MsCurious
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Hey Adalaide,
I'm a tomatoe lover too,! And with multiple food allergies, along with celiac disease, I was sad to find that tomatoes and I don't get along so well. BUT... because I'm stubborn, and do ridiculous amounts of research about everything...and always have... I decided to do a little research and try a few "tests" ...which I often do, to broaden my "safe food" list. After some trial and error I found that I can tolerate quite well actually.... Roma tomatoes ... IF ... I cut out the fleshy center and rinse out the seeds, essentially leaving the outer tomatoe without all the "reproductive seeds and juices". Its amazing what a difference that has made! I can eat them with no problem if I do this little bit of prep work. Just take out the seeds and rinse .... and I'm good to go.
Nobody was more surprised or happier than I, that I could still eat tomatoes! I put them on sandwiches, and in salads daily...with no more issues. I haven't tried this with other varieties...although I'm planting 3 different varieties and will try this with them, as well to see if I can tolerate them.
Hope this helps you! -
When I finally got brave enough to try eating out, my husband and I went to PF Chang's which is fabulous in downtown Sacramento and Roseville, if you're near there...give it a try! They use special plates with PF Chang's logo on them to signify gluten free. The waiters are all trained, and immediately bring gluten free soy sauce, etc. I did get glutened once, when I didn't notice they brought the lettuce wraps on a regular plate and not a logo plate. Now I'm very aware and make sure that's what my food is served on.
Having, good luck there...we decided to try Chipotle's across from Sunrise Mall. We had seen that they advertised gluten free food, and I was very excited to have another option. When we arrived and waited in line, I keenly observed the crew behind the counter. All had their gloves on... good sign, right? So I watched the first person grab a flour tortilla, and slap it down on the paper in from of him and grab a spoon full of beans and smear it on the flour tortilla...and then toss the spoon back into the beans. Clearly, the beans were off limits. Next he grabbed a spoonful of rice and did the same thing, although the spoon didn't touch as much of the flour, back in the rice it went. BUT, I was hopeful that maybe I could have some meat and maybe some lettuce and tomatoes or something pretty basic. As that flour torilla was passed along to the next person, she grabbed the edges of the flour tortilla and turned it on the paper... guess she didn't like the angle it was facing.
Then she jammed her flour contaminated glove into the lettuce tub, and then into the tomatoes and what ever else.... THEN she folded the flour tortilla and rolled it up... wrapped it in paper and grabbed the next one coming down the counter... again jammed her contaminated glove into the lettuce, and cheese etc... This went on for 5-6 orders before we got to the counter.My husband, who is not gluten free, ordered his lunch and I declined. When we got to the register ... the MANAGER of the Chipotle on duty at the time... looked at the order and said... Is this all your ordering? I said, well, yes it is. I had hoped to dine here as well, but your employees have cross contaminated all of your gluten free food. She looked at me and laughed flippantly and said... "Yeah, I guess we should be more careful, huh?" And that was it! That was all she had to say about it. She didn't care. She didn't apologize, and certainly didn't make any indication that she would attempt to change anything. I would NEVER EVER eat at a Chipotle's after that experience.
There may be some places that are okay, but I would watch before ordering. I was much happier to go home and make my lunch, than to be sick for 5-6 days... and I would have been, from what I saw. Just a heads up.
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This sounds like it could be Dermographism. Not a lot of people have it... I'm a "lucky one".
Along with all my other allergies and intolerances, I was diagnosed with this when I had all my allergy testing. Its something I've had my whole life, and just never really thought much about it, but here are some examples: When I was little, my brothers and sisters and I would be playing and we'd write "notes" on our skin with our fingers...well my brother and I would (he has it too) ... skin would immediately welt and the writing would stay there for a few hours.If I cry, my eyes immediately swell up, and get really puffy. Once they swelled shut and I looked like I got in a fight with Rocky... just from crying. It took two days for the swelling to go down and for my eyes to start looking a little normal. Yeah, I think gluten had a huge impact on that too, because once gluten free... I don't have as much problem with that anymore. Now, things that would make my skin immediately react and swell, don't as much. I'm still hyper sensitive to things but the swelling is a lot less now.
