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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Hammers are so tempting... Did you try clearing your browser cache?
  2. Skylark

    ARCHIVED Flatulence

    Skylark replied to VOZDUK's topic in Coping with Celiac Disease

    My mom fixed it by limiting fructose. She's both gluten intolerant and has fructose malabsorption. The fructose is much worse for gas in her case.
  3. Skylark
    Bring him this article. It is a particularly powerful study because they followed people for a few years and a few people who were not celiac developed the disease. Open Original Shared Link It will look nicer if you use the PDF link at the top right-hand side of the page and print from that.
  4. Skylark
    You can be intolerant to lactose, casein, or both with celiac and a damaged gut. A lot of celiacs go off milk until they feel better. I was casein sensitive but did OK with goat dairy. I was able to eat cow dairy again after about nine months.
  5. Skylark
    Three things. 1. Outright bribery. This is becoming less common and leading to criminal cases. Some doctors' offices also fight back. I was in the hospital once and there was a box of fancy cookies out in the waiting room. Turns out a drug company rep had dropped it by and the staff wasn't allowed to accept them (and really didn't want them). Open...
  6. Skylark
    1. Bob's gluten-free Biscuit and Baking mix. Garbanzo bean flour? What were they thinking? 2. Ener-G bread. I'm right there with everyone else. Yuck. 3. Redbridge beer. I guess I shouldn't have been surprised since I didn't like normal Anheuser-Busch beers before I went gluten-free. Bud and Miller? Ewwwww. They describe it as having a "distinctively...
  7. Skylark
    I was bipolar, on meds and having all sorts of problems. Off gluten, I am stable, off meds, years-long insomnia problems gone, and my psychiatrist declared me "in remission" over four years ago. I do require fish oil and a really good multivitamin to feel really well.
  8. Skylark
    OMG, OMG, OMG. You just explained my awful asthma attacks after repairing and repainting my kitchen walls! I couldn't figure out why the particular paint I was using was making me so sick when paint is usually fine with good ventilation. Bah. Nevermind. I just checked and this particular brand has no starch. Wonder if I'm allergic to something else...
  9. Skylark
    I'm sorry, Prisskitty. I didn't mean to hijack your thread with biochemistry but I learned so much at a recent symposium I'm wanting to share the information and answer Wheatchef's question. I'm afraid this post won't be helpful unless you've delved into the details of the immune system and intestinal epithelium. The induction of celiac disease involves...
  10. Skylark
    It's a marker for lots of conditions, including Graves' Disease, Hashimoto's Thyroiditis, hypothyroidism, or rarely thyroid tumors. When I came up over 200 for anti-thyroglobulin after lifelong hypothyroidism my doctor was not concerned and diagnosed Hashimoto's. Congrats on the gene test results. I'm thinking of getting them myself but I wonder what...
  11. Skylark
    I felt better after two weeks of a really strict lamb/rice/veggies elimination diet. When I tried to reintroduce wheat, my symptoms came right back.
  12. Skylark
    So you go with the fairly radical view that nobody with DQ2 or DQ8 should eat gluten? I don't think that's substantiated in the biomedical literature. The problem with a blanket recommendation is is that there seems to be a requirement for an inductive event that triggers tTG in the gut and makes the really allergenic deamidated gliadin epitope. The view...
  13. Skylark
    Markku Mäki is sort of a "rock star" in the celiac research world. I was fortunate enough to see a 45-minute talk by Dr. Mäki as part of a celiac research symposium. He spent a lot of time talking about the spectrum of celiac disease, including latent disease and the breadth of HLA-mediated gluten intolerance. He said he's being laughed at (again) because h...
  14. Skylark
    When I was living with a BF we kept the kitchen gluten-free except for beer. I did most of the cooking anyway, but when he cooked he was really cool about making gluten-free food for us. He didn't like to see me sick. He got his pizza, burgers, and whatnot eating out with friends.
  15. Skylark
    My "IBS" went away when I stopped eating gluten. Mom's "IBS" went away when she stopped eating fructose. I have a friend with "IBS" who is intolerant of soy and nightshades. It seems to me that IBS is a symptom of a lot of different food intolerances.
  16. Skylark
    You are grieving. It's a normal process and will pass. There is no use beating yourself up. Awareness of gluten intolerance and celiac is very new, and is changing people's lives for the better. Doctors were not picking up all but the classic cases of childhood celiac until recently, so why would you figure it out? As for losing years of your life...
  17. Skylark
    Celiac is a very specific clinical entity, where your intestine is damaged with an autoimmune reaction. There are often autoimmune antibodies in the bloodstream, and the gold standard for diagnosis is an intestinal biopsy showing damage. Doctors will also diagnose a blistered, itchy rash called dermatitis herpetiforms (DH), or a neurological problem called...
  18. Skylark
    Um... The genes are not considered diagnostic by the American Gastroenterological Association. About 30% of the population has DQ2 or DQ8, but only about 1% is celiac. The Enterolab antibody tests are not accepted by the general medical community either because of the tremendously high false positive rate. If waving around a piece of paper your mom isn...
  19. Skylark
    Some people do not absorb fructose well and they get flatulence and sometimes cramping or diarrhea from it. It's called fructose malabsorption and is very much like lactose intolerance. The flatulence and cramping is from intestinal bacteria using the fructose instead of your body and releasing hydrogen. You might try eating salad greens a couple days...
  20. Skylark
    Maybe this will cheer you up. It's the blog of a French pastry chef who has family members with celiac disease and is constantly working on new gluten-free recipes. You absolutely do not have to give up baking! Open Original Shared Link
  21. Skylark
    I do not buy Food For Life products because their labeling is confusing and has been deliberately misleading in the past. They were calling their spelt breads "wheat free" until an FDA crackdown forced them to recall the breads and relabel. As you found in your "stomach ache" email, the company does not seem to care much about consumer health issues. ...
  22. Skylark
    Your GP is an idiot. It sounds like you need to call the GI doc and talk to him about this gluten challenge. I didn't realize you were risking an ER visit when I offered support. That doesn't make much sense.
  23. Skylark

    ARCHIVED Anxiety

    Skylark replied to AliSha097's topic in Coping with Celiac Disease

    For me, there is some GI trouble, then 24 hours later I have 2-3 days of anxiety and depression. I have trouble sleeping, wake up in the middle of the night worried about weird things, occasional random spurts of adrenaline, and even crying jags and feelings of helplessness and hopelessness. I have had some counseling from a professional psychologist...
  24. Skylark
    I think everybody tests their tolerance to gluten. You'll laugh because my last real test where I ate bread was at Jack-in-the Box. Talk about not worth it! Some of us fare worse than others when we are inclined to test. To have a shot at a "your villi are damaged" diagnosis, you would have to eat gluten for a couple months to do enough damage that...
  25. Skylark
    I don't guess you're lucky enough to have a PF Chang's nearby? Maybe I'm lucky but I haven't gotten glutened with sushi. I order simple things like sashimi and rice, edamame, tuna roll, or nigiri. I make sure they don't "decorate" my rolls or plate with shreds of fake crab meat. Martialartist - the celiac diet is a pain in the butt, no question about...
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