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jenvan

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by jenvan

  1. jenvan

    ARCHIVED Rebelling

    jenvan replied to a topic in Coping with Celiac Disease

    Hope you feel better soon, and that your will is renewed
  2. jenvan
    Stick with it Greg. At this point there is no know 'cure' for Celiac. And be aware, b/c there are some individuals out there who will give you false information saying they can cure it. Once you get over the initial hump, it becomes second nature--knowing what to and not to eat. You will get there... Ask away in the meantime!
  3. jenvan
    Scotia- I had a similar experience with the iron. The pills did not raise or even maintain my low low counts. So, I had an infusion as well. That was several months ago, and I am now waiting for my follow-up results to see if I've maintained normal levels. Unfortunately I didn't notice much difference in my energy levels--what I did notice is that about...
  4. jenvan

    ARCHIVED Fda Meeting

    jenvan posted a topic in Publications & Publicity

    In case anyone is interested, here is a presentation and info on what was discussed at the last FDA meeting this past week--discussing labeling, celiac and setting threshold limits for gluten in food... Open Original Shared Link Open Original Shared Link
  5. jenvan
    good thoughts armetta...
  6. jenvan

    ARCHIVED Npr Story

    jenvan replied to lovegrov's topic in Publications & Publicity

    I had several friends call me about this this morning--I caught the tail end of it. I'm trying to get another spot on my local npr channel... Thanks Richard!
  7. jenvan
    PS--have you had your iron levels checked out?
  8. jenvan
    Lots of good ideas here... another one is to simplify. Depending on your personality, this might be a help for you. It is for me--one I hate to do, as I like to try and do everything--keep a perfect house, cook dinner, keep up laundry, pursue my friends, exercise, yadda yadda... I have had to simplify and tell myself "no" many times--on commitments with...
  9. jenvan
    Thanks for the reply BamBam. I missed something on a package the other day too--it seems like its inevitable sooner or later !
  10. jenvan
    I've got some in my fridge right now
  11. jenvan

    ARCHIVED Help Me Prep..

    jenvan posted a topic in Publications & Publicity

    Hey all-- well, next Thursday I am meeting with someone from the Corporate office of Marsh Supermarkets, one of the larger midwest grocery chains. I am excited about the meeting One of things we are going to discuss is how Marsh can spread the word on the new gluten-free products they are carrying. I have thought of some ideas, but wanted to see if you...
  12. jenvan
    Carrie and Bernadette- I cked on my smart balance container last night and it has whey in it--so its not dairy free. Bernadette--do they make a special dairy free kind that you have ?
  13. jenvan
    thanks for that site. i will ck out--trying to figure out how to improve my own fibro...
  14. jenvan
    glix- that dream was random!
  15. jenvan
    Gab- Sorry to hear about the upcoming surgery--have you scheduled it yet? Berneses- I think its awesome you were adopted. There are so many kids are there dying for homes ! I have several friends who have adopted, regardless of whether they can have their own children or not... Tiffany- I'm where you are girl--'do i want kids?' I hope my heart...
  16. jenvan
    that's true about those worms... i wonder why i've never thought to integrate them into my diet though??
  17. jenvan
    that's great to hear! those kind of encounters are always so encouraging!
  18. jenvan
    ah! seeing a noodle for us celiacs, is like seeing a worm in the bottom on our bowl! thanks for the info...
  19. jenvan
    For the day you could bring gluten-free granola bars--i can think of a ton- clif nectar bars, bumble bars, enjoy life bars (to name a few); fruit roll-up type snacks--i like fruit leathers and kettle bars--100% fruit; dried fruit; nuts; beef jerky (i know tiffany likes to take that on trips); i would bring some veggies, like carrot sticks; some gluten-free...
  20. jenvan
    kasey's mom- i keep my gluten-free pantry mixes in my pantry
  21. jenvan

    ARCHIVED Wendy's

    jenvan replied to BamBam's topic in Gluten-Free Restaurants

    jessica- yikes! thanks for sharing that info !!
  22. jenvan
    holly- you're not a wuss at all ! both procedures were pretty easy. the hardest part of the colonoscopy was the prep work with the laxatives... but man did i feel skinny after all that ! i was out for that procedure and had no issues afterwards. the hardest part of the endoscopy was not eating for a day beforehand. i was out for that too. i've...
  23. jenvan
    have a great cruise! i'll be interested to hear. my husband would like to take one and i have heard they are pretty good with diet restrictions...
  24. jenvan
    huh, that would be a random request if one didn't have celiac ! i didn't even know about gluten much before I was diagnosed...
  25. jenvan
    I echo the praise for this post and the insight from many. I feel for those who have no real community and try to go it alone. How hard that must be !
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