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Hi there, MsCurious
Thanks for making a return visit and sharing your good news with all. There will be many a heart warmed by reading your post and many a hope revived!Hey Mushroom! It's great to see you! Nice to see faces that helped get me through those terrifying, just learning stages of testing, and coping! You all made such a difference, and for that I am so grateful.
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Oh yeah.... dittos on most of these posts! GERD, IBS, colitis, diagnosis, just like Irish Heart (HI Irish... long time no see! ) ... and for me, going gluten free, and dairy free (dairy probably had a bigger impact on stopping GERD) along with eliminating coffee, citrus (orange juice, lemonade, etc) and also eliminating pork, which I was surprised to learn that I'm allergic to... all of those things made a HUGE difference. In fact I would say .... if I have GERD symptoms once or twice a year, that would surprise me. Its essentially a thing of the past for me, but I am VERY vigilant about eating only things I have tested and I know don't make me sick in any form. My blood tests were all out of whack when I was diagnosed... including having high levels of eosinophils (eosinophilic esophagitis) which they found correlated to Celiac Disease in I believe it was a study in Netherlands. It was something close to 50% of 405 kids tested had BOTH! Anyway... like I said, almost all my blood tests were out of whack when I was diagnosed, and six months later.... ALL NORMAL!!!!!!!! .... ANd STILL normal! Keep in mind... I was SO SICK of being sick that I literally did not put ANYTHING in my mouth that I knew would make me sick. If I did get sick a reviewed what I ate, until I could eliminate the problematic food. A lot of people don't think they need to do this, and suffer instead. I wasn't willing to suffer anymore once I learned that food could make me so sick (ei: gluten). For me that opened up the though process of... okay if gluten can make me so sick...what if something else is also making me sick. In my case, it turned out to be true on many fronts. Along with gluten and dairy intolerances, I have multiple food allergies, ranging from apples, peaches, cherries, melons, celery, carrots, shellfish, and pork...to name a few. I also found out that High Fructose Corn Syrup is the devil! That makes me sick too... and I avoid it at all costs, along with food dyes, preservatives, and any "itol" fake foods, like sorbitol (doctors orders). Anyway, long story short, YES you will get better, but there is no magic bullet. It takes time and persistence, to figure out what your body is reacting to. Once you figure that out, you will no longer have GERD.
I'm living proof of that. Best wishes to you! -
Hi Celiac.com Community!
It's been quite some time since I have posted here, but having just hit my two year anniversary, I had to pop in and see how everybody is doing. So "Hi", to all of you who remember me, and greetings to the newer posters!.
I have been on a long journey to get to today, as most of you have, and I've learned a LOT! I have learned that you have to take your health care into your own hands, to a certain extent, and not wait for or expect doctors to have answers, because often times they don't. I did endless research, and "testing" to figure out what was making me sick, food-wise. It is still a work in progress, but since my diagnosis, and going gluten free, and dairy free (which in my case is just about as serious as the gluten issue, and was wreaking havoc on my insides), I have had allergy testing and found that I have multiple food allergies (probably caused at least in part by gluten issues, which caused leaky gut, etc.) But it turns out that I am allergic to a plethera of fruits, apples, melons, pears, cherries, peaches, etc, and celery, carrots, seafood/shellfish, and pork to name a few. Life is challenging and I have a list of things I know I can safely eat without issues.
I started out with chicken, then I added peas, then rice. Now in the mornings I make a quick satisfying lunch to take to work in my thermos container. So easy and safe! I boil about 1 cup of water with a little salt, toss in a little instant brown rice, precooked chicked, and a can of peas... toss it into the thermos, save the rest for tomorrow, etc. Fast... easy... safe... tasty, and best of all, I feel great!
