-
Posts
5,198 -
Joined
-
Last visited
-
Days Won
79
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by Skylark
-
ARCHIVED Venting.....feeling Like Crap Again!
Skylark replied to looking4help's topic in Coping with Celiac Disease
Nothing to worry about. A little gas in your intestine was showing up on the ultrasound and keeping the tech from visualizing your ovary clearly. That's what she meant by "hiding". I imagine a tech who was causing you obvious pain would be acting concerned. I hope the pain goes away soon from all that prodding. -
Don't ignore this! Go talk to your doctor.
-
ARCHIVED Venting.....feeling Like Crap Again!
Skylark replied to looking4help's topic in Coping with Celiac Disease
((( hug ))) So sorry you're hurting. -
ARCHIVED Got My Enterolab Results Today
Skylark replied to danaf617's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Enterolab has screwy reporting. They only test beta and they report the really old DQ1-DQ3 HLA serotypes. Then the "subtype" is the modern DQ2, DQ4 - DQ9 typing. It's explained on the FAQ page I linked. It's almost easier to look up the alleles on a better chart. I like Open Original Shared Link Enterolab dies NOT test alpha chains. Someone who is... -
ARCHIVED Family Get Together @ Pizza Place
Skylark replied to summerteeth's topic in Gluten-Free Restaurants
I would have gotten her name and asked to speak to a manager. -
ARCHIVED Deamidated Gliadin Positive, Gene Negative
Skylark replied to Matisse's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Really? All this detail seems to have escaped the expert celiac researchers who gave a symposium I attended this spring. Could you please explain all the genes and environmental factors so I can send them a letter and tell them that celiac is "solved"? -
ARCHIVED Blood Test Accuracy
Skylark replied to angiegoo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
People with positive blood tests have been followed in studies. Some people with anti-tTG convert to celiac and a LOT of people with anti-endomysial antibodies convert. You didn't mention getting anti-endomysial done. If your biopsy comes back normal, you still might try gluten-free for a while. You might be really surprised at which nagging health... -
ARCHIVED Coffee? Are You Kidding Me?
Skylark replied to conniebky's topic in Gluten-Free Foods, Products, Shopping & Medications
The flavored beans can have gluten, and just about anything can be cross-contaminated to where super sensitive folks will react. If you're grinding the coffee yourself and you know the beans and creamer are gluten-free then you are simply sensitive to coffee. It's not exactly stomach-friendly stuff. -
In that thread about itching, I just made a connection. I used to get INTENSE itching on my right index finger, and a couple days later I would get one or two tiny blisters. A friend saw me picking at this rash once and told me it was probably herpes whitlow. I looked it up and herpes simplex is able to live in the nerves at the base of the hand and cause...
-
ARCHIVED Vomitting Way Too Often,why?
Skylark replied to JennChicago's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you felt better on the gluten-free diet and your GI symptoms went away, you are probably gluten-sensitive if not celiac. Have you been blood and biopsy tested for celiac? It's hard to get good test results gluten-free, so you need to get it done right now while you're eating gluten and symptomatic. Yes, damage from gluten builds up slowly. If you... -
ARCHIVED I Cannot Take It Anymore!
Skylark replied to kaki-clam's topic in Coping with Celiac Disease
You all are reminding me of the nightmare that drove me to try an elimination diet because the doctors were so useless. Chronic diarrhea, "IBS", gastritis, chronic fatigue, bipolar illness, half my hair falling out from Depokote and my shrink saying "I've never seen anyone your age with enough nutritional deficiencies to have hair fall out before", bouts... -
ARCHIVED Gluten Free, Still Gaining Weight, Still Bloated
Skylark replied to LisaGF's topic in Related Issues & Disorders
The classic example is the winter Inuit diet. This is an interesting read. Open Original Shared Link I'm not ready to switch from my orange juice to muktuk (whale skin) or raw caribou liver for my vitamin C just yet. -
ARCHIVED Entero Lab Question
Skylark replied to siglfritsch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
-
ARCHIVED Gluten Free, Still Gaining Weight, Still Bloated
Skylark replied to LisaGF's topic in Related Issues & Disorders
Potatoes. This is a good article on grains that lays out which are related to wheat, and which celiacs can more likely eat safely. https://www.celiac.com/articles/185/1/Gluten-Free-Grains-in-Relation-to-Celiac-Disease---by-Donald-D-Kasarda-Former-Research-Chemist-for-the-United-States-Department-of-Agriculture/Page1.html We need carbs but I don... -
ARCHIVED Need New Ideas For Chicken Mardinade
Skylark replied to VioletBlue's topic in Gluten-Free Recipes & Cooking Tips
No worries. Try it without the citrus and chili. It won't have the "kick" but the ginger/garlic/onion flavor should still be a nice change. -
ARCHIVED I Cannot Take It Anymore!
Skylark replied to kaki-clam's topic in Coping with Celiac Disease
Sorry you're having such a rough time. All the cooking does get old sometimes. You know how guys work. You'll decide you're perfectly happy alone and then the right guy will suddenly appear when and where you least expect it. What's "normal"? My stress escape is an afternoon mall-crawling. I'll go hunting for something new to wear, a pair of strappy... -
ARCHIVED Feeling Better By The Day
Skylark replied to txplowgirl's topic in Coping with Celiac Disease
So glad to hear you're through the worst of the breakup and feeling so much better! -
ARCHIVED Need New Ideas For Chicken Mardinade
Skylark replied to VioletBlue's topic in Gluten-Free Recipes & Cooking Tips
Yes, you can put it on the BBQ. I don't think it will suffer if you leave out the lemon or lime. The yogurt tenderizes the chicken and gives a little fat to carry the garlic and seasonings into the meat. Most of the flavor comes from the ginger, garlic, and onion. I'm home and here's my recipe. 2 1/2 lb chicken, skinned 1t salt 1t lemon (leave... -
ARCHIVED Need New Ideas For Chicken Mardinade
Skylark replied to VioletBlue's topic in Gluten-Free Recipes & Cooking Tips
How about a tandoori marinade? It's yogurt based. I'm sure you could find a recipe you can modify to work. -
ARCHIVED Acquaintance Claiming There's A Cure For Celiac
Skylark replied to Coleslawcat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Let me guess. It involves crystals and "energy therapy". -
OMG! I love your lobster story. That's hilarious! I love P.F. Chang's! They tell you when you order what plate they'll bring your gluten-free food on. Make sure they bring you the gluten-free soy sauce too. You absolutely have to have the lettuce wrap appetizer. They're sooooo good! Tequilla is gluten-free for sure. Margarita mix should be...
-
ARCHIVED Need Info On Amlodipine (Norvasc)
Skylark replied to gflooser's topic in Gluten-Free Foods, Products, Shopping & Medications
Is this the sort of info you need? The generic should have the same safety/side effect profile as Norvasc. This is some info from NIH's PubMed Health site. Open Original Shared Link And from the manufacturer. Open Original Shared Link As far as safe substitutes, that's a question for the doctor who prescribed it to you. High blood pressure is... -
ARCHIVED Entero Lab Question
Skylark replied to siglfritsch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are too kind. I'm not going anywhere. Having some e-friends like you and the other folks on this board is so nice! -
I've seen folks on this board say their blood tests took longer than two months. As for your son, the blood test is negative and deamidated gliadin is one of the better blood tests for celiac disease. You could push for a biopsy, or try the diet on him first. It is possible for people who are not celiac to still respond well to a gluten-free diet, especially...
-
ARCHIVED Entero Lab Question
Skylark replied to siglfritsch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If other folks don't read that as a diagnosis, I feel a little better.