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Fire Fairy

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Latest Celiac Disease News & Research:

Everything posted by Fire Fairy

  1. Fire Fairy
    Another Migraine sufferer here. I have had far less and less severe Migraines since going gluten-free in November. I was having up to 18 days of Migraine per month, 4 months gluten-free I've had a total of 8 days of migraine all of which were from accidental gluten consumption (I think).
  2. Fire Fairy
    I went gluten free November 2nd 2010. (I also started that day.) Prior to going gluten-free My periods had been getting heavier and heavier and I had bad cramps and back pain. My Dec, Jan, and Feb periods were all pretty light and much less cramping. Feb was the worst of the three months, I suspect I may have consumed some gluten during that time. My usual...
  3. Fire Fairy
    My headaches/migraines before going gluten free usually felt like a railroad spike had been inserted in the middle of the back of my head. It was a constant pressure. Sometimes though it felt like it was thundering in my head, there would be short bursts of pain on both sides in the temple area which I invision looking like lightening strikes. Sometimes there...
  4. Fire Fairy
    My Dr told me to take 10,000 IU D in the morning and Bluebonnet Calcium Citrate Magnesium D3 at night(800 IU D and 1000 mg calcium).
  5. Fire Fairy
    I too had several of the same symptoms. My legs twitched at night but in my case they actually jerked. I actually kicked my poor cat off the bed one night. Thankfully it's stopped completely since going gluten free November 2nd last year.
  6. Fire Fairy
    Amy's has some wonderful gluten free frozen dinners that fulfill my need for convenience food. Yummy, filling and not as expensive as many gluten free frozen meals. For me cheating is not an option I get neurological problems with gluten exposure. For me it's totally not worth it. I think of gluten as a deadly poison.
  7. Fire Fairy
    I got glutenated from a scratched no-stick skillet. And I got glutenated from invisible crumbs in grape jelly. You see since I live with gluten eaters I didn't toss the old jelly I just bought new, unfortunately the jellys got switched round. I also think I might have gotten sick from ingesting some nail polish. I had some polish that literally wore off...
  8. Fire Fairy
    Did you know you can search the forums? Also, look on the top of the page and there is a button that says Celiac Disease Info, click it. It's the 5th button. I'm new too so I'll let the people who have been on here longer give you more info.
  9. Fire Fairy
    Thanks everyone for the great suggestions. I will get some B vitamins today and if it happens again I'll call my Dr and talk to him about Zanax. I did get some relief during one of the attacks by moving around a lot so if I'm at home I'll try exercise and if I'm at work I'll do the breathing exercise. It's good to know Immodium AD doesn't have gluten I'll...
  10. Fire Fairy
    The last 2 times I got CCed I had what I would have to call an anxiety attack that occurred with my usual glutenated symptoms. This is new to me and I do not like it at all. I felt like my fight or flight response was activated despite having nothing to fight or fly from. Any suggestions how to work through the anxiety?
  11. Fire Fairy
    I think it's great. I was just diagnosed in November so I'm not a very informative critic. I must say you could add Migraines to your list of symptoms. And you could mention other problems that are linked to celiac besides thyroid. For example some people develop type 1 diabetes from years of untreated celiac disease. Many women have miscarriages. Etc. ...
  12. Fire Fairy
    I started noticing gray hair at 17. Now at 36 I have a lot silver threads, people think I get my highlights done. I used to be upset about it and started dying it at 17 but since I don't know of any gluten free hair dye and I can't afford to have it done in a salon, I'm calling my hair color "recession gray". Good for you making a list for the Dr....
  13. Fire Fairy
    My brother never went to the Doctor as an adult until he started feeling really bad. When he finally went the Dr checked his blood. His blood sugar was so high the Dr wanted him to go straight to the emergency room! That was 10 years ago and he was diagnosed type 1 diabetic. He is the only type 1 diabetic in my entire family. I strongly suspect he has undiagnosed...
  14. Fire Fairy
    I found out one place I've risked gluten...my nail polish. It had gluten in it, and I'm very rough on my polish so I've no doubt swallowed some on occasion. It's amazing all the pitfalls I'm finding. But I'm learning! Thank you to everyone who has responded I'm going to ask my Dr about Hughes when I go back, just to be safe.
  15. Fire Fairy
    I think it's perfectly understandable to be bothered by watching others eating cupcakes and the like. It makes one feel a bit like an outsider. I'm very glad this post was made now. I have a meeting to attend on the 27th which will have glutenous food. Now I'll (hopefully remember to) bring my own gluten free treat. I suspect they will have some fruit...
  16. Fire Fairy
    I was 172 at the doctors office on November 2nd (when I diagnosed) and on February 2nd I was 137. 35 pounds came off in 3 months, My belly distention which had caused several family members to think I was pregnant disappeared completely after only 3 weeks. I think I was tested for Hyperthyroid just a couple years ago because my doctor suspected it to be the...
  17. Fire Fairy
    It was actually during my cycle that this occurred. I may need to drop the soy as well. I'll have to go over my food journal and check for it and sugar/carbs.
  18. Fire Fairy
    I took Topamax for three years or was it five? Let's put it this way, thankfully nothing I need to remember happened during that time. At least I hope it didn't. It really messed up my short term memory. I'd be in the middle of doing something at work and completely forget what I was doing. In fact a few times I undid my own work. Buttered bread I used...
  19. Fire Fairy
    I took Topamax for several years and my migraines just got worse. My Dr has been very good about insisting I need to learn about my own health. Years ago when he started treating me for Migraines he gave me a reading list. He didn't give me nearly enough info when he suggested I might be gluten intolerant, unfortunately that visit was rushed. He did send...
  20. Fire Fairy
    My migraines have been much better since going gluten free November 2nd. I had been having around 16 days of migraine per month. In December I had 1, in January I had 3. I've now had 3 days of migraine in February. Usually I can track down a possible CC but not on the day in question. Maybe it was a wayward crumb. The thing that really bothered me was that...
  21. Fire Fairy
    "Do you get less migraines if you have a trial of Heparin injections ?" I've never heard of any of this. My Grandmother on my father's side had multiple strokes so that is something I fear especially because of my migraines. I and my Dr suspect I've had some mini strokes (TIA's). Thank you for posting this. I will have to talk to my Dr about it.
  22. Fire Fairy
    You didn't do anything wrong. Personally I'm afraid to eat out because it's to easy to get gluten anywhere where they serve gluten food. When I do eat out I plan to just get a plain baked potato and hope for the best. Of course I'm new to the gluten free world so I'm treading extra careful.
  23. Fire Fairy
    Yesterday I felt blah. I forgot to eat breakfast, I drank half my normal coffee and I was nauseous so I took my nausea medication. By the time I went to Church at noon I was feeling really blah. I came home and ate a bowl of Chex with almond milk and an orange. I never felt like cooking so I ate corn chips and drank a V8 later for a snack and for dinner I...
  24. Fire Fairy
    My Grandmother died this year at 94. She had diabetes (type 2) and I strongly suspect undiagnosed Celiac disease. My brother has type 1 diabetes which I suspect was brought on by Celiac disease. He is one of those who doesn't take care of himself and eats what he likes.
  25. Fire Fairy

    Thank you for adding me as a friend. :)

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