For dinner, I usually have a salad, and I've found a few tricks that just rock! Romaine lettuced chopped up, chopped roma tomatoe without seeds, black olives, sunflower seeds, sometimes a little chopped avocado, sometimes a little chopped chicken or some ground beef. THEN I squirt some LaVictoria mild taco sauce on top to give it a "wet and creamy" texture, and about tablespoon of Kraft Lite Catalina dressing! Fabulous fresh salad, so satisfying and yummy! Not only do I have the gluten and dairy issues, and the above mentioned additional food allergies, but I also can not tolerate HIGH FRUCTOSE CORN SYRUP .... YUCK AND OUCH! That's brutal nasty stuff! DO NOT PUT IT IN YOUR MOUTH! Makes me so sick! Also, doctor told me not to put ANYTHING that ends in "itol" in my mouth. Sorbitol, etc.... BAD BAD BAD! I also stay away from food dyes, as they also make me feel "icky". On a happier note, my mom called me a few weeks ago and said... "Hey, did you know you can have Pearson's Salted Nut Rolls and Junior Mints"? They are gluten and dairy free! Now I don't eat a lot of "treats" but that was fun news! I also indulge in Gimbles "Scotties" black licorice "dogs' and they also have gluten-free jelly beans!
Ohhhh and here's a REALLY wonderful treat! Dream Rice or is it Rice Dream (non dairy ice cream) has a new flavor... Praline... SOOOO GOOD.... but here's the real treat: Slice a banana, and cut up some fresh strawberries, or any other berries you love, and take baby spoonfuls, about 1/4 cup, of the Praline Rice Dream and toss it in the bowl. As it melts it makes a very smooth creamy sweet and yummy treat, and you don't need much of the Praline for it to taste sinfully FABULOUS! It is to DIE FOR good!
Sorry, if any of you have peanut or nut allergies, because the Praline and salted nut rolls won't work for you, but for those of you like me who are allergic to so many "goodies" ... these are two treats that are fun!
I continue to try adding one food item at a time to my diet to see if I can tolerate it, and I continue to try to expand my list of things I can safely eat, and that is what works best for me, because even though I have celiac disease and can't have wheat, barley, rye, etc... I think I miss dairy more! That's harder for me, and so many of us have both issues. If you are not feeling better being just gluten free, I would suggest doing what I have done over the past two years. Find a couple of foods that you know you feel great after eating... then once a week or every three to four days, try adding a new food... but not more often than that, as it takes sometimes a few days for issues to show up.
Here's another heads up. I thought I had egg issues, because I would constantly get tummy aches after eating eggs. Then I saw a special on the egg industry and found out that a lot of "big box store" grocery chains use big factory egg providers. Now they date the cartons, and you "should" be able to know if the eggs are fresh, but they showed that the outdated cartons of eggs were picked up...repackaged with NEW expiration dates!!!!!!!!!!!!!!!!! UGH! No wonder I was getting sick! I found s new source of eggs from a specialty store that has organic eggs from a "non-egg mill" source, and low and behold... with fresh eggs, I'm FINE!!!!!!! So be careful! Those dirty dogs ... the greedy corporations don't care about health,...they just want $$$, and they don't care who they make sick along the way.
Look at MONSANTO!!!!!!!!!!!! Isn't it interesting that they were so terrified that California was going to pass the GMO food labeling law, that they spent MILLIONS and MILLIONS of dollars just a few weeks before the election to scare people into voting it down saying it would drive up food costs? My mom had an interesting observation about that... her comment was... IF they didn't have anything to hide.... why were they so panicked that they spend MILLIONs and MILLIONs of $$$$ to stop the GMO Food labeling law? Makes you wonder doesn't it? Anyway, I digress....
Two years later, no more sick, no more brain fog, no more tummy aches every day! I work 40 hours a week, which I could not have done two years ago... I was too sick! So things have completely changed in my life! I'm so careful, and prepare my own food. I don't participate in work food events, potlucks, fund raising breakfasts and lunches, etc. I just flat out told my boss and my co-workers, that I have an illness that prevents me from participating, but that I hope they enjoy the festivities. I'm happy and healthy, and they don't really "get it" but they don't bother me about it. I'm just so happy to be able to be at work and not be sick! I feel about 20 years younger than I did two years ago, and that is the honest truth... its just AMAZING!
