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eatmeat4good

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Everything posted by eatmeat4good

  1. I wish I had run into someone like you when I was so sick for so long. I even remember hobbling through the grocery store late at night because I drove like I was drunk so I had to go to a 24 hr. store late at night to keep from being in traffic. Anyway, as I was hobbling through the grocery store I glanced at the gluten free food and saw the price and said...
  2. Meat, vegetables and some minimal fruits is all I know that is really safe for me too. Lentils and garbanzo beans were absolutely terrible. Lectins? Who knows. I get sick from gluten free stuff too. It is maddening. I want to eat eggs again...but I can't. Dairy I can live without. It's really difficult but if I'm strict I am well. It's when I cave to cravings...
  3. In my opinion and experience, if wheat flour is used in that kitchen, the risk of contamination is extremely high. Think of "poof" of flour as you pour it. Wheat flour is easily airborne and settles on everything. It would be too easy to cominate your gluten free equipment. It is impossible for me to eat at my sister's as she is a baker. She would try to...
  4. Completely gluten free. I feed friends and family gluten free when they visit. If they bring their own fast food, pizza, or snacks, it has to be eaten on the patio...rain or shine. If they want to leave it in the car and eat my food, that is better. There are only two of us. Myself and my son. Both Celiac. I am more sensitive than he is. I get...
  5. I agree with Skylark. I went Paleo/Grain Free and have been losing weight. I was a Fat Celiac. Topped out at 200. I'm 5 feet tall. Being gluten free and now grain free I'm down to 115. Carbs and starches stimulate the pancreas to produce insulin. Insulin's job is to store fat. Whenever you eat carbs and starches and sugar, your body thinks you cannot...
  6. What a good friend you are. I wish I'd had a friend like you when I had those exact same symtoms. It is definitely consistent with Celiac. Now if he will just try it and see if it works...or get tested as Mushroom says. Anyway, good for you for figuring this out for yourself. I am always thrilled when I hear of people recognizing it. He may see himself in...
  7. I think your test was pretty conclusive (the dietary restriction and challenge), but people with DH often test negative on blood, intestinal biopsy and skin biopsy. Yet they tend to be extremely sensitive to even traces of gluten or cross contamination. You can try to get tested but your body is telling you loud and clear...just in case the tests are negative...
  8. That is adorable! And perfect for the occasion! I spent a year giving people the full Celiac Lecture when they asked me why I couldn't have wheat! I now know that is not necessary and there are times when a shorter version is needed. I will still give the Celiac Lecture if they ask questions about their symptoms etc, but also... I shall be using your...
  9. I had all of your symptoms too. My disease process included the heart palpitations and the falling asleep and extreme fatigue. I was diagnosed with fibromyalgia. Fast forward 7 years and I found Celiac disease here. That is what I had. Even had the DH rash. But just wanted you to know that your symptoms are consistent with Celiac and if it is Celiac, the...
  10. I have thyroid disease. Hashimoto's and Celiac. Low Carb felt way better but Paleo feels great. Hard to do yes that is for sure. I kept the Dove chocolate and eat a piece or two a day. That's still Paleo right? Cacao is a vegetable right? But otherwise my healing rapidly happened when I got rid of the carbs and starches. Haven't tested my thyroid...
  11. DH can look a lot of different ways. The significant thing is what you wrote ITCHING! Like maddeningly so. Some people have flesh colored blisters, some have teensy eensy pinpoint dot blisters, some have red blisters...the common thing is that it is activated by gluten. And they itch painfully and tend to be worse at night. The little bumps can come first...
  12. Use the Thyca.com low iodine diet to limit iodine and see if it improves your healing. My son's DH looks exactly like that. Mine is larger sores but fewer of them. The dark purple scarring is consistent with DH. It does fade with healing. Then mine turns pure white with no pigmentation. You have a very, very astute Dr. I would also like to tell you...
  13. Yes ma'am...that will be hard to do. There are a lot of us who cannot get tested for that reason. Personally, I have no interest at all in testing. I feel so much better without gluten that I believe it is Satan himself. My Dr. eventually diagnosed me based on all the things that healed when I went gluten free including the rash he had treated for fungus...
  14. It could be benzoates. Benzoates are a preservative often used in sodas and bottled drinks and bottled condiments. I can't handle it at all. My DH reacts to Benzoates, which, according to experimentation and research is very common for those who are sensitive to salicylates. Even fruit juices often have sodium benzoate added to them. I won't buy anything...
  15. Iodine Preservatives Food coloring Salicylates All cause me to react and prevent my sores from healing. Not sure why really. It took me years to figure this out. Gluten of course is the worst but as squirmingitch says...it is extremely hard to stay gluten free. Gluten traces can cause reactions for weeks. However, my sores were active for 7 years and...
  16. It depends on how old you are and how much your body has reacted. My son SHOULD have been diagnosed as a child but he was 16 before we figured it out. He recovered in 6 months. But we don't know about his insides...just that he felt way way better and could function normally again. You wanted to do the test and you did it. So there's no sense in worrying...
  17. It sounds like DH. Not all of us get watery oozing blisters. The blisters are sometimes very tiny like pinpoint size which you may be describing. They can be mistaken for acne or mosquito bites. DH is notorious for coming and going. But mine just came and stayed. In the beginning I had fairly mild reactions like you are describing. Mild rash that never healed...
  18. Ah! Thank you for this thread! Very interesting and... I'm half Scots/Irish! Is that how you say it? or Scottish/Irish? or is it Scotch/Irish??? I've never known one darn thing about the Scottish way of life...and often wonder. The other half is German, German, and German! I think we must have been directly related to...
  19. I had migraines too. Gluten is the worst. Then Salicylates. Then MSG...ugh. Then fish. Yeah, the day after eating it I get a big bad headache. Now I'm free of migraines except sometimes the menstrual migraine. Incidentally I've read that those can actually get worse after Celiac is diagnosed and healing starts to take place. It has to do with the...
  20. During the height of my illness I became so depressed that I stopped eating altogether for 3 weeks. I only took vitamins, drank water and took collagen tablets. Miraculously and against all reason, I started to feel like I was getting well, I started to gain energy and to feel normal again and I lost all the excess swelling that was inflaming my whole body...
  21. I would agree with you that the degree to which you are reacting is indicative of Celiac. It seems like you have identified that your reactions are mostly neurological problems from eating gluten and they appear to go away when you do not eat it. Even though you tested negative you are likely Celiac. Your reactions seem to show that you react pretty seriously...
  22. It's cheap. Farmer's are subsidized for it so it is solidly funded. It works great as a filler and a thickener. Old habits die hard. We have nostalgic feelings for it because our mother's baked bread. Baking is fun and represents love for family. Agricultural researchers try to increase the gluten content of the wheat grain and they have been very successful...
  23. I didn't change the toaster at first either. But kept getting sick. I didn't wanna believe I would react to traces of gluten possibly found in foods that were technically gluten free but made on shared lines. I have now found that indeed I do react to those things. I walked the toaster oven to the dumptster wearing gloves. I now never, ever eat anything made...
  24. I've taken it too, and I was fine with it. I had been misdiagnosed with Fibromyalgia and it was really Celiac. So I can't say it helped me that much....but then I didn't really have Fibromyalgia. It was gluten free when I checked but do check each time. My Fibromyalgia went away the longer I was gluten free.
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