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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Yes, she can absolute have celiac disease with "negative" HLA tests. We've been going round and round about celiac genes in another thread today. Most celiacs are HLA-DQ2 or HLA-DQ8 but NOT ALL OF THEM! There are documented cases of biopsy-positive celiac for most HLA types. It is notoriously hard to get positive antibody tests in young children, so...
  2. Skylark
    Some Tiger's Milk bars are gluten free. You can eat Peanut Butter, Protein Rich, or Peanut Butter and Honey flavors. The Peanut Butter Crunch flavor has gluten. Kind bars, Larabars, and Nature Valley Nut Crunch bars are also gluten-free.
  3. Skylark
    Librax? IBS? Sensitive stomach?? Librax??? Grrrrr... I get so angry at doctors who have their heads firmly inserted into their anal orifices. Put away the Librax and go gluten free. I'm willing to bet you feel a lot better after a month or two.
  4. Skylark
    Connie, that sneezing and puffiness sounds like true allergy! You need to tell your doctor this is happening and see what he thinks about allergy testing. True food allergies can get worse, and can become dangerous. (Like when your windpipe puffs instead of your lips!) Wheat allergy is a little unusual in adults, but we specialize in unusual around here...
  5. Skylark
    Yes, it could be celiac disease. The exhaustion was a huge issue for me along with the GI symptoms and it got much better after I had been gluten-free for a while. Some celiacs are lactose intolerant too, since lactase is made at the tips of the villi, which is where the damage happens. Other people are sensitive to the casein. You have to eat "normal...
  6. Skylark
    I know it's not personal. I mentioned you as a positive nod. I completely understand as I'm shouting just as loudly about 15 years of psych misdiagnoses, with exactly the same hopes. If even one person with chronic GI trouble and depression/fatigue gets diagnosed with celiac instead of put on Prozac and shuttled off to the psychiatrist with a pat on...
  7. Skylark
    According to the National Cancer Center, normal lifetime risk for breast cancer is 12%, while that of women with BRCA1 or BRCA2 is 60%. Normal lifetime risk for ovarian cancer is 1.4%, while with one of the genes it's estimated to be 15%-40%. They note "Because family members share a proportion of their genes and, often, their environment, it is possible...
  8. Skylark
    I always like to keep my options open, especially in a bad economy.
  9. Skylark
    Waitaminute. That's too glib. The DQ2.5 studies point to a very clear mechanism for celiac disease and there is a DQ2.5 dosage effect where homozygotes have a higher risk than DQ2.5 trans or heterozygotes. I think it is completely fair to call HLA-DQ2.5 a "celiac gene". The research is also very clear that DQ2.5 is neither necessary nor sufficient for...
  10. Skylark
    Don't worry too much. If you like to cook, the diet is not a big deal. Celiac is genetic and the highest risk factor for celiac disease is a first-degree relative that has it. If you turn out to be celiac, removing some wheat from your kids' diets would not necessarily be a bad thing.
  11. Skylark
    You need to know which DQ2 subtype, although you probably have DQ2.2 or 2.3 if Prometheus put you in a low risk group. Yes, it's possible to develop celiac with DQ2.2; it's just less common than with DQ2.5 or DQ8 so the gene is considered low risk. "Low risk" things happen all the time. Just ask BP. Remember that lab tests are only pieces of paper...
  12. Skylark
    Glad to be helpful. I disagree a little with the way Enterolab calls genes "gluten sensitive". Just about any genotype can end up biopsy confirmed celiac; however, some genotypes carry much higher risk. 99% of people with celiac disease are either DQ2 or DQ8 with 80-90% of celiacs having a form called DQ2.5. Enterolab labels everything but DQ4 as...
  13. Skylark
    I must be lucky. Fries at the BK near work have not made me sick. It's actually one of the "safer" foods when I don't bring lunch.
  14. Skylark
    You scared me about teabags. I did some Google searching and I can't come up with any manufacturer that uses an adhesive with wheat or gluten. I did come up with a couple people saying that it's an urban legend and the manufacturers seem to be trying to address people's fears. Got any solid info on the teabags?
  15. Skylark
    Yes, there is an association of autoimmune hypothyroidism with celiac disease. It fits together.
  16. Skylark
    Hi and welcome. My symptoms were intermittent too. Sometimes I would be fine, other times I would eat pasta and run for the bathroom a few hours later. Keep following up with the GI doctor. Once you have all the testing done, even if it comes up negative you have enough symptoms that it's worth trying the gluten-free diet. The false negative rate...
  17. Skylark
    Fooey. double-post.
  18. Skylark
    For me it was mostly stomach-aches with the casein and soy. Sometimes I would get cramping and diarrhea. Shellfish made me feel funny and lightheaded and sometimes triggered a mild asthma attack. The shellfish seemed more like a true allergy with histamine release, but my sensitivity still went away after I was gluten-free for a while.
  19. Skylark
    Your endoscopy and feeling better off gluten is enough for you to be reasonably sure some degree of gluten intolerance is at least part of your problem. Your genetic results with DQ2 are consistent with celiac/gluten intolerance. I assume your GI took a biopsy. Once you get those results you'll know a little more.
  20. Skylark
    You are not misinterpreting the info. You have the highest possible risk genotype for celiac, homozygous DQ2.5. I can't imagine why they told you that you didn't have the gene, as you have not one but two of them. When I saw a lecture by Markku Maki, the Finnish celiac expert, he said that in his clinical practice a lot of people with DQ2.5 feel better...
  21. Skylark
    What? Chamomile is naturally gluten-free. Loose chamomile flowers should be perfectly fine as long as they're not from a bulk bin.
  22. Skylark
    Not disclosing wheat ingredients is a violation of FDA allergen labeling rules. Here is how to report your reaction and Dannon's admission that there is undisclosed wheat in their product. Open Original Shared Link
  23. Skylark
    Isn't that an interesting quote? I was so fascinated when I was learning about Kali Yuga and read that. It's always a trick juggling my scientific training and learned skepticism with my inclination to Eastern spirituality. If you are born into Kali Yuga and your soul remembers better times, is it really any surprise that a food that is supposed...
  24. Skylark
    Sorry, but there isn't an answer. Doctors have not been able to decide how much gluten is safe for celiacs. There are gluten tolerance studies where biopsy-confirmed celiacs have eaten trace amounts of gluten daily and their intestines were OK on biopsy. They didn't always feel good during the study, though! Just be sensible and careful. There are...
  25. Skylark
    If she has a lot of trouble, it's best to stick to unprocessed, naturally gluten-free foods. Fresh fruits, fresh vegetables, dried fruits, plain nuts and seeds, and cheese are all naturally gluten-free, healthy snack foods. I love apples and peanut butter. For sweets, most good chocolate is naturally gluten-free, or get an ice cream without a lot of ingredients...
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