Jump to content

Skylark

Advanced Members
 View Profile  See their activity

  • Posts

    5,198

  • Joined

  • Last visited

  • Days Won

    79

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Could be reactions to preservatives or dough conditioners used in American bread, or a reaction to GMO wheat which isn't allowed in Europe.
  2. Skylark
    I usually don't drink fancy mixed drinks. It's too hard to be certain they are gluten-free. I'll order a martini, gin & tonic, a good sipping whiskey (distilled alcohol doesn't bother me), a glass of wine, or hard cider.
  3. Skylark
    We've had people on the board who got diagnosed with EE that went away gluten-free.
  4. Skylark
    IMO the whole nutrition labeling thing is misleading in the first place. This is food we are talking about, not fats, carbs, and protein. They just lead people into various fad reductionist nutrition traps. Low-fat, low-carb, calorie-counting, zone, etc. I don't read them at all any more. You have to apply common sense. If it has oil, a cup of cheese...
  5. Skylark
    Yes, it happened to me once. I bought the wrong crackers at Trader Joe's. I ate one and thought "these taste different" then checked the box. Whoops. I waited for two days for the bomb to drop but nothing happened other than a little anxiety. That's rare for me. Usually I react with a bunch of GI trouble. Did you dodge a bullet recently?
  6. Skylark
    If you're willing to drive a bit you might like Warren Celiac Center at UCSD. I'm a little confused by your post, though. If you have positive celiac tests and get sick to the point of being hospitalized eating gluten, what's the issue? You do not need a doctor's help to stick to a gluten-free diet. You cannot be tested for celiac without eating gluten...
  7. Skylark
    A year and a half is not necessarily long enough to heal from severe villous atrophy. Give it time. It can take as long as five years to fully recover on endoscopy, and the median in one study was almost two years. Have a look at these articles. Open Original Shared Link Open Original Shared Link
  8. Skylark
    Saying you're celiac to shut coworkers up is NOT a situation that requires a doctor's note. Your diet is none of their damn business, nor do they have access to your medical records. You can say what you need to be left in peace. If you're looking to force the issue to get gluten-free food at company events under ADA, that's when you would need a doctor...
  9. Skylark
    You actually want the TSI antibody test if you suspect Graves'.
  10. Skylark
    Your numbers have fallen a lot. It's a good thing!
  11. Skylark
    Yes, I'll second that. You need to get the lyme treated, whatever it takes. Untreated lyme is serious business. I can see the appeal of elemental food, but I think you also need to be evaluated for refractory sprue.
  12. Skylark
    Whole grain flours with the endosperm like brown rice, millet, or buckwheat have delicate natural oils that will oxidize at room temperature. I handle them the way I used to store whole wheat, sealed well and either refrigerated or frozen. I have had a lot of trouble with brown rice flour in particular going rancid. I keep highly refined starches like...
  13. Skylark
    Ignore her pain? I suspect you have figured out her issue. It would just be a shame to take her gluten-free and have it work, then be in a position where you realize she never got proper celiac testing. I might call the GI's office and ask them to fax/email the celiac panel results and biopsy report. They should be the ones to fish that stuff...
  14. Skylark
    Well, your TSH is rising and FT3 is falling, plus you are symptomatic. You could try supplementing a little selenium but I think a second opinion on your thyroid is a good idea.
  15. Skylark
    Thanks, Bea. So sals can cause migraine too. I know mine are partly hormonal but they are getting much, much worse as I move into perimenopause. I'm hoping to get them better under control with dietary triggers. I feel worse after eating miso, tomato, chicken livers, red wine, or cheese, all of which are rich in tyramine and natural MSG. They are...
  16. Skylark
    Usually, "gliadin peptide" is the new IgG anti-deamidated gliadin. The old gliadin that is not very specific is usually labeled "anti-gliadin". You could check the website of the specific diagnostic lab (or phone them) to verify. The link you have is a good study. Here are a few more. Open Original Shared Link Open Original Shared Link Open Original...
  17. Skylark
    Aura migraines is why not. *sigh* I'm two weeks into the Failsafe elimination and while I'm not feeling generally better (fog and cognitive problems still present) I haven't had a migraine in a week now, which is an improvement. Dr. has me on riboflavin/Mg as well and I'm almost off caffeine. It's hard to tell whether Failsafe is doing much. I have...
  18. Skylark
    There can be signs of celiac like scalloping of the intestines and inflammation but as Peter says they are not always present. There can be no diagnosis until pathology examines her slides. Also, it's worth trying the gluten-free diet to see if it resolves her issues with a moderate positive blood tests. Developing celiac is a process and often the only...
  19. Skylark
    You don't have double copies of genes. You would be dead. You have one copy each of DQ2 and DQ7. DQ2 is a celiac-associated gene, one kind of DQ7 can be but Enterolab doesn't test in enough detail to know whether you have the celiac kind. I am self-diagnosed. Like you, I picked up the sensitivity by elimination and I don't tolerate gluten well enough...
  20. Skylark
    Poor kiddo. She got more than her fair share of health problems. It's probably real. There is a high incidence of celiac among people with Type 1 diabetes. She doesn't need diarrhea to be celiac. Some people with celiac are constipated instead. She does need to be on gluten until the scope, but you need to be sure her GI knows that she is ill and...
  21. Skylark
    I've gone low-amine and I MISS my sauerkraut. :( I'm itching, the harbinger of yeast. Hopefully the ridiculously expensive VSL#3 I got will make do. Have you all seen Open Original Shared Link ? Kefir grains from the Open Original Shared Link though I can't have kefir either right now. My sauerkraut was coming out great. I got it going...
  22. Skylark
    I don't see any limbo here. I believe you are celiac. You are wanting to think you're negative to blood, but I checked your old posts. Your positive test, gliadin peptide IgG, is 99% specific for celiac, not simple gluten intolerance. Gliadin peptide IgG is the most sensitive test, which is why the others were negative. It is still specific for celiac...
  23. Skylark
    There only natural lactose in milk products. If there is milk or lactose added to hummus or nut butters it will say so on the ingredient label.
  24. Skylark
    You can't tell anything about celiac one way or the other without fecal TTG. You mention a biopsy but did she have a full celiac blood panel including deamidated gliadin IgA and IgG? Do you have the biopsy report and how many samples did they take? If they only did one or two they can miss patchy damage. Also, many doctors fail realize that increased intraepithelial...
  25. Skylark
    Sounds awful. Whine away! I agree with Takala. You need to treat yourself to a mail-order goodie box from somewhere in the EU. I turned up this thread on gluten-free resources in Poland. Maybe it will help?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.