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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Thanks so much everyone. It helps a LOT to know that this is a normal process. Also helps to know that they would have hauled me right back if they saw something bad and not just a little unclear. I'm new to the screening and I have a friend who had breast cancer surgery and radiation therapy last year so it's fresh in my mind. I'm er... well endowed...
  2. Skylark
    Nope. I'm so sorry to hear she's still sick and afraid to leave the hospital. *grumble stupid doctors* *grumble stupid gluten challenge idea* To be honest after seeing a friend react badly to a hospital "diabetic" diet, I'd be afraid to even eat a hospital "gluten-free" diet. I couldn't tolerate dairy at first and I also got stomachaches from soy...
  3. Skylark
    Are you talking about anti-gliadin IgG? If he has normal amounts of IgA and only anti-gliadin IgG, with no anti-gliadin IgA that's not diagnostic for celiac. People with IgG to a food don't always tolerate that particular food well though. The usual recommendation is to try eliminating it from the diet and see what happens. I agree that referral to...
  4. Skylark
    Yes, there is a delay from gluten-caused autoimmunity. Some people have fast reactions. My own symptoms can be anywhere from 4-48 hours after eating gluten, and I don't get the canker sores until a few days later. I was just reading a paper that the peak in T-cells in celiacs fed gluten is actually not until six days after the gluten. I'm glad you found...
  5. Skylark
    I had my first screening mammogram a couple weeks ago. Didn't think anything of it. Yesterday I got a call out of the blue to schedule more films and an ultrasound. Dr's office didn't even call me to tell me there was an issue. I got on the phone and called them. A nurse called back, said there was no info in my chart, only the order for more films...
  6. Skylark
    Thanks for the update. I'm glad to hear she's doing well.
  7. Skylark
    If your son has DH he's celiac. It's great you found it so early. Taking him off gluten early in life is much more important as far as risk than trying to decipher genetics we hardly understand. I really wouldn't worry about him having two copies of DQ5. As I said, we really don't know that much about the underlying genetics of celiac, particularly...
  8. Skylark
    It's unusual but allergies are odd things. Despite your tests, an immediate feeling of choking/tingling when you breathe something sure sounds allergic to me. I don't have a gluten allergy but I have others. I find a little Benedryl at bedtime quite helpful sometimes. You could also try one of the non-drowsy antihistamines ahead of time if you know gluten...
  9. Skylark
    I never did go back on gluten for the challenge. Like you, I couldn't afford to lose a couple months of my life to get a piece of paper telling me what I already knew. I tried one sandwich, got my usual GI symptoms, and ripped up the lab orders.
  10. Skylark
    Layman's terms? The Enterolab writeup is very alarmist, and is not based on any formal peer-reviewed research, only their "feel" for the genes. Please don't worry. Your son will be fine. The test is for the type of one gene you have, called HLA-DQ beta. You are types DQ5 and DQ6. Your son is DQ5, DQ5. The only formal research on celiac/gluten intolerance...
  11. Skylark
    For starters, gluten in adhesives is an urban legend. What little starch or dextran is in them is derived from corn and potatoes. Starch-based adhesives are only used on paper products like envelopes and stickers anyway. They are not strong enough to seal something like a Larabar package. Open Original Shared Link You are probably somewhat sensitive...
  12. Skylark
    I can understand the overwhelming part. There are plenty of parents with celiac kids around here who can give you lots of support and tips. Just stick around and keep asking questions!
  13. Skylark
    There is a link between cortisol levels and depression. Antidepressants tend to normalize cortisol secretion, and it's not clear whether it's a direct result or whether the stress-based corticol secretion normalizes when the depressive thought patterns are gone. There are also adrenal disorders, Addison's and Cushing's disease. The only thing I take...
  14. Skylark
    Tequilla? I get queasy thinking of it. Too many cheap margaritas in Mexico! I drink whiskey OK, but if you're really sensitive maybe it's not so good for you? The big celiac organizations have tested and don't find gluten in distilled grain spirits but the tests are only accurate down to 5 or 6 ppm. I drink Irish whiskey and Scotch OK, but we're...
  15. Skylark
    That is a positive celiac panel result, with borderline high anti-gliadin antibodies and definitely high anti-tissue transglutaminase (tTG) antibodies. It is unusual to find celiac antibodies at all in a child that young so he's probably celiac. He needs follow-up, and your GI specialist needs to decide whether to do a biopsy or simply diagnose celiac and...
  16. Skylark
    Two days is not long enough. It typically takes at least a couple weeks, longer in some people. There is damage that has to heal. What antibody was positive? Also, he cannot be biopsied as a follow-up if you take him gluten-free.
  17. Skylark
    Hi and welcome. There was a fairly large prospective study of people with positive blood tests and negative biopsies. Many in the arm of the study who continued to eat gluten went on to develop damage. Those in the gluten-free arm of the study had antibodies go away and felt so much better that they elected to stay on the diet. Basically, you're early...
  18. Skylark
    Depression is a major symptom of celiac. This could be celiac, and even if you're negative on the tests it's worth trying the diet. If you just became celiac, there may not be the extreme sort of damage the tests are designed to pick up.
  19. Skylark
    Hard to say after two months. Do you feel a lot better off gluten?
  20. Skylark
    I ate pudding, applesauce, jello, broth (Herb-Ox is gluten-free), and some squash and tomato soups I found at the grocery store that were gluten-free when I had oral surgery. I couldn't find a gluten-free cream of chicken, which was a bummer. I hope it goes well for you!
  21. Skylark
    Yes, I picked that one up in a lit search. There are some other genetic studies that suggest other loci but that's the largest so far.
  22. Skylark
    You might want to look into methylfolate (metafolin) as well as methyl-B12. Solgar seems to have the license to sell it over the counter now. Some people do not convert dietary folate to methylfolate and end up B6 deficient. My understanding is that excess B12 is not a problem, but too much folic acid (B6) is a problem. Supposedly methylfolate is safer...
  23. Skylark
    Where's Ravenwoodglass when you need her? She's our local non-DQ2/non-DQ8 celiac poster child. I think she's double DQ9. The genes are only a risk factor, not a yes/no answer like some doctors seem to believe. You can be negative on all the tests and still be very sensitive to gluten. My mom is. Try the diet for a couple months and see if it helps...
  24. Skylark
    I hate to be rude, but "adrenal fatigue" is not a real medical condition. It's possible to confuse people with this sort of pseudo-diagnosis and keep them from seeking help for real medical conditions. Open Original Shared Link
  25. Skylark
    I specifically suggested Solgar because they're Albion Gold Medallion. You know what's in the pill. Not so much with a lot of other brands. Nature Made is a particularly worrisome brand. Open Original Shared Link
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