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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Hold on. You didn't mention the microscopic colitis before. With a positive Enterolab result and a response to a gluten-free diet, I believe you actually have a very strong diagnosis of gluten sensitive microscopic colitis. I'm not a fan of Enterolab because his tests are overly sensitive and have low specificity. (I finally found where Dr. Fine talks...
  2. Skylark
    It's a pain in the butt. I went all the way down to lamb, rice, carrots, and lettuce for two weeks. Like you, I started introducing things I didn't expect to react to like citrus, chicken, and cruciferous veggies first. I left the major allergens to last. It's possible to get confused by delayed reactions and mild sensitivities so keep a good food diary...
  3. Skylark
    You really need to write Nestle about the Carnation Instant Breakfast. As of 2007 the ready-to-drink had a "natural flavoring" with a tiny bit of gluten, plus all the flavors were processed on the same equipment as the chocolate malt flavor which has barley malt and wheat flour. Open Original Shared Link There are some celiacs who are very, very sensitive...
  4. Skylark
    I think if you want to continue to consume gluten that it would be wisest to get the biopsy. As others have said, you can be biopsy-positive with negative blood tests and really do a lot of damage if you keep eating gluten.
  5. Skylark
    Where's the "anywhere from 4 to 24 hours" option?
  6. Skylark
    Sounds to me like your body has given you a completely and totally clear answer. You can absolutely and positively be gluten-sensitive without the current tests showing anything. My mother is this way, as are two friends. I was never formally diagnosed since I follow the fairly simple philosophy of "if it makes me sick I don't eat it." Remember that...
  7. Skylark
    It's almost certainly the antibiotic. Look at the side effects list on Xifaxan. It includes nausea, vomiting, gas, stomach pain, and constipation! Open Original Shared Link As far as gluten intolerance, your doctor is the one being "extreme and ridiculous". Celiac disease is a process that starts with gluten sensitivity. Doctors who are very knowledgeable...
  8. Skylark
    Gee, that mental stuff sounds familiar. I have two afghans and five handmade sweaters to show for my celiac "antisocial" and obsessive tendencies. Sorry you went through it too. You'll definitely feel "more yourself" as the gluten-free diet takes hold. IBS is an absolute quagmire. It's much like depression. It's common, seems to have multiple...
  9. Skylark
    Hi there. It's a genetic test result. Your test shows that you have some immune system genes that are associated with celiac disease. One, called DQ2.5, (Your DQB1*0201 and DQA1*0501 alleles) is the subject of a lot of interest and research. It's common in people of Northern European descent and a lot of people with celiac disease have it. Your other...
  10. Skylark
    Anemia could make her feel that way. I agree about the risk of processed foods. I've even reacted to taquitos that were clearly marked "gluten free" but had a pretty long ingredient list so a high chance of CC somewhere in the supply chain. Also has she tried going off dairy as well as gluten? Sometimes newly diagnosed celiacs don't tolerate dairy well...
  11. Skylark
    I think folks who aren't DQ2/DQ8 should make sure their doctors rule out other conditions like inflammatory bowel disease or Crohn's. (Well, really everyone should but without DQ2 or DQ8 the risk of IBD and celiac is similar.) You can absolutely be celiac or gluten intolerant with other HLA-DQ genes but it's less common than with DQ2 or DQ8.
  12. Skylark
    I don't know how technical you want to get, but your first degree relatives (parents, children, and siblings) should absolutely be tested. The risk of celiac in first degree relatives is quite high. I've seen anything from 1 in 20 to 1 in 5. I wouldn't worry about explaining DQ2, as celiac involves other as yet unidentified genes as well. Maybe an article...
  13. Skylark
    I hereby pronounce tomorrow as official gluten-free Peppermint Patty Brownie day. I'll join you in celebrating. Who else is in?
  14. Skylark
    Corneal infiltration is pretty common. I haven't been able to sleep in extended wear contacts for years because they don't let quite enough oxygen through. I doubt it has anything to do with celiac.
  15. Skylark
    I'm confused about the point of the challenge. If you bloodwork started negative it's not going to magically go positive. It's OK to tell your doctor that gluten makes you sick, you're just starting to feel better, you don't want to be sick again, and you're comfortable with a "maybe" diagnosis. They can rule out other problems without you eating gluten...
  16. Skylark
    One copy of DQ2 or DQ8 confers some risk for celiac disease. No current genetic test gives a clear-cut result. There is a dosage effect, meaning the risk is higher with to copies of DQ2 or DQ8. Having no "celiac" genes doesn't even rule out celiac, as some folks on this board can tell you. We don't actually know all the genes involved. HLA-DQ is just...
  17. Skylark
    I use the Tinkyada spirals. They fall apart a bit but I don't mind. If you search, there was a thread recently on gluten-free pastas for pasta salad and some brands mentioned. Your potato salad sounds really good!
  18. Skylark
    And looking in the blood is probably the wrong place much of the time. Things like DH and gluten ataxia are very localized. Blood is just relatively easy to sample, so diagnostic tests tend to rely on it.
  19. Skylark
    Your doctor saying you're OK means you're not celiac. That's good news. The antibodies you have are not uncommon. Some people with anti-gliadin IgA and IgG still eat gluten fine, but others have reactions. As Marz says, the only way to be sure is to try the diet.
  20. Skylark
    I'm self diagnosed. I thought of doing a gluten challenge. Ate the first piece of bread, my stomach hurt for two days, and I abandoned that idea. My body is completely clear that gluten is not a food substance. I don't need a piece of paper to tell me so. Diagnostic tests are for when there is some question about a diagnosis, or to rule out other conditions...
  21. Skylark
    Glad you found a good multi. People are so reluctant to spend some money on a vitamin. They don't realize their One-A-Day goes straight through the gut and hardly gets absorbed. I've been talking the double strength Nature's Bounty fish oil. It's been independently tested and comes up free of PCBs and mercury.
  22. Skylark
    I like to make gluten-free pasta salads. I cook the pasta in the evening, eat the next day when it's hot. I do one with olive oil, sliced black olives, tomatoes, fresh basil or pesto, and feta cheese. Not sure what you'd sub for the feta, but if you use pesto it might work without. I also like a big bowl of potato salad. There's a million recipes out...
  23. Skylark
    It takes one or two months for the mucosal celiac immune response to be so widespread and severe that the celiac antibodies move from the intestinal mucosa to the bloodstream (if they ever do). There is research where folks with celiac biopsy and negative or only anti-gliadin IgA serology show deposits of celiac antibodies in the mucosa. As you know, in...
  24. Skylark
    Glad to hear you're less afraid. By the way, as awesome as this board is, there may be another reason you are feeling better emotionally. Anxiety is another symptom of gluten intolerance, as is depression. If I suspected a food reaction back when I did my elimination diet, I waited at least two weeks before trying a food again. If I had any tummy trouble...
  25. Skylark
    Good luck! Let us know if gluten-free helps.
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