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Jill0711

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jill0711

  1. Jill0711
    Prior to diagnosis, I had this exact symptom...along with many others. It would feel like someone was stabbing me in between my ribcage. The only thing that would even provide some relief was a heating pad and as much pressure I could manage on the exact spot. I did end up in the ER once. The GI cocktail did nothing for me. They called it gastritis. Within...
  2. Jill0711
    I was starving for about a month after going gluten-free. I think your body has essentially been starving for so long that when that is no longer the case, it just wants you to eat and eat. It does settle down after being gluten-free for awhile.
  3. Jill0711
    I'm still eating skittles as a food group I think it is a normal thing for our bodies to crave the things it is used to and needs. Personally, I'm hoping that once the B12 kicks in I will no longer eat them so often. I know that my body wants them for energy and sugar is always a quick energy thing...of course, the crash comes later.
  4. Jill0711
    First of all, you will not get better until you eliminate gluten completely. I found that when I went back on gluten for testing (per doctors orders) that my body got mad at me and went a little crazy and I ended up in the ER twice before I decided that I didn't care about the testing anymore. Second, even when you eliminate gluten completely, it takes the...
  5. Jill0711
    Thank you for your input. The only meds I take are synthroid and birth control bills. I know that I can't take vitamins within 2 hours of the synthroid, but the synthroid shouldn't effect the vitamin levels. What is the difference between Methylcobalamin and the B12 that starts with a C? I didn't know which to get in the store. In your opinion, are there...
  6. Jill0711
    I recently received the results from some bloodwork. I had the bloodwork taken because I have been exhausted and have had some peripheral neuropathy. I need some help interpreting the results as the doctor was less than helpful. Vitamin B12 195 (221-700) Transferrin Saturation 19 (20-55) Zinc 45 (55-150) There were also a few borderline...
  7. Jill0711
    I know that peripherial neuropathy can be related to Celiac; however, in my case, the numbness and tingling didn't start until after I was gluten-free. I have no history of having it except about two years ago I had it as a side effect of a medication. My next thought was vitamin or nutrient difficiency. I thought it was B-12 related so I started eating...
  8. Jill0711
    I understand your frustration and everyone has that moment where they freak out at never eating gluten again. I definitely went through that. If you can't wrap your mind around the all or nothing thing, then create a plan where you eliminate more and more until it is gone. Ideally you want to stop consuming it immediately, but it is better to take a month...
  9. Jill0711
    It must be very shocking to hear that diagnosis. Make sure that you are not making your decision in a moment of panic rather than really thinking it through. First, there are people who simply ignore the diagnosis and go on with their lives; however, know that your body is still being damaged in some way if you continue to consume gluten. You may not see...
  10. Jill0711
    You also need to remember that damage in the small intestine can be splotchy so, even if multiple biopsies are taken, it can be missed. I say that you need to base it on how you feel because testing is still so unreliable. I know that it is frustrating, but trust your instincts.
  11. Jill0711
    I can tell you from recent experience, it does get better. For me it took about six weeks for things to calm down. There is definitely some withdrawal symptoms which sometimes feel worse than just eating gluten. If you stick it out, it will go away. Hang in there, take each day as it comes. Your body has a lot of healing to do.
  12. Jill0711
    In some ways, you can have issues from the diet alone and it is usually from lack of fiber. A lot of the gluten-filled products are enriched while the gluten-free versions are not. The other consideration is dairy. I was still having D after going gluten-free and I tracked it down to a dairy intolerance. Having a milk intolerance is actually very common for...
  13. Jill0711
    Thanks for all of the advice and sharing my misery It is nice to know that I am not the only one dealing with all of this. Starting Monday (because I have to grocery shop tomorrow first ), I am commited to a minimum of 2 weeks on a whole foods diet. Part of my energy issue is that I am craving sweets because my body is still malabsorbing fats. I think...
  14. Jill0711
    I'm only a month and a half into this journey. I just wanted you to know that I felt exactly like you are describing when I eliminated gluten. It didn't help that because I was malabsorbing fat that my body craved it...and not the good kind. I will second the Snickers. They did help me get through that time. I will tell you that it does get better. I'm just...
  15. Jill0711
    Another option would be to find out the name of the person or place catering it and speak with them directly. You can ask how things are prepared ahead of time. This way your friend doesn't have to worry about handling it. I have a friend with celiac disease and the one time we went to a wedding together, the caterer even made her a special plate and brought...
  16. Jill0711
    I'm sorry that you are feeling this way. It is how I felt prior to my diagnosis and I did stop eating almost entirely (which is not a good thing). I actually had a couple of followup questions about digestion in general. I would think that proteins and fibrous fruit would be harder to digest than carbs, but I'm certainly not a doctor. It just makes me...
  17. Jill0711
    It's the patience that is the hard part I had to take Benadryl again last night because the itching is ridiculous. I'm not sure if the Benadryl helps because it stops the itching or because it knocks me out It is weird to develop an allergy when I've never had any, but I've heard that can happen after diagnosis because the body is on hyperalert...
  18. Jill0711
    Thanks! It is nice to know that I am not alone Mine isn't DH, but I have the tiny bumps that itch. Rain- sorry that you are still dealing with this 10 months later. I can't even imagine. Sometimes I wonder if it is a problem with my lotions and shampoos. I must admit that I haven't even looked at them beyond chapstick because the food alone was...
  19. Jill0711
    Did any of you develop itching after going gluten free? I have been gluten-free for a month. I've had itching since the end of the first week. The itching is everywhere, but no rash. It varies in intensity from being an annoyance to the point where I take benadryl just to sleep. The only other time I had itching was when my thyroid was extremely overreactive...
  20. Jill0711
    I am recently diagnosed and I have been gluten-free for about a month. I'm feeling remarkably better with one exception...my stool still shows evidence of malabsorption and I am still having intermittant D. According to the biopsy, my results showed early Celiac disease. I took that to mean that it wasn't very far advanced (in spite of the horrible symptoms...
  21. Jill0711
    I just wanted to add my two cents I have been recently diagnosed via biopsy. My bloodwork was negative, but the biopsy was positive. I'm living proof that you can have negative bloodwork, but still have Celiac Disease. There is a percentage of people who will always have negative bloodwork even with active Celiac. Like others have said, if you are feeling...
  22. Jill0711
    I have to chime in and say that my doctors were actually pretty fast in coming to a diagnosis. I was sick for six months prior to diagnosis. My primary care doctor did a whole slew of bloodwork, yet neglected to throw in a Celiac panel. I think that part of the issue is that most doctors think of Celiac disease as having D as the main symptom; however, the...
  23. Jill0711
    Wow! Eight weeks?!? That is a really long time to wait on results. I thought 1 week to wait on biopsies a long time. I hope that the time passes quickly for you and you get the results you are seeking. In the whole scheme of things, just remember that you are in charge of your own body and your own health. Don't ever apologize for doing what you need to do...
  24. Jill0711
    There is definitely a learning curve and breaking old habits. My pain is centered right between my rib cage, right near the bra line. It generally feels like someone is stabbing me. At times it was worse than others, but it landed me in the ER a couple times because I couldn't handle the pain. It is funny because the doctor didn't think the pain was related...
  25. Jill0711
    One thing I will say being a newbie to the world of celiac is that it definitely has made me more aware of what is going into my body. The first time I went grocery shopping after my diagnosis was an eye-opening experience. It really made me think and make better food choices. Most people who don't have allergies or a disease like celiac never think twice...
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