Jump to content

Skylark

Advanced Members
 View Profile  See their activity

  • Posts

    5,198

  • Joined

  • Last visited

  • Days Won

    79

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by Skylark

  1. Skylark
    Before you go off gluten you need to be tested for celiac disease. Celiac tests do not work after you've been on a gluten-free diet. You know you have any kind of gluten intolerance if you feel better off gluten. Most people with gluten intolerance rather than celiac feel better within a few weeks. Celiac can take months to years depending on how bad...
  2. Skylark
    I am so sorry to hear you're still felling sick. Have you eliminated the possibility of fructose malabsorption? You may be eating considerably more fructose than before your elimination because so many of the foods you've chosen have moderate to high fructose. I don't know about neuro with fructose intolerance, but it can be a big reflux trigger. Poor...
  3. Skylark
    I'm posting here since there are lots of health conscious folks on the forum. There is a petition at Whitehouse.gov up to reconsider water fluoridation. So many of us gluten intolerant folks have thyroid trouble we really shouldn't be drinking a thyroid poison in our water! If you are a US citizen, please join me in signing this White House petition. ...
  4. Skylark
    I eat peanuts! It's not a ball game without peanuts in the shell anyway. I've also gotten popcorn, Cracker Jack, and hot dogs without the bun at ball parks.
  5. Skylark
    I did lamb, rice, and lettuce for two weeks. It was tedious but I figured out all the GI problems I'd been having were food sensitivity.
  6. Skylark
    You need to go back on gluten and get tested for celiac disease first. This is not a fad diet, or one based on "reviews" of foods. It is a medical diet and once you go on it you can not be tested for celiac because the tests will return to normal. It is very important to know if you have celiac disease because it raises your risk of other autoimmunity...
  7. Skylark
    Order a Biocard test. They are sold in Canada and can be shipped to private citizens in the US. They're around $50 plus shipping. It's only a TTG test rather than a full celiac panel, so there is a chance of false negatives. If it comes up positive you know something is going on. Open Original Shared Link Then as everyone else has said, give the diet...
  8. Skylark
    Exactly. Thanks, Karen!
  9. Skylark
    That's wildly incorrect. You were sleeping in biology class? Galactose is a sugar, gluten is a protein. The two do not interchange magically in the gut. Among other things, it would require an alchemist stone to transmute oxygen to nitrogen. If you can do that kind of alchemy, you may as well start pooping gold!
  10. Skylark
    Negative scope suggests gluten intolerance rather than celiac, though you can't be sure without the proper blood tests. Thing is, gluten intolerance can make him every bit as sick as celiac. He's also got a lot of celiac disease risk with the low IgA and DQ2.5. Gluten intolerance may be a predecessor or early stage of celiac disease in DQ2.5 folks anyway...
  11. Skylark
    I've also seen shared fryer foods listed on a gluten-free menu. I try to educate the restaurant and of course I never eat anything from deep fat fryers unless they're dedicated for potatoes (which is very rare).
  12. Skylark
    I have never worried about plain old spices. I don't buy McCormick much because the spices are irradiated to kill bacteria and increase shelf life. Penzey's are really good and not irradiated. They've never given my any trouble.
  13. Skylark
    Just plain old canned veggies and beans are fine to eat. You can check for "wheat" in the allergen info to be sure. I don't think I've ever seen unsafe canned beans or black olives. If you pick up something that is seasoned or in a sauce that has a long ingredient list that you find confusing, you can check against the safe and unsafe lists on Open Original...
  14. Skylark
    Hunt's is owned by ConAgra. ConAgra has promised to declare all wheat, rye, oats, and barley on their labels so there is never hidden gluten. If you don't see those words, the food is safe.
  15. Skylark
    That wouldn't throw the tests off.
  16. Skylark
    Your lab came back negative for celiac disease, not gluten sensitivity. There is no reliable test for gluten sensitivity other than a positive response to the gluten-free diet. If you feel better off gluten, you are sensitive to it. Your genetics support your gluten sensitivity and suggest that you could eventually develop celiac disease if you keep eating...
  17. Skylark
    Yeah, I think sometimes there is a bad box here and there too. I ate box of gluten-free crackers over a couple days from a brand I usually tolerate and it got me. There was no other explanation for the trouble because everything else I had been eating was home-cooked from scratch.
  18. Skylark
    I used to have canker sores all the time. I still get them when I am glutened. It's one of the sure signs.
  19. Skylark
    Have you tried eliminating dairy (casein in particular) as strictly as gluten?
  20. Skylark
    The advantage to TTG testing is that you can establish a baseline. TTG is often used to follow how well you are responding to the diet if it's positive when you eat gluten. For example, you can introduce gluten-free oats and find out with a blood test a few months later whether you can eat them safely. You can also know with a blood test when you are following...
  21. Skylark

    ARCHIVED Confused

    Skylark replied to ChickieD's topic in Coping with Celiac Disease

    Hard to know. Most food intolerance testing is unreliable because the food is not directly exposed to your bloodstream or skin. You need to eliminate the 35 positive foods for a few weeks and reintroduce them one at a time to see if you react when you eat them.
  22. Skylark

    ARCHIVED Confused

    Skylark replied to ChickieD's topic in Coping with Celiac Disease

    I'm not sure what sort of test your daughter had, but there is no reliable test for gluten intolerance other than trying the diet for a few months. If she has finished celiac testing (requires a full gluten diet), she should go ahead and give the diet a good, strict try.
  23. Skylark
    Was there a total IgA run? You can't interpret any specific IgA test without knowing your son makes a normal amount of IgA. As carecare said, you also need to know whether you're looking at the gliadin or deamidated gliadin test. If it's deamidated gliadin it's more likely he's celiac.
  24. Skylark

    ARCHIVED Confused

    Skylark replied to ChickieD's topic in Coping with Celiac Disease

    Gluten is a generic word for the protein part of a grain (as opposed to the starchy part), which is a mixture of a few specific proteins including glutelin and gliadins. Wheat gluten is mostly gliadin. People with celiac disease react to a particular gluten protein called alpha-gliadin. If you react to gliadin you actually do react to gluten since "gluten...
  25. Skylark
    Hi and welcome. Another thing that's been an issue for some forum members was gluten in pet food. The dust from pet foods gets around the house and can be too much gluten for a celiac to tolerate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.