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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    As Kelly&Mom mentioned, with all the positive blood tests you want to be sure there are no precancerous changes to the gastric mucosa. If you had anti-tTG and anti-endomysial antibodies, and you're unable to eat gluten there is really no question that you're either celiac or headed in that direction. You could be in an intermediate state where you have...
  2. Skylark
    Your nutritionist is absolutely correct. The schedule is really silly. The use for IgG tests is as a guide, not to absolutely identify foods you can't ever eat. There really is no accurate test for food allergies and intolerances other than an elimination diet, but the IgG tests are supposedly helpful in narrowing down what might cause issues. Talk to...
  3. Skylark
    Some celiacs are highly sensitive, some less so. If you've been gluten free to the point where you are only having occasional crumbs in the mayonnaise, there is no guarantee of antibodies. What I've read for a challenge is four weeks with 4 slices' of bread worth of gluten a day. DH can be biopsied. I wonder if they could test the rash in your mouth...
  4. Skylark
    Did you see the passage from the Kisari Mohan Ganguli translation of the Mahabharata about the Kali Yuga? (Italics are mine). "Rulers will become unreasonable: they will levy taxes unfairly. Rulers will no longer see it as their duty to promote spirituality, or to protect their subjects: they will become a danger to the world. People will start migrating...
  5. Skylark
    I was reacting to soy, casein, and shellfish at first. It took about a year for me to eat them again. The first thing to look at is the "big 8" allergy list, which is Milk, Eggs, Peanuts, Tree Nuts, Fish, Shellfish, Soy, and Wheat. (Obviously wheat is out of the question.) It's really easy for your body to develop a reaction to those foods. If...
  6. Skylark
    If you're eating gluten all the time and you have celiac disease, your gut is so damaged from autoimmunity that you won't necessarily notice immediate effects from eating any particular meal. Celiac stomach trouble can definitely be intermittent. Some people notice a difference after a few days, others have problems off and on for a couple months before...
  7. Skylark
    The Taco shells could be CC but I eat Trader Joe's stuff all the time without problems. Are you sure it's not food poisoning from the ground beef? That stuff can have an awful lot of bacteria in it.
  8. Skylark
    I hope you've figured it out! If gluten is the trouble you'll feel much better. Never, ever buy anything from a bulk bin. You don't know what was in the bin before, or who just dipped the scoop into something with gluten. Chex cereals are your best bet for mainstream cereal. Nuts should be low-glycemic and healthy for you to carry around. I also...
  9. Skylark
    Burger King should be using a dedicated fryer. Double-check at the particular restaurant you visit. McDonald's does declare a wheat ingredient in the seasoning used in a processing step to make their fries. The finished fries have been independently tested and do not contain enough residual gluten to show up on an ELISA assay. That means they shouldn...
  10. Skylark
    Perhaps you should contact Enterolab and ask all your questions. They should be able to provide a false positive rate on their tests and information about how the results can be affected by microscopic colitis and high general levels of inflammation from autoimmunity. (If they can't I'd consider asking for a refund.) You also need to ask Enterolab about...
  11. Skylark
    Thanks, Nora. I'll check them out. I have access to Lancet.
  12. Skylark
    I went to BJ's to try their new gluten-free pizza and it's the best restaurant gluten-free pizza I've ever had. It's an honest-to-god gluten-free New York style pizza crust, not a funny crackery thing. The only difference I noticed from normal pizza was slightly overly crisp edges. It was so good, I'm totally going back next weekend! I'm so excited to...
  13. Skylark
    Yes, all those symptoms can be caused by gluten intolerance. Negative celiac blood tests suggest you don't have severe villous atrophy (which is good!) but they don't say much about gluten intolerance. The next step is to try the gluten-free diet for a few months. If you feel better, you have your answer.
  14. Skylark
    Wow! Do you happen to have the link for a reference to those numbers? Not doubting you at all, just really curious/interested.
  15. Skylark
    There is a strong celiac gene, DQ2.5 where you can get half from one parent (DQ2.2) and half from the other parent (DQ7.5). If this happened you had a much higher risk of developing celiac than either parent. Your parents were right to get tested, as the highest risk of celiac disease is having a first-degree relative with it. Your brother should definitely...
  16. Skylark
    Yesterday Breakfast: coffee, huevos rancheros with corn tortillas Lunch: Three-bean salad and some chopped liver from the local deli I bought the other night, corn chips Dinner: Burger with carmelized onions, rice, steamed broccoli, handful of radishes Today: Weekend laziness set in so I didn't eat a proper breakfast. Just coffee Brunch: Leftover...
  17. Skylark
    Oh, geez. I feel so bad for you. I really, really hope your new GI doctor is good. It sounds like you have gluten issues, but I guess it's more than just gluten if you're completely gluten-free and still cramping and running for the bathroom. My mom gets pain, cramping, gas, and diarrhea from eating fructose. Vomiting too. She has what's called fructose...
  18. Skylark
    Nora, I'm not going to talk about exactly what science I do because I have spoken so openly about my bipolar illness here. It's very important to me to spread my story of gluten-related bipolar illness in case I might help someone else who is suffering the way I did. Bipolar illness carries a tremendous stigma and job interviewers regularly Google search...
  19. Skylark
    I get so frustrated when I look for info on Splenda. The peer-reviewed research that says it's safe is mostly funded by the manufacturer. The journal articles very clearly state the source of funding, as is required. There are a few other safety studies out there, with only one rat study that managed to find anything. With rather high doses, they got effects...
  20. Skylark
    I asked you this before but you might have missed it. Have you tried going off casein? I linked a study in the other thread you started that showed cross-reactivity between casein and gluten in the serum of some celiacs. (Of course, now I can't find the study but you can look in your other thread for the link.)
  21. Skylark
    I found someone who wrote Post in March of this year. Open Original Shared Link Looks like there are no gluten ingredients in Fruity Pebbles and they are made on a dedicated line, which is always good. The bit about Post not being interested in certifying their cereals gluten-free is worrisome. The line about transportation vehicles and storage devices...
  22. Skylark
    You're welcome. There are certainly false negative issues with celiac blood tests, but when people do test positive it's really valuable information. Anyway, I hope you can get your hands on that home test. I think I saw a phone number for US inquiries on their online shopping cart. If it comes up positive you have a really good reason to look at getting...
  23. Skylark
    Thanks for understanding what I'm trying to say. I guess folks who got positive test results figure the kick in the butt to try the diet was worth all the money. That's fair, though I did it for free myself because I thought I had food allergies. Celiac didn't even occur to me until I realized I couldn't eat wheat, rye, or barley! I worry about the...
  24. Skylark
    Gluten is nasty for biopsy-proven celiacs, whether you react or not. The problem is that there are rare intestinal cancers you can get if you keep eating gluten. (Don't be scared. They are rare, rare, rare.) It also predisposes you to other autoimmune conditions like thyroid disease or autoimmune neuropathies if you keep eating gluten. I wish I didn...
  25. Skylark
    It's great you have a doctor who took some time with you. I think he was probably talking about the possibility of damaging your villi and triggering autoimmune reactions again if you eat gluten. You can postpone your healing by eating gluten while your immune system is settling down, which can take up to a year. I'm sure you're being careful; he just...
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