I have a wonderful husband, and we just celebrated out 4th wedding anniversary yesterday. He's so supportive and thoughful about my food limitations. Traveling is a challenge, but not impossible. I plan ahead, prepare for delays and have backups with me. Bananas are a great meal substitute in a pinch!
Anyway, I hope this post gives some of you some helpful information, food for thought, and last but not least... hope that it DOES get better! I feel totally normal, and the food thing... well you figure it out...what works for you...and you don't miss the gluten or dairy or what ever else, because you feel GREAT!
Why eat posion if it makes you sick, right? Best wishes to all my celiac and gluten sensitive brothers and sisters out there in the world! You are not alone!
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Hi to my fellow celiacs... I wondered if any of you have gotten information on Pappy's seasoning? I've been diagnosed and gluten free for 7 months now, and having found out that I have other food intolerances as many of us do...has been a journey. When I was first diagnosed, I called every company I had products from, if they didn't have clear labeling, and tossed everything gluten. I've been trying to figure out what is causing me issues and a lightbulb went off tonight after consuming something I used Pappy's seasoning in.
Have any of you had issues, and more importantly...has anyone gotten confirmation from the company whether or not Pappy's is gluten free? The label looks okay, but I'm VERY suspicious. When I Googled it, I found someone else asking the same question and one response from June 2011 that said they had confirmation from the company that the 50% less sodium version WAS gluten free. I found it ODD that they didn't say they were both gluten-free. I'm going to call them tomorrow, but wondered if anyone had the answer already. Thanks!
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Hi Gemini,
I'm curious about others who have double DQ1 as well. My Dad has double DQ1 subtype 6 and has MAJOR issues with ataxia.. balance issues started about 6 years ago...but they didn't put two and two together, walks with a wide gait, had chronic hives for close to four years and no doctors could relieve them. He is considered by the medical community to be "wheelchair bound" although he gets around with a walker and assistance from my mom, but has falls way too often. There are many other things ... difficulty swallowing, slurred speech, arthritis, joint pain... so many things.
After trying to get doctors to listen and test him, I finally went with him to a doctor appointment and asked if they would test him. When they said no, I said... is it okay if he goes gluten free? The doctor said, well, it certainly won't harm him, but its not going to help either. My dad went gluten free in April, and his chronic hives went away, his gait is more normal, his speech is improved, his strength is better. His doctor was stunned to find that out that his 4 years of chronic hives were gone, and is going to try gluten free on 4 other patients with chronic hives that he hasn't been able to treat successfully.
We saw Dr Joseph Murray at Mayo Clinic in Rochester, MN (head of Mayo's Celiac Research Dept and practicing GI) a couple of weeks ago... who said, almost all people he sees with gluten ataxia are wheelchair bound at their first visit, because this doesn't get diagnosed accurately or quickly and there is about a 6 month window from onset to no reversal of neurologic symptoms. I should add to this that my dad was always VERY athletic, agile, active... and for years... you would never have suspected that gluten was doing its dirty work on him. He is now a very different person from the dynamo that he was. Gluten takes its toll in a very very destructive way. Also, people should be aware that 15 percent of celiacs have digestive issues... 85% do NOT. Digestive issues were thought to be key, but they've realized that the people with digestive issues screamed loudly and that's why they were heard... others didn't have those types of symptoms... therefore didn't/don't get diagnosed.... for a VERY long time... if ever. There are so many doctors that are so clueless. Gluten is a systemic poison...and it doesn't affect just intestines (although that is a primary symptom for me personally... it isn't the case for my dad).
