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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Skylark
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ARCHIVED Wild Fermented Foods Health Benefits
Skylark replied to YoloGx's topic in Coping with Celiac Disease
Thanks for the kind words. As far as elimination, Failsafe is relatively easy. I'm fond of lentils and rice, and the permitted veggies include green beans and brussels sprouts. I really just want to feel better. I don't care what it takes. I've never had low potassium bloodwork. As for the fermented foods, two good-sized heads of cabbage will make... -
Does Anyone Know How To Kill Or "inactivate" Gluten?
Skylark replied to mamaupupup's topic in Coping with Celiac Disease
To be honest I didn't go to extremes either. I scrubbed the kitchen, replaced a wooden cutting board that badly needed to be replaced, my wooden spoons, and an ancient toaster oven that I'd been looking for an excuse to replace. I threw out some plastic storage containers that were scratched up and also really needed to go, and replaced any condiments that... -
ARCHIVED Kind Of Confused...
Skylark replied to Ninja's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Most of the stuff I've read recently on B12 says that you need other tests like homocysteine to tell if you're deficient. I think this CDC article explains it well. Open Original Shared Link -
It's an herb. I learned about it in a French cookbook and decided I liked the flavor. My local Safeway carries it. Open Original Shared Link
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Does Anyone Know How To Kill Or "inactivate" Gluten?
Skylark replied to mamaupupup's topic in Coping with Celiac Disease
NOTHING will "deactivate" gluten and I'm sorry but most of your statements are scientifically incorrect. Gliadin, like all proteins, does not break down readily. "Inactivating" or hydrolyzing gliadin takes boiling it in acid, using very specific barley enzymes which are not readily available in the US, or heat above 500F (i.e. charring it). I think you... -
Does Anyone Know How To Kill Or "inactivate" Gluten?
Skylark replied to mamaupupup's topic in Coping with Celiac Disease
I don't see how rubbing alcohol is any more or less dangerous than other cleaners like bleach, ammonia, or Lysol. Potato vodka does not have a high enough alcohol% to get the chemistry we're looking for. Everclear 151 would work fine but sheesh, it's expensive. You could have fun while cleaning though. A little for the counters... a little for me...... -
ARCHIVED Wild Fermented Foods Health Benefits
Skylark replied to YoloGx's topic in Coping with Celiac Disease
There are a lot of people (like me) who got suckered into ignoring amine/salicylate reactions as "detox". I am not having so-called detox reactions from the very pure VSL#3 despite the very high bacterial count. I think perhaps detox reactions from probiotics are not as common as the alternative health literature would have us believe. -
Does Anyone Know How To Kill Or "inactivate" Gluten?
Skylark replied to mamaupupup's topic in Coping with Celiac Disease
If you want the scientific answer, use 70% rubbing alcohol. Gluten is soluble in 70-80% alcohol. I'd follow up with a standard counter spray. -
ARCHIVED Who Really Should Not Eat Gluten.
Skylark replied to Lisa's topic in Publications & Publicity
Wow, yeah. I hope you are getting organic, non-GMO rice. -
ARCHIVED Can Gluten Sensitivity Go Away?
Skylark replied to basilicious's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Glad we got that sorted out! Your neuro does seem more on point. It seems like neurologists are really catching on to celiac/gluten intolerance. I have a friend whose neuro suggested her idiopathic neuropathy could be gluten. Sure enough, it was. I really hope being on a "celiac safe" diet starts to help with your health issues. -
ARCHIVED Who Really Should Not Eat Gluten.
Skylark replied to Lisa's topic in Publications & Publicity
I find the posts from people who can eat bread in Europe and not in the US extremely interesting. There may be a lot more people reacting to GMO grains than we realize. There is too much emphasis on "diagnosis" in this country and too little actual healing. Companies are victimizing people who have unknowingly bought into the Western medical emphasis... -
ARCHIVED Who Really Should Not Eat Gluten.
Skylark replied to Lisa's topic in Publications & Publicity
Me, Nora, Researchmomma and the other folks on the board who read the peer-reviewed literature and explain over and over that fecal/salivary testing is unreliable weren't enough? -
ARCHIVED Who Really Should Not Eat Gluten.
Skylark replied to Lisa's topic in Publications & Publicity
Good stuff, Lisa! Thanks for sharing. Very interesting that Peter Green notes that gluten sensitivity can be more severe as far as symptoms than celiac. -
I kinda cheated on that one. I seed my lawn with annual ryegrass in the winter so it's a familiar plant.
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I don't think ryegrass is the same plant as rye. It should be fine. Open Original Shared Link
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ARCHIVED Question About Triggers
Skylark replied to kvanrens1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is also possible to be celiac/gluten-intolerant from birth. In China she may have been getting rice gruel. You feed her wheat and out comes a rash. It does sound like the stress of moving might have triggered the second rash. Stress can trigger all sorts of medical conditions! Have you taken her off gluten now that the testing is done? I sure hope... -
For flavoring try savory, parsley, and black pepper. I do pot roast that way sometimes. You could also make a sausage-like flavor with sage, rosemary, and pepper. I don't know about filler because I never think to make meatloaf.
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You don't have to eat margarine. Have nut butter on your toast, olive oil on veggies, and use coconut oil for baking. If you are not highly sensitive to dairy, you may also be able to eat ghee.
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ARCHIVED Wild Fermented Foods Health Benefits
Skylark replied to YoloGx's topic in Coping with Celiac Disease
I have some SCD perspective too, though I was on full GAPS. I was on it a few months but all the amines from bone broth and fermented food seem to be giving me trouble. I did eat a little rice. Rice a couple times a week seems optimal. I'm trying Failsafe elimination diet now, to see if the issue is food chemicals. The diet is pretty restricted and... -
ARCHIVED Road Tripping? How Do You Do It?
Skylark replied to kb27's topic in Traveling with Celiac Disease
By the way, have fun!!! Have you planned your route yet? Are you going I-40 or I-70 to visit the Grand Canyon? -
ARCHIVED Road Tripping? How Do You Do It?
Skylark replied to kb27's topic in Traveling with Celiac Disease
Grocery stores and a cooler. My family has always done road trips that way. Good restaurants are expensive and we usually have better stuff in our cooler than is offered at Denny's or fast food. We pack bread, lunch meat, cheese, mayo and lettuce for sandwiches, fruit, carrots and celery, crackers, nuts, and chips. You can fill the cooler with... -
ARCHIVED Horrible Symptoms Return After Years Of Feeling Well
Skylark replied to BornTooSoon's topic in Related Issues & Disorders
Funny you should mention the timing of it. I'm feeling so yucky after breakfast I'm tending to skip it. It doesn't seem to matter what I eat. I've tried different foods, and even weirder the same foods I'll eat at breakfast don't bother me later in the day. -
She's celiac. I agree with what other people have said. Stick to easy foods. Fruits, vegetables, meat you cook yourself, rice, potatoes, sweet potatoes, plain nuts (not flavored or dry-roasted), dried or canned beans. You will find whole foods easier to digest than processed foods and you don't have to get all worried about finding gluten on labels...
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ARCHIVED Struggling To Lose Weight...
Skylark replied to Dee777's topic in Related Issues & Disorders
Congrats on finding something that works for you! -
As far as I'm concerned, margarine is not food. Instead of hydrogenation now they're using a process called trans-esterification, which produces a whole new class of unnatural fats. These fats are assumed to be safe, much like trans-fats were thirty years ago. If you eat margarine you are unwittingly participating in yet another giant food safety experiment...