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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark

    ARCHIVED Glucose Syrup

    Skylark replied to conniebky's topic in Doctors

    In the US glucose syrup is usually made from corn. It couldn't hurt to double-check with your doctor before Saturday to be sure.
  2. Skylark
    I've never had trouble at Wendy's. I like to get a small chili and a baked potato. I agree about calling corporate and the health department if that particular Wendy's is recycling burgers into the chili.
  3. Skylark

    ARCHIVED Pf Changs

    Skylark replied to modiddly16's topic in Gluten-Free Restaurants

    PF Chang is safe for me too. I've never done carry-out there so I don't know how consistent they are about labeling. In the restaurant, they use a different plate so you know for sure. In the street noodles, it's probably the kind of soy sauce. You got the best part of the meal anyway. The street noodles are good, but the lettuce wraps are to...
  4. Skylark
    The only way you would react to steam is if you have an allergy to inhaled wheat. You have to eat the gluten to have a celiac reaction. You'd have to be careful with the cooking water and I find it hard to get all the traces of pasta off colanders. I'd be afraid to use the same colander to strain gluten-free and regular pasta.
  5. Skylark
    Yes, decide about a biopsy, then try the diet after it's done if you are getting one. It's really the only way to be sure. There are plenty of people with negative bloodwork and biopsy who still feel really crummy when they eat gluten.
  6. Skylark
    I agree. Get a celiac panel. The idea of telling your dermatologist that your GP retired and you didn't get a chance to talk to him is good. Then try going off gluten no matter what it says! You have nothing to lose trying a gluten-free diet yourself for a couple months once the diagnostic process is done, and there are a lot of people with your kinds...
  7. Skylark
    Stop eating gluten. I bet you feel 100% better off the stuff. You're not celiac... yet. It's possible for folks who are gluten-sensitive and continue to eat wheat to develop full-blown celiac disease which you don't want. The celiac autoimmunity predisposes you to other autoimmune problems.
  8. Skylark
    Depression is a well-known effect of celiac disease in places like Finland where celiac is common. Over here, doctors don't know that. Some of us get anxious too. Horrible, free-floating anxiety is a symptom of gluten exposure for me. The depression should resolve as the effects of your gluten-free diet kick in and your immune system settles down. ...
  9. Skylark
    For starters, you need to make absolutely sure you are consuming no gluten. If you're sure, you need to talk to your doctor about small intestinal bacterial overgrowth (SIBO), microscopic colitis, and refractory sprue. Fortunately, I don't think you see low anti-TTA antibodies with refratory sprue. Good luck.
  10. Skylark
    Ugh. I know more about anxiety than I'd like from personal experience. So sorry to hear you're going through it too. Someone who can't tolerate SSRIs should not take St. John's Wort. 5-HTP may be helpful, but it's more antidepressant than anxiolytic. I'd strongly recommend you look into inositol and fish oil. Inositol works wonderfully for anxiety...
  11. Skylark
    I found my gluten sensitivity with an elimination diet. It worked great! I ate pretty much only lamb, rice, and leafy greens for about two weeks. My stomach totally settled down and the diarrhea my doctors could never explain vanished. What I found is that I was reacting to gluten, soy, and cow casein. Soy gave me stomach aches, but not as much trouble...
  12. Skylark
    Sounds familiar. My doctor offered tests but I just wasn't interested in eating wheat again. It makes me too sick. You sound more like you have a wheat allergy than celiac. The instant mouth irritation is called oral allergy syndrome and is a true allergy. You can read about it online. Wheat is an unusual trigger for oral allergy syndrome, but it...
  13. Skylark
    I've been watching too. I'm glad to hear that the CT didn't turn up anything bad. We're all waiting for EEG news with you! Fingers crossed.
  14. Skylark
    These people don't WANT to get it. They don't care about celiac, and really they don't care about you. They care about appearing like the nice, sharing, generous person who makes sure you get a slice of pizza. The way to get around it is usually to make a big deal of the offer. "Thanks so much. You were so kind to think of me. No, I really can't eat that...
  15. Skylark
    That's great news. I'm so glad your hubby and daughter were supportive and you all worked things out!
  16. Skylark
    It took vitamins and fish oil for me to overcome the anxiety and depression too. I take an amino acid chelated supplement called EMPowerPlus from Open Original Shared Link It's very much like the supplements they add to animal feed. Farmers have known for years that you have to chelate vitamins to get them into an animal! EMPowerPlus is expensive but...
  17. Skylark
    I used to bake wonderful rye and 100% whole wheat breads with a couple teaspoons of vital gluten added to the dough. The gluten helps the texture of the dough so the bread gets light and fluffy. When I think back to that time, I remember how horribly tired and depressed I was. Poison in a box for sure!
  18. Skylark
    I get anxious when I'm glutened too. It takes at least three days for symptoms to subside, sometimes longer. You'll feel better soon.
  19. Skylark
    Most of the really skinny, pale folks in health food stores are protein, iron, and vitamin deficient from incorrect vegan diets. It's interesting to see how many people are really rude about insisting you eat something. "No thanks" should be plenty of answer. A devilish side of me always wants to ask "Didn't your mother teach you not to be so nosy?"...
  20. Skylark
    I wouldn't trust oat bran unless it's made from certified gluten-free oats. Oats have terrible CC issues because of wheat growing in the oat fields. Also some celiacs are sensitive to oats in the first place.
  21. Skylark
    I have a really tough time telling stomach viruses apart from gluten reactions. Could you just be sick?
  22. Skylark
    Not celiac-related, but red ink seems most troublesome for hypersensitive folks.
  23. Skylark
    I use potato starch for thickening.
  24. Skylark
    I've looked at that CV. It's on the Enterolabs website as well. Don't you find the total and complete absence of any attempt to validate his position on fecal antibodies and celiac disease worrisome?
  25. Skylark
    Congratulations on feeling better! I self-diagnosed with an elimination diet. After I'd been gluten-free for a few months I told my doctor that I though I was probably celiac. He agreed when he heard all the problems that went away and offered blood tests if I did a gluten challenge. When he told me how much wheat I would have to eat, I laughed at him...
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