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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I'm sorry to hear that. Are you sure your only problem is celiac? You should be getting better if that was the only issue. Maybe you need a second opinion from a different doctor to figure out if something else is going on.
  2. Skylark
    ((( hug ))) I agree with cutting out dairy. Lots of celiacs react to it at first. You could also be getting into hidden gluten if you're eating out or using a lot of processed foods. Has your doctor tested your thyroid and B12 levels? Those are both problems in celiacs and can make you tired. As far as comfort food, I eat chicken soup when...
  3. Skylark
    Greenpear, I'm so sorry to hear you got ripped off. Have you reported this to any consumer organizations? You might try Quackwatch as well.
  4. Skylark
    Hi, there. If you had anti-endomysial antibodies in your blood, you need to be off gluten no matter what. Even if you have a normal biopsy, people with those antibodies usually eventually end up with intestinal damage. The celiac blood tests should fall to normal in six months to a year of eating gluten-free, so you can follow it up that way with your...
  5. Skylark
    I'm confused. Why does the the amount of time you TTC matter? The longer you stay on a gluten-free diet, the more your body will heal. It might even be the celiac damage that is slowing you down, since you've only been diagnosed for a year. You are young, with plenty of time to have children. If you're eating gluten for some reason, or taking a gluten...
  6. Skylark
    The monoclonal antibodies used in ELISA are IgG molecules produced by hybridoma tissue culture cells that are a result of fusing B cells from the spleen of an immunized mouse or rabbit with a myeloma cell line. In the case of a gluten ELISA, the animal would be initially immunized with injections of gluten so that it produces a mixture of anti-gluten antibodies...
  7. Skylark
    Hi. I'd like to help but "this bloodwork" isn't much information. What was done and what were the results?
  8. Skylark
    I've done pasta salads with Tinkyada and it was fine the next day. I used the brown rice spirals, cooked well. I haven't had Tinkyada get hard, but I have had it fall apart a little the second day. I don't mind too much.
  9. Skylark
    Wow! I hope the ride goes great for you!
  10. Skylark
    And you think that's unique to SA? LOL! I've had people tell me I could eat pasta because it's made of "flour", not wheat. The expression they get when you ask what the flour is made of and they figure it out is genuinely funny.
  11. Skylark
    I thought the test in low IgA people was anti-gliadin IgG? The newest test is anti-deamidated gliadin IgG and it's supposed to be really good. You might also ask your doctor for the HLA genetic testing. It doesn't rule out celiac, but it gives you an idea of the risk for celiac vs. Crohn's. Yes, other conditions can cause villous damage on biopsy and...
  12. Skylark
    Actually, some folks convert T4 fine. I'm one of them. One of the doctors trying to dignose my fatigue had free T3 done. Note that he missed the actual cause of the fatigue, which was celiac.
  13. Skylark
    I've gotten glutened so many times at "hole in the wall ethnic places" that I have completely given up. I used to love restaurants like that but I just can't get past the language barrier. There are gluten free cards you can print and try. Open Original Shared Link At really good restaurants, I have been treated extremely well and gotten good food that...
  14. Skylark
    Glad to be of help. This abstract might help a little. Open Original Shared Link It is done by a famous Finnish celiac researcher named Markku Mäki. In it he shows that people with high anti-endomysial antibodies and a mild damage biopsy like yours go on to develop a fully celiac biopsy if they keep eating gluten. People who were in the group ...
  15. Skylark
    I just wrote off for a very interesting article showing effects of alpha-gliadin peptides on a tissue culture line of intestinal cells. The alpha-gliadin triggers a pro-inflammatory cytokine called tumor necrosis factor alpha. The article is so interesting because as you are saying it hints at non-celiac pathways for gluten inflammation.
  16. Skylark
    Your doctor is being ultraconservative. To answer your question, anti-gliadin IgA can show up in normal people. Anti-tTG antibodies can show up in other conditions like rheumatoid arthritis. Anti-endomysial antibodies are pretty diagnostic for celiac disease, especially if you feel better off wheat. Your doctor wants to see the levels fall because that...
  17. Skylark
    You really need to work with a doctor and get celiac tests and a full medical workup for the chronic fatigue and GI trouble. Celiac is not the only thing that can cause bowel issues and there are some things like Crohn's that need to be ruled out.
  18. Skylark
    I understand you're looking for a little validation, but of course it's good news that others in your family are not celiac. With celiac, there seems to be a necessity for a triggering event. In your case it could have been the Giardia infection. Developing celiac seems to take some time so the blood work does not always come back positive for celiac right...
  19. Skylark
    The desire to stay gluten-free comes very naturally when you start feeling better! Remember you can always change your mind. I bet you won't want to, though.
  20. Skylark
    Perhaps I misunderstood your post. When you wrote: I though you were confused as to how an ELISA could test for a protein like gluten, rather than testing for the presence or absence of antibodies in someone's blood. The Wikipedia I article I linked above explains how the various ELISAs work in great detail. Antibodies used in an ELISA where you...
  21. Skylark
    The McDonald's fry issue has been hashed and rehashed. Foods that are below the 3 ppm ELISA detection limit have been shown to be safe for celiacs in terms of not causing serum markers or villous damage by multiple studies. This includes things like <20 ppm wheat starch (NOT 200 ppm codex stuff), "gluten-free" products like Amy's pizza, and McDonald...
  22. Skylark
    I don't make any suggestions to friends and family, but I'm pretty open about the diet and how much better I feel. In the past couple years, three people (including my Mom) have decided to try going gluten-free and felt a lot better. Thing is, it's a hard diet. If you push, people resist. If they talk to you, make the connection with their own symptoms...
  23. Skylark
    I love these bars. The packaging changed recently and there is a big, blue "gluten free" label right on the front of the box! Here's a blog with a photo of the new boxes. Open Original Shared Link
  24. Skylark
    Hi and welcome. My "look out" is for well-intentioned friends and family. Always read labels yourself and offer to help cook. I have had friends tell me things were gluten-free, but the manufacturer changed something, or they missed a gluten ingredient.
  25. Skylark
    Here you go. Open Original Shared Link From the article: Summary Gluten sensitivity is a systemic autoimmune disease with diverse manifestations. This disorder is characterised by abnormal immunological responsiveness to ingested gluten in genetically susceptible individuals. Coeliac disease, or gluten-sensitive enteropathy, is only one aspect of...
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