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IrishHeart

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Everything posted by IrishHeart

  1. My SkiLisa was the first one I met who had these symptoms besides me and we talked about it at length and compared our notes...we had all the research and had our Eureka moments together! It was validating to have Lisa concur with me....and my GI doc too....and then, I met Jess. I KNOW there are more of us with this celiac taga-long It's not something...
  2. Jess, I heart you. Thanks for sharing so much with us. G
  3. ADDY ! I am so proud of you! That's awesome -looking Risotto Milanese!! . I told you didn't I--that you would have to be very, very patient (not easy for someone with the excited patience of a toddler, I know. I used to be one of those, too.. But in cooking risotto, you have to s-l-o-w d-o-w-n) That is a slow cooking dish, but worth it in the end....
  4. I can tell you this: eggs gave me nausea, cramps and the big D --my whole life--and now, they don't. Yaay! So the eggs may be a person-to-person issue. The various lists of histamine foods vary online, I know --but the urticaria association does not eliminate them. I have been on a Paleo diet for a few weeks and my egg consumption has increased, but...
  5. I saw that Dr.Afrin thing too in the article and giggled (because we are both sillypants juveniles who are easily amused and see the irony) But...come on now, sweets....your brother has celiac!. you know it. he knows it.....nobody is sick without cause IMHO and with a sister with celiac.?? ..pls. tell me he has been tested.
  6. Dr. Jess is one of us. She is not a 'celiac doctor"--she is just a doc who has celiac. She is recovering herself and has graciously shared her knowledge and insight. We "met" on here and on Gluten Dude's site and compared notes and when she told me she was writing this article, I had to post it. I have put this info out there many times on here,...
  7. You may get sick from these things, but it is not gluten causing it, hon. I drink Bailey's and eat pickles and vinegar (not malt, of course) and I am fine.
  8. I am a bunny freak I love them I collect them (not real ones) I miss them I fed them on my property in NY and now we live in FL and I gave those new people explicit instructions... they had better follow through or bunny wrath will fall upon their heads!!!
  9. Don't be paranoid.... that's pointless. yes! I have some very , very good days!! I was really, really bad for years...I am not the same person I was just 3 years ago. I had many triggers for celiac. the MCAS can occur at any time....in anyone. Take heart....I went to the GYM 12 -15 X a month ---during the last year!! Before that, I could barely...
  10. But the way my skin, joints and muscles burn and itch?.....I would have to bathe in it. The autoimmune response has to "die down inside" after a big histamine hit. I have some spots, yes, but it's not a pinpoint spot so to speak. It is systemic. like heat is boiling through my blood and nerves. I am afraid that, in my case, a topical cream would never...
  11. I sincerely hope the allergist is savvy enough to recognize it for what it is. There are plenty of PUB MED articles on this disorder, but busy docs do not often read them (thank heavens my GI guys does. and he also reads whatever I bring or send to him! I know, he is awesome.) There are enlightened ones out there. Good luck, and please tell me...
  12. Mast cell activation syndrome (MCAS) is a condition with signs and symptoms involving the skin, gastrointestinal, cardiovascular, respiratory, and neurologic systems. It can be classified into primary, secondary, and idiopathic. Earlier proposed criteria for the diagnosis of MCAS included episodic symptoms consistent with mast cell mediator release affecting...
  13. Love, love, love coconut oil. I use it for cooking/ baking almost everything now.
  14. anti soprano et al...check this out? https://www.celiac.com/forums/topic/105835-mast-cell-activation-syndrome-mcas/
  15. Gluten free ---but feel as if you have been glutened? Have bone pain, your brain is fogged up, feel as if you have allergies, but you test negative? Maybe your heart races and you feel anxious, but have no clue why as you are not really an anxious person by nature? Feel like a vampire when you step out into the sun? Any of these below sound familiar...
  16. Happy birthday, congrats and now that you have told them--in detail WHY you can't have it--I do hope they stop asking and pushing food on you. Nothing says BuzzKill like them being persistent and you having to say it over and over and over. And 40 is the new 30 ....because once you go gluten-free...you age backwards! True story.
  17. I have used Custom Probiotics, JarrodophilisAF and a few others. Switch them up once and a while. They work wonders! And the Enzymedica Digest Gold worked very well for me when I needed to use.them.
  18. If you lived with me for 2 weeks, I bet I could make you fat. Hon, Sounds like you got the flu. Poor baby. Sorry about your daughter, and yes, there are some real asshats in the world. I was robbed twice years ago. My mom's house and once on vacation! It's a violation and you feel awful for a while, then you forget about it. I am glad they did not take...
  19. Really? Cuz I call it food hell. LOVE2 I cannot imagine how you are allowed less carbs than on a Paleo diet because this is pretty low carb, but you should be very careful. For what it is worth, I read this when I was deciding what I should do. 0-50 grams/day – Ketosis and Accelerated Fat Burning Acceptable for a day or two of Intermittent F...
  20. Colleen I ate so many Ghiardelli dark choc w/caramel with sea salt thingers over the past month that I cannot eat another one, so if we were snowed in together, I'd give you all of mine right now. if'n I had any that is. (trust me...they're gone)lol and as far as I know, LOVE2 .............does not not like chocolate. She prefers vanilla. Am I right...
  21. I always LMAO when you say "wobbly bits". I use it myself now. Each morning, I say to myself in the mirror...I am not chubby, exactly.....I just have wobbly bits. lots and lots of wobbly bits
  22. zoodles are zucchini noodles. http://www.againstallgrain.com/2012/07/30/zucchini-noodles/ http://reluctantentertainer.com/2011/09/how-to-make-zucchini-noodles-with-a-peeler-recipe/ One zucchini, one mandoline, or a veggie peeler or a very cool grater like the one I got from ama zon and you've go ZOODLES.
  23. That would stop me from eating it.
  24. I gave you a report on your other thread about the diet. so I will not take up the space here with that again. Take a look! and I am not getting on a scale until Jan.13 (one month). I expect to shed tons and be bikini-ready by April. lol I crack myself up. I wish to add that I also have to avoid high histamine foods because of some pretty awful...
  25. and like last year, you've got cabin fever... you're talking in rhymes again, sweets. oh yesssss, that sugar w/d thinger is a beeyutch. Hang in there, eat something with a bit of honey on it maybe? works for me..
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