Please...if you or someone you love has symptoms like these... and double DQ1... get them to go off gluten PRONTO! It is pure poison to their system. My dad unknowingly ingested the toxic gluten for 80 years and it wasn't until he'd ingested it for 65 years that symptoms showed up.... damage had been done for years and years. My Mom is diabetic and carries the DQ2.5 celiac gene... I have that from her and the gluten sensitive gene from my dad.... an unlucky combination, but I finally was diagnosed with celiac after many many years, and things have turn around 98%!!! I feel like a different person. It scares me to no end that I could have ended up like my dad in 25 years. Don't let them tell you double DQ1 isn't a big deal...its a HUGE deal.
There are studies being done ... and in fact a paper was publish about it, but most doctors don't stay abreast of the research papers like they should. You'll find it if you Google it. I don't know if ALL of my dad's issues are caused by gluten, but a good chunk of them seem to be directly related. And I know what it does to me, and I have 1 DQ1 gene. Good luck to you... hope you find the answers you seek.
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Thanks for your replies. Just another question: Is it only possible for you to have two HLA-DQ genes?
(i.e. my mom has hla-dq2 and hla-dq8 does that mean she won't have any other hla-dq gene? (e.g. hla-dq3, hla-dq4, etc.)
These links will help explain things to you. You only have two... one from mom ... one from dad.
You inherited either HLA-DQ2 or HLA-DQ8 from your mom, and you inherited one gene from your dad (he has two but you got only one of his).
So essentially, you have one gene for sure that can predispose you to getting celiac disease... however that does not mean that you WILL get celiac disease... just that the possibility exists.
And if you have HLA-DQ2.5 rather than HLA-DQ2.2 you're in the pool of possibility ... but according to this recent study (below link)HLA-DQ2.2 is not a factor in celiac disease, unless it is accompanied by HLA-DQ2.5 (but not vice versa).
Now that you're sufficiently confused, here are the links.
(PS: DQ2.2 and DQ2.5 are both referred to in general terms as DQ2, however they have a significant difference that causes DQ2.5 to be directly related to celiac disease, whereas DQ2.2 is not unless it is accompanied by DQ2.5) Its all explained in the link.
Open Original Shared Link
Open Original Shared Link
Good luck to you! Hope you find the answers you seek.
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Thanks so much you to for the quick and helpful answers! So nice of you to take the time to share what you know...it really helps me out a bunch! Now I feel like I can proceed with confidence... and figure this out. You're both great! Gotta love these forums for help from great people! Have a great weekend!
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[fonft=Comic Sans MS]
Here are my thoughts on Enterolab. I wrote this in another thread and to make it easier to find since I keep repeating myself I stuck it in my forum blog. In brief, yes they do tell too many people that they are positive for gluten intolerance.
Also, as far as I know, Enterolab only tests HLA-DQB1 so you will only see the DQB1 *0201 from DQ2.5. If you want the alpha chain result to be sure you would have to get him tested elsewhere. Enterolab does tell you all your B1 results rather than yes/no for DQ2 and DQ8 which some people really like.
I would recommend you get genetic test pricing from Kimball and Prometheus. They do not report all of the B subunits like Enterolab, but they test for A1 *0505, which you need.
Open Original Shared Link
Open Original Shared Link
Thanks for your comments, Skylark. I'm really not so concerned about the genetic testing from Enterolab, since they get it done through the Red Cross, and even though they only test the DQB chain... in our case that doesn't matter since I'm DQ2.5 positive and the alpha and beta chains are always connected. If he has the DQB positive, the A will also be positive in his case. I was more concerned with their "other" tests... for food intolerances, etc. I don't want to pay for them to test if they just tell everybody they're intolerant to what ever they request a test for.
I will check with the other two labs that you suggested though... and see how the pricing is for the genetic test. Thanks again for taking the time to respond... I really appreciate it, Skylark. Happy Independence Day! -
Hi again everybody!
Should have included this with the last post, but forgot.
