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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Heh. We have a different idea of good beer! Glad you found something you like. I think you saved me some money trying Estrella. I find Redbridge far too light with no real body and Budweiser is not to my taste for the same reason. About the lightest beer I used to drink was Samuel Smith Nut Brown Ale. I'm sure that's well above 20 ppm gluten...
  2. Skylark
    Just to straighten out a misconception, celiac genes are not "mutations". They're normal genes that are present in about 30%-40% of people with Northern European ancestry. The genetic tests do not "prove" anything either. They only give you an idea of risk. About 1 in 200 celiacs do not have the so-called "celiac" genes. I do hope you get good information...
  3. Skylark
    I know this sounds weird, but a little alcohol will take the edge off my evening sugar cravings. Something like a half-glass of wine or a little scotch does the trick. Unlike sugar, I don't crave alcohol so once I've had one small drink I'm done.
  4. Skylark
    The "gluten defense" style enzymes and all the DPP IV products are a scam. There is nothing available right now that can help detoxify gluten. There is an enzyme-based drug in clinical trials, but it's not based on DPP-IV. Enzymes and probiotics are totally different things. Enzymes are isolated proteins that perform chemical reactions like cutting up...
  5. Skylark
    It's funny. I switched psychiatrists close to when I stopped needing meds. He told me that my bipolar episodes were almost certainly caused by the SSRI antidepressants. I was on Prozac for many years before my first manic episode so it fits. I don't think I have any other signs of mito problems. The Hashimoto's is so strongly associated with celiac that...
  6. Skylark
    None of the tests are 100% reliable. Listen to your body. It sounds like yours does not like gluten! I would definitely go back to gluten-free. If you feel better again (and I hope you do!) you will have your answer.
  7. Skylark
    Bummer. So sorry to hear you're depressed and anxious. I hate feeling like that. Did you start any new meds lately, or start taking any supplements? You do have a "big 8" allergen on that meal, the fish. A food diary is writing down everything you eat and how you felt that day. You look for patterns. It's hard to sort out delayed reactions though...
  8. Skylark
    Welcome to the permanently gluten-free club. I never did gluten challenge for blood tests, as the stuff makes me too sick to care whether or not I'm celiac. I hope you feel better after the gluten reaction and continue to feel well gluten-free. By the way if you get the TTG test done right away you might still catch some antibodies since you've only...
  9. Skylark
    Hi, Mary I'm glad you found something that helps your migraines. You're not crazy about your skin. Almost anything in your body can be affected by a gluten intolerance. Yes, you can feel better quickly if you stop eating a food you're intolerant to. Before you go gluten free for long, you need to decide if you want to get tested for celiac disease. ...
  10. Skylark
    Celiac is well researched. There are two genes that show up in 99% of celiacs, HLA-DQ2 and HLA-DQ8. You can be tested for them, as can your daughter. Thing is, the remaining few celiacs do have different genes. There are three antibodies that cause trouble, anti-gliadin and two autoimmune ones, anti-TTG and anti-endomysial. Any of the three can show...
  11. Skylark
    I hate to be such a relentless skeptic, but that one is just someone trying to sell something. Notice it's not referenced at all and the list of "type IV" symptoms is very generic. Got an "overall feeling of ill health"? Order our "Empowerment System" only $139.95/month. May I suggest you steer clear of commercial sites for your information?
  12. Skylark
    I'm really confused. 125 mcg is enough in some people to completely replace the thyroid your body makes. How did you get on a dose that high in one country and are totally not treated in another? You definitely need to get a referral to an endocrinologist.
  13. Skylark
    You never want to use essential oils on broken skin. It's just begging for sensitization. The starch/baking soda mix is fine until everything is healed up.
  14. Skylark
    You're on thyroid pills with TSH 3.6? I thought the latest thinking for us folks on thyroid pills was that TSH should be pushed down to 1-2. Maybe you need to get referred to an endocrinologist to get the right dose if you're feeling sluggish, non-motivated, and gaining weight. My TSH had crept all the way up to 5.0 and I was depressed and gained 10 lbs...
  15. Skylark
    If the volatile organics are an issue, you would react to a LOT more than wheat. The compounds in that PDF you linked are in all sorts of plants. They are not going to be unique to wheat. The story of the celiac who couldn't be in a pizza parlor kitchen is very interesting.
  16. Skylark
    My local chain grocery store carries one of these 100% rye breads. I was eating it too, when I knew I couldn't have wheat but didn't realize gluten was the problem.
  17. Skylark
    Looks sort of like my story too, especially the depression. Doctors never even suspected celiac. If you don't get a diagnosis, you can try the diet on your own. It sounds like you'd eliminate gluten, dairy, and soy for starters.
  18. Skylark
    "Intraepithelial lymphocytic infiltration" and "significant infiltration by lymphocytes" means you have immune system cells that have moved into your intestinal lining, where they wouldn't normally be. "Infiltration" sounds sort of like a spy movie term! Those are the cells that are responding to the autoimmune celiac disease signals and damaging your intestines...
  19. Skylark
    You're welcome. Yes, one step at a time. I never went though the diagnostic procedures at all. Gluten makes me sick, so I don't eat it.
  20. Skylark
    For me it wouldn't be a problem. I'm sensitive but not THAT sensitive.
  21. Skylark
    Hi there. Yes, you might have celiac. Based on the saliva results you can probably get a doctor to order a celiac blood panel. If you want a diagnosis of celiac, you need to keep eating gluten until the blood panel is done and your doctor has decided about a biopsy. Once you finish whatever testing you want, you might try the diet. A lot of people...
  22. Skylark
    Yes, celiac is autoimmune, however ANA is not part of celiac. It is good not to have ANA, as they're associated with lupus and rheumatoid arthritis. The tests for celiac are anti-gliadin IgA (AGA/IgA), anti-tissue transglutaminase IgA (TTG/IgA), and anti-endomysial IgA (EMA/IgA). Intestinal biopsies are also done to look directly for villous atrophy...
  23. Skylark
    You're welcome. Yes, watching your son for celiac really makes sense. I really hope going gluten free after your biopsy helps you feel better!
  24. Skylark
    Hi, Jen and welcome. I'm sorry to hear about all your daughter's problems. That sounds so rough. You know, you might wonder about the crackers but if you hadn't found something you could keep down you might have lost her entirely. You can't second-guess that sort of thing. 1. As far as gluten symptoms, some folks react right away, while others get...
  25. Skylark
    There's always Enterolab.com. I imagine if you're still eating a little gluten you'll come up positive there. Most folks do, as the tests are set up to be sensitive at the expense of specificity. They are NOT diagnostic, but maybe seeing a positive stool result or gene test would help you accept that the diet is working for you? Fair warning - friends...
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