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IrishHeart

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by IrishHeart

  1. IrishHeart
    Go to the site link I posted earlier..it's there. About $36 I think.??
  2. IrishHeart
    Oh Pondy, I have this same thing!!!!!!! DEEP bone pain all over and my face hurts just to lay my cheek on my pillow. My scalp and neck too...Horrible stuff! I recall you and I discussed this when you first came on the site. I had so hoped you had gotten some relief from this. This burning is insane, isn't it! We'll just keep hanging in there, hon. I...
  3. IrishHeart
    Heard this story the other day... A guy came into the gluten free cafe I frequent and purchased a loaf of the bread the owner makes. He told her he has been gluten-free for nearly 20 years (as a celiac) and was tired of the packaged bread he ate. He said he never really feels great and lamented this damn disease. When asked, what kind of bread are you...
  4. IrishHeart
    Hon, at least they ask. They seem to care! Maybe you should tell that what you CAN eat!! But it is funny that people do not "get" that white flour is wheat flour. I had someone ask me about this." So, is white flour okay then?" I asked "What do you think white flour is made from?" She did not know......
  5. IrishHeart
    Just wondering how he's doing.
  6. IrishHeart
    The book I recommended (above) Recognizing Celiac Disease --has quite a bit about gluten, what it is and how it "attacks", protein toxicity, antibodies, and what ensues in the GI Tract and the entire body in celiac disease. Not sure how much else there is to know after all that, but if I find anything else, I'll let you know.
  7. IrishHeart
    Too funny ...um, yellow color = what flour exactly, I wonder?? Did they say??
  8. IrishHeart
    :lol: :lol:
  9. IrishHeart
    Someday, soon they will. My new GI (not too far out of med school--maybe in his early 30's) represents a new crop of docs who are more celiac-savvy than the old school minds. Also, as more and more of us become vocal about it, and more people are DXed, all the old school thinking will change. The next generation will not suffer for their whole lives as so...
  10. IrishHeart
    Gall bladder disease was one of the first real problems I had. Even removal of that 27 years ago did not resolve things. It just got worse....No ONE in my family still has a gall bladder--not my Mom, sister, aunts, niece, or several cousins---all gone. Coincidence? Hardly.
  11. IrishHeart
    No one can make your feel inferior or belittled without your consent. Stop giving them your consent. Everyone that posted has given you excellent advice, but there is one more thing I would add. If you get tired enough of all this bullying and "know it all " BS that is WRONG, just smile and say...."Mind your own business. I'm good, thanks!" For...
  12. IrishHeart
    ...if you find yourself "seeing celiacs everywhere" and have to stop yourself from telling them their obvious ill health is from gluten.... ...if you have know waaaay more than you ever wanted to about the GI tract, poop and what makes for healthy bowels
  13. IrishHeart
    :lol:
  14. IrishHeart
    Thanks so much for these, Davey!!! hilarious!!
  15. IrishHeart
    I have nerve damage BODY wide. My scalp, back, neck, trunk, backs of my legs, backs of my arms, FACE ---BURN. My hands and feet burning and tingling and numbness resolved FIRST, but I still have a lot of stuff going on. My GI doc says he has never seen anyone with celiac manifest with symptoms as I have. He consulted two other GI docs and 2 neuros...
  16. IrishHeart
    Newbies are less likely to come to the Gab/chat room section in the beginning phase of using this forum as their focus is on finding answers. Here, though, we are free to discuss ANYTHING BUT celiac because that is what we all devote our free time doing and sometimes, we need a break from that, too. Most of us go overboard trying to HELP PEOPLE and treat...
  17. IrishHeart
    BUT a dairy allergy is NOT the same as lactose or casein intolerance!! Back scratch allergy testing has nothing to do with what we are talking about here. You may need to read about the differences between food allergies and the mechanisms of Celiac disease. Secondary lactose intolerance is quite common in celiac and is not diagnosed via allergy skin...
  18. IrishHeart
    Lactase, which is the enzyme that breaks down the sugar lactose, is produced in the tips of the villi. When the villi get blunted in celiac disease, sometimes the ability to digest lactose is decreased and you can become lactose intolerant. This may cause bloating, stomach cramps, diarrhea, etc. After the villi heal, most people are able to tolerate...
  19. IrishHeart
    Okay, ROSETAPPER and RAVEN have suggested what I thought of this morning for you but I will add I also had the erratic and pounding heart, A-fib episodes, wore a holter monitor 3X, over the course of 4 years--and it was NOT my heart. Anxiety, horrible chest and rib cage pain. ALL FROM GLUTEN AND CELIAC. Every single bone and muscle, tissue and tendon hurts...
  20. IrishHeart
    I was ready to say gall bladder ...until you said left side...hmmm.... Have you pulled a muscle by any chance? I had terrible rib cage pain before DX and costochondritis, but it has mostly resolved. My GI did a GI series with barium and small bowel follow through right after DX to check me out. I am surprised your GI did not do this, considering...
  21. IrishHeart
    If you go there once a week and she has NOT adapted to your dietary needs by now, you need to either politely school her on what is safe for you to eat so she does not make you things that you cannot eat and make you feel like you're ungrateful OR bring your own food, honey. Otherwise, for the rest of your life, you will be hungry and feeling left...
  22. IrishHeart
    :lol: :lol: Good one, Peter! I'm stealing it......
  23. IrishHeart
    Hopefully, your day was better today, hon!
  24. IrishHeart

    Thanks for accepting my friend request! And it is AWESOME to meet you!!!

  25. IrishHeart
    How very sweet of her ! Celiacs share a special bond
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