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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    There are old posts on this forum that say the BBW soaps are gluten-free.
  2. Skylark
    I get either depression or anxiety (or both) when I am glutened. I have to keep reminding myself that it's the gluten and I'll feel fine in a few days. I do get transient thoughts of suicide sometimes, but nothing I would act on. If you and your doctor agree that celiac testing is valuable, you need to make it very clear that you believe you were suicidally...
  3. Skylark
    (((hugs))) Sounds like a real rough patch with the family. I had the same sort of experience, realizing I was with a control freak after he packed up and walked out. I cried for days, then slowly started to realize I had my life back and all the things that had been wrong.
  4. Skylark
    The research is really new. Don't beat your doctor up too hard! He is following the current standard of care. In our malpractice-prone medical system, thinking outside of the box is discouraged. I went and looked and the studies and people who were followed for conversion to celiac had anti-endomysial antibodies (anti-EMA), another celiac marker. Here...
  5. Skylark
    I'm surprised your insurance won't cover celiac blood testing. What I would recommend is the Biocard celiac home test, BEFORE you go off gluten. You can mail order one and it will cost much less than paying out of pocket. Open Original Shared Link Celiac disease confers risks of thyroid disease, anemia, osteoporosis, other autoimmune diseases, and some...
  6. Skylark
    I'm so sorry to hear you had a bad experience getting your celiac diagnosed. I think a lot of us are angry around here, me included. I had diagnoses of food allergies, gastritis, borderline anemia, IBS, and depression, all of which resolved when I stopped eating gluten. No doctor I saw even suggested I be tested for celiac. I looked at Sollid and Lundin...
  7. Skylark
    If your doctor is right, you might get rid of that awful-sounding nausea and vomiting. Is changing your diet for a couple months to see if it helps really that big of a sacrifice?
  8. Skylark
    Why do you feel like you should "demand" a test? Did someone put you on the diet with scanty evidence? If you require a gluten-free diet to feel healthy, for whatever reason, the test would make no difference. If you've been strict for three years, you should have no antibodies to test for. You're looking at a gluten challenge. You would eat gluten (equivalent...
  9. Skylark
    I developed an aversion to sour foods like vinegar and citrus fruits. I don't know what it means, but you're not the only person to develop a new aversion going gluten-free.
  10. Skylark
    Allowed by whom? I get very upset when people say things like that because it impugns the integrity of scientific work. Studies are a lot of work, and getting journal articles through the peer review process is even more so. This comment reads as if there is some imaginary council of overlords controlling what scientists can and cannot publish. I assure...
  11. Skylark
    You sound like such a cool mom. Mine did a lot of that too and it helped SO much. By the way, licorice Jelly Belly jellybeans are gluten-free. They're not quite the same texture as the floury stuff but maybe your son will like them. I do miss all-sorts.
  12. Skylark
    I couldn't tolerate milk or soy at first. After a year gluten-free my body settled down and I could eat them again. I don't know of any danger eating non-gluten foods that you can tolerate. You do have to pay attention for a few days, as delayed reactions can show up the day after you eat the food. I've had gluten reactions as late as 36 hours after eating...
  13. Skylark
    Most of the time I've checked manufacturer websites lunch meats were OK. For the most part they are naturally gluten-free. Here is a year-old list to get you started with research. Please check the manufacturer websites or labels again and don't rely on this year-old info. Open Original Shared Link Breakfast: gluten-free bagel or toast with peanut...
  14. Skylark
    This is turning out to be a very useful old thread! I didn't know Blue Sky had a stevia soda. I'll have to look for it.
  15. Skylark
    If you feel like you need a piece of paper, Enterolab will almost certainly find something. Can't say I'm convinced it means much. I always advise folks who have already figured out they can't eat gluten to listen to their bodies (that's the ultimate test anyway) and spend the $350 on new cutting boards, a new toaster, a nice rice cooker, gluten-free cookbooks...
  16. Skylark
    Well, I wish you the absolute best of luck finding something that works to give you peace of mind. Keep at it! I'm living proof that you can get profoundly mentally ill from digestive issues and malabsorption. The brain/body connection is powerful and still poorly understood.
  17. Skylark
    Gotcha! I'll put a wee bit more detail in the thread next time. I was excited to find something that fast on DQ9. I haven't had time to chase down whether DQ9 got put into an in vivo system to validate those computational models. I don't think it's been crystallized like DQ2 and gliadin.
  18. Skylark
    Your gastro is a little behind current thinking on celiac disease and it is not a good idea for you to ever eat gluten again. Markku Maki and others are showing that celiac disease is a process, progressing from anti-gliadin IgA to anti-tTG IgA to anti-endomysial IgA and villous damage. What you have is termed "latent celiac" by researchers. The more you...
  19. Skylark
    It's so nice of you to join a group like this to learn about celiac for your hubby!
  20. Skylark
    Pointing out to whom? It says so in the abstract. *looks confused*
  21. Skylark
    Mighty convenient when the study I was thinking of has been done. This is modeling basically showing that DQ9 can probalby present gliadin peptides to T-cells, although not as efficiently as DQ8. Open Original Shared Link
  22. Skylark
    The loading dose for EMPowerPlus is actually 15 capsules a day, so the cost is $150 a month. It's definitely expensive and even trying it out is a pretty serious commitment. For me, it was a no-brainer because I was spending at least that much on psych care and meds that weren't working very well and making me sick. Besides, when you're at the end of your...
  23. Skylark
    Bummer about the computer crash. I'm sure I can find what I need if I know there is some info out there. I mostly read biological and medical journals for information so "technical" is not a problem. (To me they are not technical. Scary, huh? )
  24. Skylark
    If eating gluten causes you that much pain, yes it is worth getting tested. Unfortunately, you will have to keep eating gluten to get a valid celiac tests. The results will let you know whether you have celiac disease, or are just one of the many people who feels crummy when they eat gluten. If you get negative results, don't worry about it. You can...
  25. Skylark
    Celiac is a fair reading! The new anti-deamidated gliadin peptide test is very good for diagnosing celiac, and that combined with your very high anti-tTG leaves no question. Normal endoscopy means they saw no inflammation, ulcers, and other GI problems. That's good news. Doctors cannot see celiac disease with the endoscope. They will have done biopsies...
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