I have figured out how to zero in on fructose intolerance, and I've been lactose intolerant for many decades, but I'm a bit lost and confused how to isolate soy intolerance. Maybe its because I can't think of any "soy" by itself that I eat. It's usually some component of other foods, at least that are familiar to me. I know there is tofu... I think that's soy, but honestly, its not something I have ever bought, nor would I know what to do with it if I did. Anyway, any of you have a good suggestion or two, of how to test for soy intolerance... I'd really appreciate hearing from you. Thanks so much... and have a great July 4th! -
everybody,
I'm looking for help from those of you with experience with Enterolab. Never thought I'd be looking at possibly using their services, since I am covered for just about anything that could possibly come up. But my son isn't so fortunate with his insurance. I have been tested positive with HLA-DQ2.5 genetic marker, and I have come to realize that I just will not be worry free until my son has been tested, to know whether or not he needs to monitor things in the future. So, I'm considering paying for Enterolab to do the genetic test on him. I just wanted to know if any of you have had experience with them, and if those experiences were good or bad.
I guess I would love to hear from someone who tested more than one person in the family and had some positive and some negative test results. Silly as it sounds, I just want to hear from someone that they don't just tell everyone they have tons of allergies/intolerances and genes etc. Call me paranoid, but there's so much incompetence out there... I just need to hear from people who have used Enterolab, so that I know its an okay place to do this. I understand that they send the sample to Red Cross for processing, so I guess it should be valid. Thanks in advance for your responses. It will ease my mind. I'm considering calling them Tuesday morning to order his kit.
Have a wonderful Independence Day everybody! Enjoy your gluten free BBQs!
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Hey nik,
Welcome to the boards and the gluten free life! I was just popping in to catch up with things and happened to read your post. It took me from January to April to get all the testing done and finally go gluten free, and it has been AMAZING to feel so great again. However... having said that, I too have had the roller coaster of fabulous week or so ...with a set-back ...then great again for a couple of weeks, then a minor set-back, etc. I diligently read labels, and keep my cell phone handy while shopping so I can "pester" the people who don't label sufficiently, so I cant get the info I need to stay safe. Still, doing all those things hasn't been enough sometimes, so I decided to keep a food journal... prompted by so many people here having multiple food intolerances along with gluten. I knew starting out that I had gluten and lactose/casein intolerances... but have since found that fructose is a problem for me as well. Perhaps something like this might be a problem for you?
I've had allergy testing and am allergic to many fruits and shellfish... so along with dairy and gluten, I have quite a challenging diet, but its quite doable when I know how good it makes me feel. Tonight I made my husband Fettucini Alfredo... all of it essentially poison to me, and I was quite happy eating my gluten-free food, even though it wasn't the same thing he was enjoying. I knew I'd still feel great the next day. Perhaps, you could try a food journal and see if you find anything that continues to show up when you "have issues". I am doing an elimination diet, eating only foods I KNOW I can tolerate and then adding something "suspect" every 4th day if I'm still fine. That is working wonderfully, as now I know specifically what foods I can't eat with out adverse reactions, and I have a good solid list of "safe" foods to fall back on. Hope this helps give you some ideas, and continued hope! You will get better! Hang in there, and be persistent and positive! Good luck to you...and Mamabear too!
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With all the recent travel I've done, I needed "emergency" foods available in my purse, so L
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I signed it, and hope they take it seriously. gluten-free and other food intolerances and allergies need to be taken seriously! Hopefully, it will become mainstream, and Girl Scouts could help make that happen.
Good for them! (I was a Girl Scout) -
Hi everybody,
Hi to my "old" friends here, and greetings to the new people! I'm back from lots of travel and its been about 6 weeks since getting answers and going gluten and lactose free... and WHAT A DIFFERENCE!
No more sick tummy, headaches, fatigue... I FEEL GREAT! YAY! And I have to admit, I was a bit terrified of traveling, but planning ahead and being prepared, with my own food really helped.
Visited my mom and dad and got them completely gluten free... including converting their kitchen and getting them used to what new resources and kinds of foods to buy, and where to get them. It's been GREAT! My dad's chronic hives have gone away!
