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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Thyroid is the first, most obvious thing.
  2. Skylark
    What I've read is 4 slices of bread worth a day for a month. From your description you risk making yourself really sick doing that. Someone mentioned Enterolab. You'll almost certainly come up "gluten sensitive", which you already know. The so-called "celiac" stool tests at Enterolab are not specific for celiac and you don't even know your chance...
  3. Skylark
    Your doctor can and should rule out Crohn's and diabetes. This can be done while you are on a gluten-free diet. Judging by what you've already said, it sounds like a good part of the problem is gluten. If you feel like you need the testing for family or because you want to be able to eat gluten occasionally, then eat a bunch of wheat for a month and...
  4. Skylark
    My friend started taking 15-minute readings after a sugar challenge. She read labels and tried to eat about 75g of sugar with a mix of fruit juice and a sweet cereal. Normal range is less than 140, pre-diabetic is 140-200, and diabetic is strictly defined as over 200 after 2 hours. My friend's sugar jumps fast, climbing to 160-170 within an hour. She has...
  5. Skylark
    Hi, IngridBeth If it hurts you, don't eat it! Some doctors encourage people to get a "diagnosis" by eating gluten to get all the tests done. If your body reacts really badly to gluten and you plan to go gluten-free anyway, there is no point in torturing yourself. Some people do notice gluten "withdrawal". I felt so much better off gluten it was never...
  6. Skylark
    You need to make absolutely sure you are not dealing with a GI bleed. If you have an urgent care program available on your insurance, it would be good to go in today. Some insurance programs also have an 800 number where you can call and talk to a nurse. If you can't do any of that, get on the phone with your doctor's office tomorrow.
  7. Skylark
    Congratulations! Soy is worth looking at, as is milk. You also might find a probiotic helpful. I don't know much about pregnancy and probiotics so you should talk to your doctor first. Crushing/liquid vitamins shouldn't matter with a GOOD vitamin. They're formulated to dissolve quickly and easily and generally chelated so they're absorbed better...
  8. Skylark
    Your symptoms sound gluten-related to me, including the bipolar II. It's hard to get the antibodies to show up, and lots of people are gluten intolerant without being celiac. There ARE people who are gluten intolerant without DQ2 or DQ8 so even the genetic tests don't rule out gluten sensitivity. The only way to know for sure is to try the diet strictly...
  9. Skylark
    Fiercelaststand, your story is not as unique as you think. Mine's in my profile. Lifelong stomach trouble, anxiety, canker sores, borderline anemia, fatigue, thyroid problems, depression in my early 20s. Prozac made me bipolar and I ended up on lithium and depakote which barely worked. (Obviously I know now that's because the underlying cause was gluten...
  10. Skylark
    "In your head" is not a helpful way to think about your reactions, as your mind and body are rather intimately connected. Try something like EFT that's designed to "shut down" anxiety quickly. Open Original Shared Link I have a psychologist friend who swears by it for patients who experience the sort of things that are happening to you. Note that you...
  11. Skylark
    Glad to hear you're feeling good! I hope you sort out the diet issues without too much confusion. It can be so hard to track down things like soy!
  12. Skylark
    I'm so sorry to hear about the fatigue and depression. I've been through that and it's terrible. Your neuropathy sounds diabetic. It *could* be gluten, but there is growing evidence that people who have high spikes in blood sugar after meals tend to develop neuropathy. I have a friend with neuropathy who picked up a drugstore glucose meter and started...
  13. Skylark
    Beer always wrecked me too. If you feel better eating gluten-free it's not in your head. I'm glad to hear you figured out something that helps you feel better. The full stomach/cravings and feeling starved is thought to be your body wanting particular nutrients it can't get because of malabsorption. You might feel even better on a good vitamin...
  14. Skylark
    There are different levels of gluten sensitivity among people with celiac disease. Looking for gluten ingredients on labels is fine for most celiacs. If your daughter starts having unexplained reactions to processed foods or her antibodies don't go down, that's when you have to be more cautious about cross-contamination on manufacturing lines and in kitchens...
  15. Skylark
    Unfortunately, fructose malabsorption is thought to be genetic. People with fructose malabsorption don't have enough of the carriers that transport fructose across the gut so they don't absorb it well. My understanding is that it's life-long. Mom has always gotten stomachaches and IBS symptoms from fruit. She just didn't know why. My mom eats pretty...
  16. Skylark
    My mom has fructose malabsorption, which can cause gas and diarrhea. It's sort of like lactose intolerance only with fructose. She has to avoid high-fructose corn syrup, honey, and most fruits to stay comfortable. She can eat things made with sucrose or dextrose comfortably. Sorbet and ginger ale would both have HFCS, and the Arctic Rush might too.
  17. Skylark
    It can take a couple months for non-GI symptoms to go away. I wouldn't declare gluten-free a flop until you've been strict for at least two months and had no improvement at all. To be honest, I saw your other post and wasn't sure about gluten intolerance. I'm not a doctor, so I don't really have much to offer but I do hope you get things sorted out.
  18. Skylark
    This is SO true! Mine unerringly locates fruits and veggies in break rooms and stashing Larabars in my desk is now second-nature. I don't go anywhere without an "emergency Larabar" in my purse.
  19. Skylark
    The Mayo Clinic isn't good enough for your doctor? The founder of Enterolab used to do microscopic colitis research and found a lot of overlap with microscopic colitis and celiac disease/gluten sensitivity. Open Original Shared Link Remember that you do not need a formal diagnosis to try the gluten-free diet. You are in control of what you eat, not...
  20. Skylark
    The moderators here are really good. The go through everyone's posts at first to make sure people aren't posting inappropriate stuff. Eventually they'll turn off the post-by-post moderation and you won't see any delay. It's SO worth it to wait a little while to be part of such a well-run board.
  21. Skylark
    Bah... this thread is really old. Wish I could delete a post.
  22. Skylark
    Enterolab tests are not designed to distinguish between a person with celiac sprue and villous atrophy and someone who simply feels crummy when they eat gluten. They are deliberately designed with high sensitivity and low specificity in order to "flag" very mild forms of gluten intolerance and possibly very early celiac. You would need a doctor to do anti...
  23. Skylark
    I take it you didn't click the link I provided to read the letter from Nestle? You really, really, really need to write Nestle and see if they're still using a malt-based "natural flavoring". 1 ppm gluten is low enough to label guten-free and good enough for many celiacs but not all. Cross-contamination is also an issue that makes some folks sick. Did...
  24. Skylark
    She does sound like she could be gluten-sensitive. Yes, depression is sign of gluten problems, as is the feeling sick after eating wheat and the constipation. She also sounds like the depression is inadequately treated. For folks with gluten-caused depression antidepressants are a bit of a "band-aid" but they can still be very helpful. Anger problems and...
  25. Skylark
    Not everyone does well on only Synthroid. Has your endocrinologist looked at your free T3 and reverse T3? You may need cytomel to get rid of your hypothyroid symptoms if you've been a month on Synthroid and your TSH is properly suppressed.
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