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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    It's an eye-opener, isn't it?
  2. Skylark
    DPP-IV was ineffective in clinical trials. The Alvine enzymes only worked for small amounts of CC. There is no pill that will suddenly allow you to eat a bagel.
  3. Skylark
    If you believe this I have some genuine snake oil to sell you. It will cure any ill. Only $79.95 and if you buy in the next 15 minutes I will include an entire, full-size second bottle for absolutely no extra charge plus our special book "How to cure anything with snake oil". (This statement has not been evaluated by the Food & Drug Administration...
  4. Skylark
    What, exactly, were the results that lead your doctor to say you were "gluten sensitive"? That doesn't sound like a negative celiac test. Celiac disease is progressive and yes, you can start with feeling ill from gluten and no blood/biopsy and progress to positive blood/biopsy. There are triggers like illnesses, stress, or pregnancy that can cause someone...
  5. Skylark
    Doctors see people who flatly refuse life-saving lifestyle changes every day. They see people with emphysema who still smoke, alcoholics who are dying of liver failure and still drinking, and huge numbers of people with metabolic syndrome who could change their lives by losing 50 lbs. Most refuse the lifestyle changes and ask for pills. It makes some doctors...
  6. Skylark
    Poor little one. I sure understand you refusing to gluten challenge with her. There is some information on the opiate-like peptides here. I've found more information in the scientific literature on the milk peptides, called casomorphins, but gluten definitely has similar actions to milk. Open Original Shared Link By the way, a doctor is not likely...
  7. Skylark
    They don't put it on the packaging because once the FDA gets around to passing a gluten law it will be misbranding, like putting "fat free" on something that is naturally fat-free. Out of curiosity, why would you have expected gluten in the Bestlife sticks? I would have read the label and been completely comfortable that it was gluten-free.
  8. Skylark
    I don't think you can decline something like a Christmas communion wafer without explaining the situation. It might be easiest to show up with some gluten-free wafers to break with people. Recipes are here. Open Original Shared Link You'll need to talk to your mother and father-in-law and explain that you need a little support in the situation. The...
  9. Skylark
    You did that backwards. How long was she gluten-free before you got the celiac test? The test doesn't work on people who have been gluten-free for a couple months. It can also be hard to get positive tests in kids. With the family history it would make sense to keep her on the diet and see if it helps. The flour cravings suggest she is getting the...
  10. Skylark
    As IrishHeart pointed out, nothing out of your mother's kitchen would likely be safe for a celiac because of the flour cross-contamination anyway. It's hard to know what your mother was thinking, but it does seem pretty inconsiderate to send two loaves of gluten bread. You getting sick is your own fault. You chose to play "gluten roulette" with food where...
  11. Skylark
    I have to wonder if you are reacting to the Nystatin rather than experiencing die-off, since it's going for this long and you feel it after every dose.
  12. Skylark
    You are lucky that she loves so many healthy foods! She will be FINE eating rice for her starchy food until she gets interested in something else.
  13. Skylark
    I was really liking oat flour too, until I went off grains entirely. I wouldn't call it a neutral taste though. I was making oat scones and Scottish bannock bread with the oat flour and they had a wonderful oat flavor.
  14. Skylark
    Is there diabetes in your family that has you so worried about your children's blood sugar? It's really normal for a kid to like something (potatoes) then dislike it, then like it again. They go in cycles with the food. I never know what my picky nephew will be eating when they come to visit. Just give her a taste when you make potatoes for everyone...
  15. Skylark
    I'll second adab8ca. Is there any way to get to a different doctor? I know the gluten-free food allowance would be useful, but you may just have to go gluten-free on your own and see if it helps.
  16. Skylark
    Way to go! I love your question "Why does it bother you so much that I can't eat what you're eating?" Glad you were smart enough to bring your lunch and didn't get stuck eating CC'd lettuce!
  17. Skylark
    Of course she dumps it on the floor. Foods you really dislike cause you to gag and if you eat enough you'll get nauseous and possibly throw up. Do you really mean to do that to your kid? You can turn eating into a real battleground that way. (It sounds like you already have.) My sister-in-law did that with my nephew, tried to force him to eat foods. He...
  18. Skylark
    Potatoes or rice with dinner have me asleep on the couch in an hour. Zzzzz.... My blood sugar is far more stable since I've eliminated grains, starchy foods, and refined sugar. I do eat fruit, but it doesn't put me to sleep or bounce my blood sugar around the way rice or potatoes used to. You have to eat protein and fats to feel satisfied without the...
  19. Skylark
    Thanks so much for taking the time to come and share the update. I'm glad to hear you're handling everything so well. Merry Christmas!
  20. Skylark
    Coffee with honey and coconut milk Grain-free/dairy-free banana bread made with almond flour and flax meal A fresh fuyu persimmon
  21. Skylark
    I know exactly how you feel. I went off gluten in 2005, was able to eat dairy and soy again in 2006. I started feeling bad last year and it seems I am dairy intolerant again and trying to figure out what other foods are leaving me foggy and fatigued. I've eliminated most soy (still a little in my fish oil), grains, dairy, and am working on nightshades....
  22. Skylark
    Yeah, clotting disorder and migraine with aura definitely means no combination contraceptives. It's really bum luck that the pregnancies didn't make it go away. I had an aunt with terrible endometriosis but it went away after her first pregnancy. I never had kids so I've been on combination contraceptives for many years to keep it at bay. There are...
  23. Skylark
    I've been on Lupron twice. It is a godsend for endometriosis and I wouldn't call it dangerous. The surgery is worse - I had that too - lupron worked better for me. You only take lupron for six months at a time and the endometriosis mostly goes away for a few years, sometimes permanently. You can get pretty obnoxious hot flashes but that's about all. ...
  24. Skylark
    Buy yourself the GAPS book for Christmas. You'll make it through the holidays. I am bracing for a grain-free/dairy-free/soy-free/refined sugar-free Christmas so I know what it's about. Try to focus on companionship and family rather than food. It really helps. If you have a high-energy day, do some scratch baking and make something that won...
  25. Skylark
    Hi and welcome. Don't doubt yourself. Your immune system can find and kill a single virus. What makes you think it would miss a particle of flour that is a hundred times larger? Or a crumb which is enormous in comparison? Many people have stronger reactions to gluten once they are gluten-free. Around the board we think it's because your immune system...
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