We went to visit family for the weekend, and I was kind of stressed about it, but had my husband phone his sister and tell her to not worry about me, just make regular food that she would normally prepare and I took everything for me for the weekend. That way I didn't have to stress that I'd accidently get CC'd and she didn't have to stress about making me sick. I made it a non issue, but have to say... it was kind of tough when they were all enjoying icecream cake with yummy looking chocolate wafer crust and gooey fudge filling! And the lemon cake and ice cream the next day (nephew's graduation)... and all the other goodies, but I FELT GREAT! I also didn't consume TONS of calories that they did! LOL My husband said he thought he must have gained two pounds on that trip!
Anyway, the adjustments have been fairly easy, and the substitutes are so good that I DON'T feel deprived at ALL...which really has been a nice surprise! Now that we're home again after being away for a month... I'm headed to Whole Paycheck....errrr I mean Whole Foods
... to stock up on some good healthy yummy foods. Just a note for those of you just starting out with the gluten-free diet... personally I think Udi's bread is great for sandwiches, but Rudi's ... not so much. Rudi's is really crumbly, and seems like eating sawdust in its untoasted form... but having said that... Rudi's makes FABULOUS toast! I have no idea why that is...but it is! LOL
And Rudi's has great raisin bread for toast too. Udi's is best for sandwiches though... if you want untoasted bread... at least in my opinion. Having said all that, I want to thank all my supporters here, who have been so helpful in this transition time... giving me all those great traveling tips, and clues how to get through this transition time without losing my marbles! You're all GREAT!
I can't wait to find the time to catch up with everybody's posts! See you later... off to the market. It's good to be back! -
What brand salad dressing was it? Did you chop your veggies on a wooden or plastic cutting board previously used for gluten? Also it may not be a gltuen thing, it may just be that you need to avoid raw veggies for a while. My stomach could not handle raw veggies and beans for about the first 6 months I was gluten free, but now I eat them all the time.
Hi GFM, It was Paul Newman's Raspberry and Walnut. And yes... I did use a wooden cutting board... previously used for gluten...
I forgot. It's not the raw veggies... I love salads and eat them all the time. It was probably the cutting board. 
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Hi MsCurious. Glad you are feeling better on the diet. Sorry to hear you had a set back. I went to a dietitian recently for gluten intolerance and she showed me the FODMAP diet since I mentioned I was better but still bloated. The FODMAP diet takes in the gluten free diet plus other food triggers that can cause symptoms. I have been on the diet for a few days and I feel even better. The diet originated from Australia and information is hard to come by in the states. There is one dietitian (Open Original Shared Link) in the states who wrote a book on it. There is a web site that is run by Australians and US mentors for the diet on
Open Original Shared Link which requires one to sign up. The diet was founded by Sue Shepherd (Open Original Shared Link) and she works with Celiacs also. Believe it or not celiacs can have fructose malabsorption in addition gluten intolerance. The diet is very limited to begin with. Then the FODMAP diet has a elimination process to figure exactly which foods (such as lactose, fructans, polyols, galactans, fructose) we individually have a malabsorption to.
Hope you feel better soon.
Ohhhh, interesting! I have wondered about fructose myself. Limited is good for me, since I seem to have so many other no-no's besides gluten. I will take a look. Thanks SO MUCH for the links, Igg!
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It's okay...UDI's white bread and plain bagels are DAIRY FREE!! Otherwise, yours truly would not be eating them!!
Good luck shopping!! You're gonna be okay!!
YAY!! Thanks so much, Irish, Karen and Rose!! WOOO HOOO... its DAIRY FREE! That makes me SOOOO HAPPY! Now I'm all set, I think! You guys are GREAT!
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I buy Erewhon Cereals and Lara Bars right at my supermarket... Hannaford (is that chain in California??)
This site's Gluten free mall carries those things, but I know you need them now, so that's no help. How about a Whole Foods? Man, I wish we had one nearby.
I like UDI's bagels and breads. We resorted to making our own bread, though, as it is cheaper and stays softer longer. But we keep the Udi's in the freezer for "just in case".
We are lucky we have a gluten-free cafe and bakery nearby that makes stuff, too. Do you have one near you??
For travel sammies, the Udi's plain bagels work really well!
