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Latest Celiac Disease News & Research:
Everything posted by cahill
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ARCHIVED Why Do Some Docs Refuse Celiac Testing?
cahill replied to Nen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My first response to your question was "because they are idiots" but that is not entirely true. Not educated about celiacs is probably closer to the truth. BUT there is also an arrogance about them being right and the patient not knowing what they are talking about that also comes into play. I was first diagnosed with IBS at age 20( the first of many... -
After I replied I realized that this is a very old thread
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ARCHIVED Philadelphia Cream Cheese
cahill replied to aeryn's topic in Gluten-Free Foods, Products, Shopping & Medications
I have an explosive reaction to spinach. I would suggest that your reaction may be to something other than gluten. -
ARCHIVED What's For Breakfast Today?
cahill replied to GlutenFreeManna's topic in Gluten-Free Recipes & Cooking Tips
Peanut butter and jelly on toasted Udi's bread and a cup of tea ** I am reintroducing peanuts into my diet -
ARCHIVED How Long For Other Intolerances To Show Up?
cahill replied to Austin Guy's topic in Food Intolerance & Leaky Gut
I was gluten free for about 8 or 9 months when it became very clear that I had other intolerances -
ARCHIVED What Food Should I Eat On An Elimination Diet
cahill replied to smc's topic in Coping with Celiac Disease
At my illest I was intolerant of most everything. But remember I was undiagnosed for 40+ years. I was/am gluten free (of course). I am still soy free as soy is as great of an issue as gluten for me. I have attempted to reintroduce nightshades but am only able to tolerate very small amounts of potato flour in baked products.So other than very small amount... -
ARCHIVED What Food Should I Eat On An Elimination Diet
cahill replied to smc's topic in Coping with Celiac Disease
There are different ways to do an elimination diet, One way is to eliminate the top 8 food allergens ( and all foods that contain them) from your diet and then slowly reintroduce them to judge your reaction . the top 8 being Milk Eggs Peanuts Tree nuts (such as almonds, cashews, walnuts) Fish (such as bass, cod, flounder)... -
ARCHIVED Endoscopy
cahill replied to jimmyheard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Get a copy of them to be sure. I dont know about the UK but in the US we are able to get a copy of our test results upon request . Just because the receptionist thinks they are "OK" doesnt make it so. Make sure by looking at them your self. -
ARCHIVED Need Help With My Daughter's Sore Throat
cahill replied to Autumn Rook's topic in Parents, Friends and Loved Ones of Celiacs
Eggs did this to me ,a constant burning in the back of my throat. Has she been checked for allergys ?? -
Hopefully you will be able to get some answers from your doc's. If not you may want to consider a (very) strict elimination diet. Feel free to message me if you have any questions about doing an elimination diet .
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ARCHIVED Could It Be Dermatitis Herpetiformis?
cahill replied to lub2bmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If it is DH ,along with being gluten free,restricting your iodine intake will be helpful. -
ARCHIVED Endoscopy
cahill replied to jimmyheard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your blood work came back positive you have celiac's even if there is not enough damage yet to have a positive biopsy. The endoscopy it self is not bad at all , for me the hardest part was the waiting Welcome to the forums, great group of people here -
ARCHIVED Do You Get Scars Are The Noticable
cahill replied to Flasaltwater's topic in Dermatitis Herpetiformis
if udi's breads make your D worse ,have you considered you may have issues with eggs?? Just asking because when I was at my sickest eggs were a MAJOR issue. And to answer you original question,, yes I have scars from my DH -
Soy is as sneaky or sneaker than gluten. It is in most everything processed and hidden well in many products. Mayo,salad dressing,most canned tuna,chips,chocolate ,gluten free Bisquick,many gluten free mixes,gluten free flours and breads,meat products like lunch meats,hot dogs and pepperoni, ect can contain soy. Honestly it was harder for me to eliminate...
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The exception to this is soy oil , My understanding is that any vegetable oil can be soy oil and does NOT have to be labeled as such.
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My suggestion would be ; no matter how well you know the bride and groom or how much you trust the restaurant or chef ,take your own food. I was severely gluten at MY DAUGHTERS wedding recently. Even after talking to the chef and being reassured he would take every precaution my daughters and my gluten free meal was nothing like decided on when we talk...
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ARCHIVED Anyone Have A Favorite gluten-free Vegan Dessert?
cahill replied to freeatlast's topic in Gluten-Free Recipes & Cooking Tips
I would be interested in any egg,soy,gluten free dessert recipes -
ARCHIVED Questions About Thyroid Test
cahill replied to UpbeatPete's topic in Related Issues & Disorders
Most doctors will not refer you to an endocrinologists if they read the lab test as normal.Your testing is "within range" as your doc would say. If you have concerns (and insurance) making an appointment with an endocrinologist would be you next step. Hashimoto's is an autoimmune disease and is prevalent in people with celiac's -
ARCHIVED Questions About Thyroid Test
cahill replied to UpbeatPete's topic in Related Issues & Disorders
What is the range your lab uses??? Have you or your sister been tested for Hashimoto's? -
ARCHIVED Celiac Cost Me Everything
cahill replied to ravenwoodglass's topic in Coping with Celiac Disease
While I understand and respect the suggestion of (after a period of grieving ) adopting another dog I also feel that in my case that will not happen. My BEST buddy Gabe is 11 and has health issues. MY heart breaks just thinking about the day I will lose him.I have decided that once he is gone I will not have another dog.I have kittys and while not the... -
ARCHIVED What's For Breakfast Today?
cahill replied to GlutenFreeManna's topic in Gluten-Free Recipes & Cooking Tips
Gluten free pancakes with real maple syrup and sausage -
ARCHIVED Celiac Cost Me Everything
cahill replied to ravenwoodglass's topic in Coping with Celiac Disease
Raven, Thank you for posting the picture of pooh Oh My Goodness, what a SWEET baby -
ARCHIVED Celiac Cost Me Everything
cahill replied to ravenwoodglass's topic in Coping with Celiac Disease
Raven, You were one of the first in these forums to reach out to me with your strong loving cyber arms and embrace me. For that I will forever be grateful. You have given me and many others in these forums so much love, support,incite and knowledge. For me personally you give me the greatest gift of all HOPE.With out that hope I would have never persevered... -
ARCHIVED Stomach Acid Deficiency - Is This Possible?
cahill replied to CNV2855's topic in Coping with Celiac Disease
yes I agree . Sounds like my reaction to soy also.The last time I ingested any amount of soy I ended up in the ER. -
ARCHIVED Can Celiac Cause A Positive Ana Test?
cahill replied to Jenniferxgfx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have Celiac's and Hashimoto's. I had a positive ANA in May of this year.A breakdown of the testing showed negative for Lupus. My endocrinologist feels the positive ANA was because my Hashimoto antibodys were over 900 at that time. I am retesting in Nov. So to me it would stand to reason that if your Celiac antibodys were high enough it could cause...