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Kate79

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Latest Celiac Disease News & Research:

Everything posted by Kate79

  1. Kate79
    I had positive celaic blood work, but no endoscopy was done. I was tested for vitamin dificiencies - low in vitamin D and Magnesium. When I had my testing done, my doctor's office gave me a list of all the tests they wanted to run, along with their testing codes. They had me call my insurance company to confirm what would be covered before any testing...
  2. Kate79
    Maybe. In my family, there are only a few of us diagnosed - me, two of my aunts, and one of my cousin's children. I don't have any kids and my parents are are not diagnosed as celiac (though my mother refuses to get tested, and it's her sisters who have it, so who knows). One celiac aunt has five children, none of whom are diagnosed celiac. The other aunt...
  3. Kate79
    I've not seen actual documentation of it, but an Italian friend of mine told me that it was routine when her kids started school in Italy. This would have been 2006 or 2007, I think. I can't think they did regular screening before the newer blood tests were created, though, which is relatively recent. And perhaps it depends on the area of the country ...
  4. Kate79
    Can you have flax? I've seen a lot of grain free bread recipes that use that, in addition to coconut or nut flours. If you can tolerate other nuts besides almonds, you could also make your own nut flour out of walnuts or whatever by putting them in a food processor. Personally, I've gone grain free and I don't really miss bread & baked goods much...
  5. Kate79
    I've gone through a minor form of this - mostly post-glutening - where I just don't want to eat anything for a few weeks and it's all I can do to eat a meal or a few snacks a day. It's not the same level as what your experiencing, but I can sympathize with what you're going through. If you have less of a problem with liquids, I'd recommend smoothies and...
  6. Kate79
    Try using restaurant cards, and also look up some common french foods so you can kind of figure out what is likely to be safe ahead of time. I was recently in France and Belgium, and I ate a lot of grilled steak, steamed/grilled fish and shellfish, french fries, and salad. I had them leave off all the sauces, and I didn't have any gluten issues at all over...
  7. Kate79
    I first search for restaurants with gluten free menus and see what (if anything) they say on their website. Ironically, I feel more comfortable with a restaurant that has some kind of disclaimer about cross contamination, shared fryers, etc. - because at least then I know that they understand that it IS a problem. If the restaurant looks like it might be...
  8. Kate79
    I'd just like to give a shout-out to Portland, OR as a great place to visit (or live, if you're lucky) if you've got celiac disease/gluten intolerance. My husband and I just got back from a long weekend there, and there are an astonishing number of gluten-free options - including several totally gluten free places. Restaurants are also pretty knowledgeable...
  9. Kate79
    I've had two good experiences at Border Grill. They've got a specific gluten free menu and know what they're doing. Not cheap, but not horribly expensive either. Also eaten at the Burger Bar in Mandalay Bay - I had to get the burger without the bun, but it was still good. And they've got a dedicated fryer so you can have the french fries. The P...
  10. Kate79
    I ate at Razzi's Pizza when I was visiting Seattle last year. They've got a huge gluten free menu and the pizza was tasty. They carry gluten-free beer, too, if you want that.
  11. Kate79
    The whole article is an insult - especially since it's published on a 'science' website. The guy obviously has some weird political axe to grind. Not sure why, since both me (very liberal) and my aunt (evangelical conservative) suffer from it, lol. But the part that really made me mad is that his scientific facts are just plain wrong. No testing for...
  12. Kate79
    Right here: Open Original Shared Link NPR did the above story about a British man who infected himself with hookworm to treat his debilitating allergies/asthma. Apparently it worked, and for awhile he was selling his 'treatment' online, but I'm pretty sure he got shutdown.
  13. Kate79
    Just wanted to mention a couple of new places in Chicago that are totally gluten free: Filo: This place opened last spring, I think. It's kind of a hole-in-the-wall and has a small menu, but it is totally gluten free, tasty, and pretty cheap. Dinner runs about $10-$15 a person, including soup & dessert - it's also BYOB. They're also open for brunch...
  14. Kate79
    I had really bad sciatic pain that coincided with a glutening last winter/spring. Lasted for about a week. Only time I've had that symptom, so I don't know for sure if it was gluten or something else that just occurred at the same time. Glad the acupuncture is working and hope you're feeling better soon!
  15. Kate79
    If you're still in Paris, there's a gluten-free bakery there now called Helmut Newcake. They also offer small meals. Just opened last year; I stopped by when I was in Paris in February and it was very good. Owner speaks English. Here's an article about it, along with their contact info. It's in north-central Paris and near a metro station. Open...
  16. Kate79
    Just saw this press release through a mailing list I'm on and thought people here would be interested. Apparently, 'low gluten' beers that are made of barley but claim that they are processed to remove the gluten (like Daura, for example) will no longer be able to use a gluten free label due to concerns that they may still contain gluten. See here for...
  17. Kate79
    Yes, I went there a bit more than a year ago after having a positive celiac blood test & family history of the disease. I don't remember the name of the doctor I saw (a younger woman, she was very nice) but my experience was fine. When I went there I was already on a gluten free diet, so they couldn't do much in the way of follow-up testing from my...
  18. Kate79
    Hi all... looking for some advice... I've been traveling for work since last Friday, first in New York, and now in Paris, France. I always bring a lot of my own food with me, so I'm prepared for emergencies and I don't have to eat whatever is offered, but I do have to have some business lunches/dinners in the course of my trips, and I don't have full...
  19. Kate79
    I'm also paleo-ish - I drink gluten free beer and wine, and occasionally eat dairy and chocolate - and I can't totally give up corn tortillas and corn chips, but I definitely limit the amount. I haven't read any paleo books, but there's a lot of good websites out there with suggestions and recipes. Mark's Daily Apple, mentioned above, is good - but just...
  20. Kate79
    I've used trader joe's spices. In general, they are good about listing 'may contain wheat' or 'made on shared equipment.'
  21. Kate79
    We put our dogs on a grain-free dog food after one of them started getting really bad D - sometimes several times a week. We made that change about 6 weeks ago, and since then, he's been fine. Evolutionarily, I'd think dogs (and cats) would be even less adapted to grains than people are.
  22. Kate79
    Migraines with nausea are by far the worst, with emotional symptoms and fatigue second. I do get some GI symptoms, but those have been manageable so far.
  23. Kate79
    I don't know, because I haven't been glutened by anything BUT cross contamination for the 15 months or so I've been on the diet. It's pretty bad, though, and usually involves a couple of days of migraine, along with depression & irritability - and sometimes D and/or C. Personally, I feel like I'm more sensitive to trace gluten than I was before the diet...
  24. Kate79
    Don't get Amy's. I tried one of their frozen pizzas and it was downright nasty. I can't imagine the crust alone is any better.
  25. Kate79
    Tacos... buy corm tortillas, fill w/any combo of meat and veggies. Eat. Works for breakfast w/eggs, too.
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