Thanks Irish! I'm in Cali, but don't think we have Hannaford, but we do have TJ's and Whole Foods, so I'll run there today. I'm going to have to do a bit of research on the breads. I wonder if anyone else has found a bread that is both gluten and dairy free. It almost seems impossible~
Wish me luck... going shopping in just a bit. -
I'm a fan of Udi's white sandwich bread and whole grain bread, and you can find it in the frozen food section of Whole Foods and many chain supermarkets (some Safeways, Raley's, Nob Hill, Ralph's, etc.). I've found that the best way to keep it fluffy for making cold sandwiches is to place several slices in a plastic sandwich bag. The warmth of the outside air (or in a car) steams it to perfection. Otherwise, if I'm making a grilled sandwich with it, I defrost a couple of slices in the microwave--wrap the slices well and only heat for 10-20 seconds (depending on the strength of your microwave), and then turn the slices over and heat them again for 10-20 seconds.
When I take plane trips, I take gluten-free Crunchmaster crackers (can be found in the cracker section of most supermarkets, and you'll love them!), slices of cheese, small packets of peanut butter, a couple of apples, a few Lara bars, and a gluten-free candy bar like Reese's Peanut Butter Cups. As for food AT airports, that's a little more complicated. I generally choose a steak place and order a baked potato (after asking the usual questions) and a small steak with vegetables. Many airports, however, only have fast food restaurants, so you'll need to be really careful. Definitely don't eat any Chinese or Japanese food at the airports!
Have a great trip!
Thanks so much rosetapper23, I just had a thought though.... about the bread. I'm still new to this, and haven't purchased anything "processed" yet, and I forgot about the fact that it can't have dairy in it!
I'd bet it does... I'll have to check their site for ingredients first, I guess. Thanks though for all your time and info! -
I found them in a specialty kitchen store near me so I didn't have to pay shipping. There are lots of places to order them.
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For bread, most people like Udi's, Rudis (becareful when choosing as they make wheat bread, too) and Canyon Bakehouse. whole Foods is the easiest place to find them but lots of groceries have them in the frozen health foods section.
Remember that the people you are visiting make regular pasta in thier pans and colanders. Pasta scum is hard to get out of the little cracks and colander holes. I bought a pan with a lid, a fry pan, spatula, folding colander, cutting boards, big plastic spoon, & cheese shredder to take in my suitcase. I get the flat flexible cutting mats. Got them 2 for $1 at the Dollar store but other places have them. like this:
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Oh, thanks a bunch kareng... great info! I think I'll get the colander and cutting board to go. They have stainless steel pans and spoons etc, so that should be okay.
Thanks for the bread info. I've not tried Whole Foods yet...but I'll stop there today.
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Hi FreeMe808! Thanks for the thanks!
Its so gratifying to see any posts...old or new... help somebody else out! I had forgotten about this post ...and all the babbling, but reading it now... a few years later... WOW, I've come a long way....and mostly without doctors help, mostly kicking and screaming my way to my diagnosis. They didn't want to even consider it, and I was right. The doctor looked pretty sheepish when he told me my results of biopsy, etc. Interestingly, he pulled my husband aside when I was in the "recovery" area, and told him ..... she can't have ANY DAIRY EVER! ... Not even a spec of powdered milk in a mix or in a piece of chocolate, etc. And he'd been very firm about that to me, as well. He never did tell me why that was such a biggie ,but I don't touch it with a 10 foot pole, between that and gluten being removed from my diet, and figuring out a few other food allergies that I always suspected but that were never confirmed. Now I'm doing great! Who knew that when melons made my throat itch and made me hoarse... I was allergic to them. I'm so dumb ... I just always laughed it off and ignored it. Sheesh. The best thing I've learned to do, is to listen to my body. It knows what it wants and likes and what it hates....and it definitely lets me know! 
Hope you're doing great too! On a final side note.... I haven't been to the doctor except annual exam...since going Gluten-free Casein-free....and I've never felt better! Blood tests that were all out of whack are now perfect... It's just amazing.