you found something that helps you, but how do you have any idea the is DPP-IV helping and not something else? From the Enzymedica website "Enzymedica Digest Gold
  10. Skylark
    That is very likely a negative result, but as Ravenwoodglass said different labs have their own ranges so we can't be sure. Out of curiosity, have you tried eliminating yeast from your diet?
  11. Skylark
    Take matters into your own hands! It does not take insurance to try the diet. The only downside is you have to be willing to stick to a strict diet if you turn out to be gluten-sensitive because you won't know for sure whether or not you are celiac. You can go back and gluten challenge later for about three months and get tested if you choose. Also...
  12. Skylark
    Has she been given the IgG version of the celiac panel? Low IgA is a risk factor for celiac. She needs IgG anti-TTG and ask your doctor about the new anti-deamidated gliadin peptide IgG. It's more sensitive and very specific. The gluten-free diet does not effect low IgA, but she will be fine. She may need a firm diagnosis for school, so either the...
  13. Skylark
    I'm sorry for your loss. Blessings.
  14. Skylark
    Hi, Cahill You probably have some sort of food chemical intolerance. From the foods you list it might be fructose malabsorption or a lectin intolerance. You might do a little reading on those intolerances and see if it makes sense. Cruciferous veggies have a little raffinose and if you're having trouble with carbs a little Bean-zyme may help with the...
  15. Skylark
    I was very colicky.
  16. Skylark
    Well stated, shroomie! It only causes such havoc trying to reintroduce gluten if you are gluten-sensitive to begin with. And lots of us get more sensitive once we're on the diet.
  17. Skylark
    If you try to eat like you used to, it's going to be expensive. Try to switch to rice, potatoes, corn tortillas (Mission has dedicated lines), rice cakes (Lundburg, not Quaker), and other mainstream foods that are naturally gluten-free. The dedicated facilities, specialty flours, expensive ingredients like xanthan gum, and ELISA testing to make gluten-free...
  18. Skylark
    The diet is only expensive if you try to eat the same, eating breads, cookies, pasta, and that sort of thing. Shift over to rice, potatoes, beans, fruits, vegetables, eggs, and meats you cook yourself and you will find you're pretty much buying "normal" groceries. If anything, eliminating processed foods saves you money.
  19. Skylark
    Sorry, but that article is going to have to dig up some scientific references to convince me. Corn does not have "guten" as celiacs understand the word. Corn has prolamin proteins, but it does not have the gliadin that makes celiacs sick. Gluten intolerant patients "don't react to corn and feel fine after eating it" because it is a safe grain for almost...
  20. Skylark
    Welcome and don't panic! Welcome to the beginning of much better health. Would you feel this way about being diagnosed with an allergy? Celiac disease is no more your fault than an allergy, and it really carries no more social stigma. This is not a "big deal" disease either, as most celiacs recover 100% gluten-free and enjoy a huge improvement in their...
  21. Skylark
    You're on it! Try this thread. It's funny and has a lot of people's opinions. Also use the search function about various brands. Google also pulls up threads from here pretty well.
  22. Skylark
    I love hearing stories of people who feel dramatically better. I can see why you turned to Enterolab. There are times when the high sensitivity is useful if you are not comfortable without a formal diagnostic test. I do agree that with the dramatic improvement and the TTG result from Enterolab you're probably celiac. Of your genetic results, DQB...
  23. Skylark
    Then you need to do some research about natural sources of MSG and look at your diet. You might feel better if you eliminate those as well.
  24. Skylark
    Glutamate is glutamate, and if there is any salt in your food it will convert to monosodium glutamate naturally. The reaction is dose-dependent, but if you think you are reacting to traces of MSG and don't react to natural sources there is probably something else going on. Obviously some manufactured foods have more MSG than others.
  25. Skylark
    Hi, Kathy Did your husband have a genetic test? Your daughter only gets one of your two genes so unless he also has DQ2 or DQ8, she would only have one copy. I'm not even clear on what you mean by a secondary sort of gene. Enterolab only tests one gene, HLA-DQB1. Enterolab tends to overstate their genetic test results too, as they pretty much say that...
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